Post Traumatic Stress Disorder and Advocacy (Trigger Warning)

In conversation with one of my young friends I had a revelation. This was about thirty seconds ago. Sometimes advocating triggers flashbacks while I am trying to function. My mind lept then to other people who have to self advocate through PTSD symptoms. It isn’t always a flash back. If you do not have PTSD it might be harder for you to understand being jerked around by past trauma. Therefore I am going to explain, and this is why there is a trigger warning on this post. Sometimes reading about PTSD or other issue related things can trigger people.

This is not from the DSM (Diagnostic Manual thingy) but is from my experience. I may leave things out that apply to you or tell you things that don’t. The problem with labels is they are often not enough to truly explain what something means. Lets say someone shoots a gun. My first impulse is to be very still, not breathing, and praying that my father won’t make the shot. Even typing that sentence my head went into the land of fuzz and my chest is tight. I am taking slow breaths to focus and clear my mind. The trigger is not always a gun but just a loud pop. My brain is stuck on certain points of the abuse I suffered, it has a programmed loop that it likes to play. I have warning symptoms for my flashbacks now, and can often circumvent them.

My reality is in jeopardy from these loops. the weakest symptom is a tingle, intense fear, sometimes I start randomly bleeding. Why do I bleed? One theory a psychologist offered is somatic symptomalogy. Basically my body remembers, and it reacts so strongly to what my brain signals, that it thinks it is injured. This adds to the pain I feel. The pain from invisible injuries is far from phantom. I feel it. The next step after that is the sensation that I am floating, I disassociate and can see the entire world, but I am not connected to it. Usually I then go back in time. I see and feel at the same time, from multiple vantage points my father with his brand new gun, me and my siblings on the couch. I feel the cold metal of the gun pressing against my forehead. My nose stings with the tears I cannot shed.

The loud bang comes, I feel the heat of the bullet, my skin is burned by muzzle flash and I feel a horrible pain as the bullet grazes my temple. I don’t move. I don’t scream. I just stare up into that black hole, smoke pouring out of it and avoid looking into my father’s eyes, knowing he is going to be angry that he missed. I hear every word he screams again, how worthless I am, how I should be dead and must have moved. My sister starts to scream, my brother too but I can’t move. I look into his eyes and I see the blackness.

I still do not remember what happens next, though I have been told he decided to shoot at my sister, but I pushed her aside. I just know he tried to shoot his children, sitting on a couch that smelled like pee, and nearly killed his neighbor because the bullet went off. The cops were called but I took the blame. I said I was playing with his gun when it went off. I lied, to survive.

When I come back to myself I always want to vomit. Instead I focus on breathing. If the nausea is really bad I will take some Rolaids. Sometimes now, after years of effort, I let myself cry. Usually I manage a tear but my brain has yet to grasp the concept of tears. If I am not at home, it is worse to recover. At home I control my environment, I have a bed to curl up in, two soft fluffy cats, and my Person can go elsewhere more easily giving me the time I need to recover.

When I am advocating and flash back, I never know what to do. I try different things, and usually they work but the vulnerability can be debilitating. I flashed back my first time having to seriously advocate to that scene. That is why I chose to relate it to try and explain what PTSD is like. I wish I had simpler words but none can encapsulate just how much there is to it. Sometimes the flashes are different, sometimes I am still an adult but I am trapped, it is worse in some ways because I still feel the pain but I am completely aware that my world has vanished. I am never certain if I am going to hurt someone. I have before, but it has been a long time.

That first taste of advocacy was so bitter. The cops came, and one fondled his gun and my brain shut down. I was afraid, in pain and exhausted. I was being yelled at and deprived of my prescription because I needed my service animal. The cops even saw Sprite follow her training. When I flash she has three tasks, beyond her instinct to comfort me. First, she signals to my Person for help. Sometimes a conversation can end it. So she chirruped at the person of the day, and I had to form the words, “I need you to deal with them for me. I can’t.” Then, she helps me to sit. I had to wait fifteen minutes for a chair, I wanted to scream at them but I tried to stay calm. I was hyperventilating, they took this as my being dramatic. Then, she moves to my shoulder. Her instinct is to sit on my chest, but she might get flung there, I do not handle pressure on my chest well even when not panicking or flashing. Her instincts tell her to purr, to rub with just her face against mine. This grounds me.

The police threatened to arrest me if I did not leave the facility. I knew enough to know they couldn’t but they refused to acknowledge that I had rights. I couldn’t fight, but I had to. I chose then to repeat the law over and over. I couldn’t think, I couldn’t see their real faces for half the time. All I saw was my father and his eyes that reflected no light.

What can you do if you have PTSD and are an advocate? Here is the how to portion.

Step 1. Before you get to the point of advocating, have a support structure. This is a difficult process, because not every person can truly understand what it is to lose your reality. You need to have someone you trust availible, at least to call.

Step 2. If you have medications used to treat the symptoms of your PTSD in an emergency make sure to carry them with you, to keep a back up dose with your support person, and to keep your doctors number handy.

Step 3. Create a kit of items that help forestall your flashbacks. Nothing works for me beyond my cat. I can give her the signal she is trained for when i feel the warnings coming and ground. This is all I have right now, beyond my Person. No meds, just those two.

Step 4. Remember to breathe. Sometimes if you focus on just breathing you can help yourself.

Step 5. If you flash back during advocacy, try and focus on the responses that do not match the memory. This has worked for others, pulling them out.

Step 6. Advocate anyway. I did get the illegal policy over turned at the Pharmacy where I was threatened with arrest. I had to fight for a long time to do it, but, they relented. It is worth it even though it you might feel endangered or might BE endangered by your flashbacks.

