The Cliche of Anger

I am tired, in massive pain, and yet I still am riding on the waves of fulfillment. I worked an entire week straight. I am taking a few more days to get back to my standard however, and reminded myself why I do not work in a traditional manner. I would have been fired today for being unable to wear standard clothing for one, and my attitude for another. Every action I take, every interaction I am bogged down by references to the past, lessons, and reminders. I hear my mother’s voice most clearly, and that is not something I welcome. I want to be an individual not the product of my family.

I wasn’t going to post until tomorrow but I was reading a few pages over at Womanist Musings. The proprietor of Womanist Musings has recently outed herself as being amid the disabled. She is beginning to run into the challenges of being suddenly unwelcome, invisible, and at times hated for merely existing. Today one of the commenters told her that she should start a civil rights movement, ignoring the fact that the disabled community has been pulling for equal rights for as long as other civil rights movements have been in effect. Before we go on, I want to remind you my dear reader that every single civil rights movement hasn’t ended, and that the fight for equality is on going no matter what your ism is. This reader seemed to think that a few protests fix everything.

This ignores the protests in New York, the individuals who do sacrifice their energy and at times sanity to try and force businesses to comply with the laws, and it ignores the fact that there are those who came before you and I. This is an erasure of our history. I responded with snideness and sarcasm, ignoring for the few moments it took to suggest a hacksaw so she could remove her legs as “easily” as I can get off of my scooter, the voice of my mother. “All disabled people are angry, they think they have rights.” I am aware that it is the events of today that shape the memories that seem to nitpick at us. Before I was disabled my sexuality was most often the harbinger of a Mommy Memory. “Bisexuals are selfish, they just want to have sex with as many people as possible.” Every time I went to flirt with a woman or a man, I heard something like that.

The myth of anger is just that, a myth. It erases the happy moments with friends and family, it erases the moments where competent and open minded people realize that everyone has rights. The myth of anger is often used to subjugate. Stop being angry, so that I can continue to oppress you. That is what I hear. The expectation that an entire group of people must never feel one emotion is ridiculous yet this is foisted on women of color, the disabled, homosexuals, and countless other oppressed groups, all to control us. Anger is forbidden.

Many times when I am smiling, I am told, “This inaccessible area will be fixed soon, we swear!” The tone is always frantic, that hint of “Oh god she will be mad that we haven’t done this yet.” It doesn’t matter that I am smiling and just nod and say, “Great, thanks for letting me know.” The fear of my anger, which is some how more toxic than their anger or fear is there. I still don’t understand it, but, I see this often. The times when I am angry, I am also not heard. It’s enough for me to want to go back to trying to be Super Cripple, but, I won’t do that.

My anger is valid. Your anger is valid. Anger is not a reason to oppress, discriminate, or subjugate. Anger is not an excuse to not build the ramp in an accessible manner, and anger is not an excuse to try to “just get rid of” someone. I am tired today, and I am trying to seem reasonable. My mind is far from reasonable. I am in truth alone, and am having a small tantrum every time I need to get up to move. My fiance forgot to feed the cats, which merited an hour of sitting there whining about how I wasn’t sure if I could do it, I can’t bend, and their bowls are on the floor.

It wasn’t anger that had me make a really big mess trying to feed them either. That was love. They were hungry so I fed them, without bending. (Sorry honey, but the kitties have to eat too!) It won’t be anger that I let him know he forgot either, but amusement. Every emotion that I have is not anger. The lessons that our parents teach us, may shape what we see but it is the choice that I made in my first experience with disability as an adult that showed me otherwise. I chose to not see anger.

It’s really that simple. Demeaning an entire group of people does cause anger. If you fear our anger so much, stop discriminating. If you come near me right this second and discriminate I will show you anger, but I won’t run you down with my scooter. That’d hurt me too, and you just aren’t worth my time or pain.

To my friends, allies, and fellow disabled persons, don’t forget that every moment that we are alive is the revolution for our people. Every time we are seen out of our homes, with our assistance equipment, service animals, and even having issues, this is our revolution. VIVA LA REVOLUCION! Free my people!

Nightmares

I haven’t had nightmares since my father died. I didn’t notice they were gone at first, because I tend to only have nightmares when I am tired or when I am stressed. Yesterday I was tired and stressed. I curled up to sleep, taking the time to play some music for William so he would sleep and allowing Sprite to lay sprawled over my hips, which pins me in that position until she moves. This is comforting to me. I drifted off into the twilight that comes before sleep and felt the slight pang of fear, wondering what my dreams would bring.

I remember most of my dreams in vivid detail, and last night I simply dreamed of Super Heroes without villains. They had nothing to do and it was a strange mix of Batman and Hal Jordan from the DC universe sipping tea and staring at one another. There were no words, but it appears that the heroes who inhabited my dreams, fighting off the dark monsters have won. I think it was pomegranate tea.

I remember the smells, and as I crept through what my brain deemed Wayne Manor I found only happy things. It was strange, and when I woke, after a 12 hour dead to the world sleep my first thought was, “Huh… I wonder what that was about.” What does it mean when your heroes run out of villains?

