The Doom Ship

Not everyone gets to ride the Doomship. I ride, others ride, and yet I often take it for granted. What is the Doomship you ask? The Doomship is the Ship of Life, riding towards the birthday of Death. It sounds horribly dramatic and is.

Children born with serious illness are often told, “You won’t live to be 21,” Or something similar. I have a list of birthdays that have passed, my next is another Doom Birthday. When I broke my back, and it was first diagnosed I had a series of doctors tell me that my organs would fail by 25. My birthday isn’t for a few months, I was reading blogs off of the Disabled Blog Carnival and started reading Temporarily Disabled. Not only is this a great read, though with each post I tend to cry just a little for the child who was aching and the pain she has been through. She turned 26 and posted about the Doomship, sailing past into the great unknown.

With Doomship Birthdays past, it is like looking at a precipice of great unknown. I know I am going to live past 25. I am confident only due to surviving so long. These waters are familiar. I am pensive too, due to my Annual Cancer Scare. I get one a year. This time it is my reproductive system. I had my annual blood work done and my white count is high. My pap came back with abnormal cells. We’re redoing them both to verify before any panicking is done.

I waited three years before getting a pap, because no doctor would accommodate my need to not be in their perfect position, or to even help me balance on the table. I can’t do it myself. I need someone else to help heft my carcass around. I know if I do have cancer I won’t die. I will just get over it. My doctor is more worried than I am.

Right now I am surrounded by everything I have ever wanted. Not the things like the toys I never had, but the love I most desired. On my right I have Sprite, the service cat, curled up and purring against my back. She is helping me to not spasm so I can type the words out. My body is rebelling. I have on my left William drooling into my shirt, and every so often poking the keyboard with a paw to see what is so fascinating. He sleeps, then paws then sleeps a bit more.

In the other room my Person is puttering around, doing the dishes after making a meal of my choice. I had spaghetti with sausage meatballs. I haven’t had meatballs in a long time, but he made them for me, tolerating my lewd jokes. My home is clean, my bed is comfortable. My friends and family are far enough away and close enough at the same time. I even have high speed internet to keep me amused on those days when movement is unacceptable.

The Doomship sails on, the waves splash, the thunder crashes, and my life flashes before my eyes, but, it is the life I am living that I am proud of. Not the memories, not the past. It is my future that holds me in it’s sway. I reach for it, sitting in the prow, praying to my gods, listening to the world, and taking part in changing it.

I write something every day, and each time it is self discovery. I discovered I can write non fiction. I never knew I could. I know the mechanics of writing are sound, as I sell fiction periodically, and write it almost daily. It is merely the fear of my life that has held me back. I feared upsetting those with the power over my life and death. I am now the Captain of my Doomship. I mutinied.

So, as I rest, my ship swaying, I look out and see that everyone else is in a Doomship too, they just do not know it. They do not prepare, they do not adapt. They aren’t aware that they have to. Red sky in morning sailor take warning, the storm is coming and the night is humming… wait not for the red sky at night, for on the Doomship there is no Sailor’s Delight.

The Wheels on the Butt Go Round and Round…

Today is a busy day, and I hurt enough to make me want to not just crawl under a rock, but to make the rock cry to share my pain. This tactic is not healthy but it is very human, so, I must chant the mantra today that makes me feel the best. “Centered, warmth, healing light, none other shall have to face my plight. I am strong, I am beautiful, I am capable, and my bed waits for me to finish my tasks.” A little long but it helps me get going with a smile. I am eating a delicious breakfast made by my Male Person of Awesomeness, while he showers. The cats are both coming on our adventures today.

This will be our first time taking William Shakespurr out with us. Today’s activities consist of Veterinarian, Bank and the oh so fun Wheelchair Repair Trade off.  The wheels under my butt don’t want to go round and round. Since the first day I got my scooter things have been falling off. Getting it out the door to the house the first time I clipped the wall and lost a chunk of the plastic frame. The second time it was better but I clipped a rock at an SCA event (pebble sized) and lost a bit more. A rattle started a bit later and here we are Six Months into ownership of my own Personal Freedom Mobile, and it is broken.

Man of Awesome loaded it into the van and bumped an empty cardboard box, and the box won. The lights died and now half the time it won’t move. The scooter seems to be defective! What a concept right? It has had power issues the entire time I have dealt with it, but, I had no way of knowing it wasn;’t normal to have it whine, vibrate, jerk about, and rattle. The death rattle grew worse after it stalled out in the new apartment. I hit the wall goooood, and broke the plastic frame, and the entire system died for eight hours. I used the wall as a pillow, since my bed wasn’t home yet and everything else wasn;t here yet. I was the first piece of decoration in our apartment, a wall fixture I might add.

All comedy aside, this experience gave me a new light on the scooter. While it sucks horrible in many ways, those ways are made up for by the fact that I can race someone to the car, and WIN. First time in my life. I don’t have to try and brace my bosom so that they don’t smack me in the face, I don’t have to worry about a dislocated knee, I can zip right out there and not even break a sweat. I also have the freedom of leaving the house by myself for the first time in years. I don’t have to hide in my room if I want privacy and solitude, I merely have to get rolling.

The Maiden of ButtWheel Repair has warned that I might not be able to get this particular chair back, and that I might want to look at other designs. What I truly want is just a wheelchair shaped item, no long nose, just a nice, cushy chair. I would need to add on a few particulars, like a basket for the cat to sit in, and my sunshade, but, after that? I could maybe make it around some of the walls in the apartment, or maybe squish into that store that is barely inaccessible. Scooters add to the inaccessibility issue facing stores and their handicapped customers, though they are great for some people.

I already miss my wheels…

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