Step 7. If you have to, stop. This opposes Step 6. Not every incident can be worked through. You might need to call your therapist, you might need to let your support person advocate for you. This is not a failing, this is merely the team network that advocacy should be.

I am glad to write this how to. I never considered how important it could be, but, in my mind my broken back, my asthma, and my failing eyes are not my most dangerous disability. The worst disability I have is PTSD. At times during flashbacks I have hurt myself, my friends, and reliving the painful memories can also cost me emotional, physical, or mental progress.

Keep in mind the time you are most fragile is just after a flash back. Some people can be triggered more easily, often it is easier to react in rage. Do not minimize your pain either. It is okay to cry, scream, and sometimes to just walk away.

I have done all of the above. Not every incident with advocating will cause a flashback either. Most of my time advocating I am left with memories of victory. My first taste of advocacy is as sweet as it is bitter, because I still succeeded, despite my unabiding terror of these men. My greatest cause was also revealed to me. I am actively fighting to get the local police trained in how to deal with enforcing the ADA. I want my rights protected, I do not want to fear being put in jail, dumped out of my wheelchair and my service animal being put into Animal Control’s care.

That was the threat, and so often is. My heart goes out to any other advocates who suffer from PTSD. I know each person’s PTSD is varied, some may not flash back, some might just panic. Others might not be able to stop their flashes. You can still advocate. Just prepare yourself as best you can.

The Rape of Innocence (Trigger Warning)

Literal. I lost my innocence, as defined as physical virginity to my father. It was rape. It was never consensual. Incest is bad. Typing these words is extremely difficult but my day has already been one full of tears, therefore, I am going to go with it. His excuse for rape, his reasoning that made it A-Okay to violate, subjugate, and to hurt me sexually was this. “You look just like my mother.” I was four years old. Today I was triggered. This isn’t an easy thing to admit, and I feel uneasy each time I come across things that remind me of him, and at times my PTSD is triggered by a harmful thing. Today I was already in a bad way due to pain, some of it is residual effects of my abusive childhood.

Some of it comes from feeling violated at having to see another doctor, since my service animal makes me unworthy of another. Some of it comes from this post on Feministing.com. I do not care that this game came from Japan originally. That does not make it better. I do not care that their society has a history of subjugating women, so surely all of their rape fetish bull is perfectly acceptable. Not to me. I want to reach out to the women of the world, for an uprising. It is in this moment that I state I am a feminist, in the definition that states I am pro women’s rights and equality, I am pro disabled equality, and I am pro mental health equality. I want to be healthy, I do not want to feel the edges of Victim burning at me again and again when I skim the internet, go outside, or even sometimes when I try and think of a happy moment. It is always there.

I am not the cause of my own rape. How can I be at fault for it? Yet games like this propagate the victim is at fault mentality. I remember when I turned my neighbor in. He was molesting me during the same period when my father decided to rape his mother allegory. I remember being asked by the prosecutor, at the age of five, if I wore short skirts to turn boys on. I didn’t even know what that meant. I remember, however, the after effects. I rejected my body, myself, and I tried to become a boy.

This attempt at maleness included trying to cut off my breasts when I was thirteen, shaving my head repeatedly (and discovering that my head is very lumpy) as well as rejecting my identity. I could not be Rebekah. I had to change my name. I did, as an adult. I found a name that fill sme with the sensation of security, health, and the desire to be happy. I do not cringe when I hear my name anymore. I never out grew the after effects of being raped. I was repeatedly assaulted through my life, and this was also used to overshadow real medical problems.

When I was eight years old my mother and father sent me away for hypochondria and Bulimia. It took adult hood to realize I never was bulimic. I also have a great deal wrong with me, and none of it is in my head, except what neglect and trauma put there.  All of my current illhealth cannot be attributed to the childhood neglect, but, a majority can. I am an advocate for anyone who needs it because there is so much to choose from. How do I choose between mothers and their need for proper nutrition, childhood health awareness, Celiac Awareness, Rape is Bad Mkay awareness, and the awareness that as a wheelchair user I need a door that is wide enough for me to not scrape through.

I am in tears today from pain, physical and emotional.  I am a woman. I am 24 years ago and it has been 11 years since my father last raped me. I have since seen him and he cowers with fear, he actually pissed himself when he saw me using a walker and fled in terror. I am not someone who causes fear but, I am a survivor. I was a victim and when I tried to say something, when I found out I should, I was denied that right. The district attorney felt that my case was not compelling enough because I was a mere child and had been sent away by my rapist for not being exactly what he wanted. I was denied justice, and I know my assailant is out there.

Knowing he is afraid of me doesn’t take away from being afraid of him. It does not take away from the sensation of the little hope I had being crushed because I wasn’t worthy of the time to take a bad guy off the streets. It doesn’t make it alright.

I hope whoever reads this finds either peace, awareness, and the understanding that if they themselves are a survivor of rape, abuse, or anything at all, that they are worthy. I understand as an adult why so few women report rape, when it is always the Victim’s fault. Eventually I will write more on my experiences with the mental health system as a child. I will write about my diagnosises, and the secrets that I am not sure my biological mother wants shared online. Someday she will google me and will discover that I am not the all accepting child she still perceives me as. I do not take the burdens she places upon me. I leave them behind.

I was about to submit this when I came across this in the comments on Feministing.com, another link. Amazon pulled the english version of the game, though it is still availible elsewhere. I am shaking with relief and rage. How do we protect our children when things like this pervade? What is to stop this from normalizing rape in our world? It might. It might not.

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