After some rumination I decided my brain is well aware of my ability to fend for myself. The one threat that I could not cope with due to the fear, the flashbacks, and the training from infanthood, is gone. My brain embraced this. One of the truest tests of this is finding silence, nothing but happiness even with the Batman in my brain.

Yesterday I ran into people from the last four years, and I found myself frustrated by the repercussions of those roommates. The credit being taken for my work had an effect, and left me aching a bit. The happiness however, at the true friends that I still have was overreaching.

I went to an SCA event for the College of Blaiddwyn, and I pillaged. My medieval persona (who I dress up as) is a norse female who happens to love Pillaging. I start with a fellow viking, a specific individual and then pillage the rest in my own shallow representation of history. I told stories as well in a competition. It was beautiful, it was fun, and I came home with a sense of satisfaction that I only obtain in the SCA. I missed it.

I will upload videos of my stories and some pictures for you all to check out soon. You can appreciate the awesomeness of my hobby horse on the scooter, I named him Wilbur. I found bits of myself i thought were gone forever. Perhaps it was this wholeness that allowed Batman to take his tea. I wonder if he uses cream and sugar.

With fulfillment comes peace. I forgot who said that. Perhaps it was my Sensei, but, I was fulfilled in a thousand ways with in the last few weeks. A lot of that fulfillment is from writing this blog. Though I may become a more sporadic poster, I am alive.

I look forward to telling you of my adventures with the two young women who are marrying one another, with in the SCA, and as I begin to persue the only job I really know how to do in a classic profession (Public Speaking). I specify in a classic profession as I can do many things, and always have layered my life with the things that please me.

Now for the first time in my life all I choose to do is for myself, or my person. For the first time in my life it is mine and mine alone. Even with a commitment to share my life with people I love, it is my choice. When I started this blog a month and a half ago it was at the start of this adventure. It has just begun but in that short time I have come so far, and i am bringing you all with me.

I can’t do this alone, yet, it is for me that I act. I haven’t felt such power since I started dancing. Dance, sing, and find what gives you this strong sense of peace and joy. Change what needs to be changed for the better, and love yourself. A lot of the private correspondence from this blog comes from people in need of love. The best person to find that love with is yourself. I know it is a cliche, yet it is cliched because it is true.

I also offer you something that my neighbor and Sensei taught me. It comes from the Buddhist tradition. He said, “The strongest Love is Wishing love.” What is wishing love? “Wishing love is the love in your heart that comes with each breath. The joy you feel for life, and the love for anyone. I feel wishing love for you. I feel wishing love for my wife. Wishing love is the love for all people and living things. I even feel wishing love for the people who made me cry.” Why? Why love? “Love is powerful, Little Lotus. Love can help you survive anything. When you hurt in here.” His hand on my heart,”Remember that I love you.” He kissed my forehead and sent me home. I wondered then if I could feel wishing love.

I feel wishing love. Remember, when you are afraid, I love you. When you are alone, I love you. I love everyone in this world. I loved even my father with Wishing Love. I will never forget the pain, but I will also never forget the first moment of love. I will never forget the strange sensation in my heart. It felt as if I could do anything. It still does and I can. So can you.

Wishing Love-
I will cry for you
I will live for you
I will laugh with you
I will love you.
I wish you love
I give you love
Wishing Love
Potent Love.
I wish you life.
I wish you joy.
I wish you mercy.
I wish you peace.
I wish you guidance.
May you find those who can lead you in the path of life, until you can lead another.

Changes and Medicaid

I should be asleep, I was up at Six AM unable to sleep, my mind entrenched in researching what it will take to get Medicaid to cover a new wheelchair. I just got my scooter but my needs have already changed. This might actually be enough, despite being told by my Wheelchair Provider, “Suck it up, you have to wait five years before they will even consider another chair.” I left feeling anger at the young man, first he failed to repair my chair, then the manufacturer also failed and they gave it back to me running but barely manageable. It doesn’t turn.

How can I function with a chair that won’t go around a corner without a circus routine being thrown in to the mix? I gave up on driving indoors with the one I have a while ago. It is too bulky to fit inside. I didn’t know they should have let me drive it before I was left with the chair, or that I should have known with in a month, by some strange magical process that the chair was wrong for me.

I had an accident, before I started this blog, as well. I sat in a chair, in my own home and due to age and exposure to extreme weight for twenty or more years, it collapsed. It felt like I sat on air, even as the wood cracked like a shot gun. For me, when something frightening happens the world slows down to a snail’s pace. I could see the terror in my friend’s faces, and was glad instantly that the abusive roommate wasn’t out of her room yet.

I felt too, the pain as my body tipped into a position that it no longer could sustain. I knew I was going down. I felt this same slowness when my back broke initially, it took forever. I was actually bored by the time the car finished it’s impact and by the time the chair hit the floor, wanting the pain to come, so that it could be over.

The result of my strange slowdown is two fold. The problem is the anticipation of pain might be either smaller or larger than the actual pain. Anticipating it I may tense up, making the imapct worse. On the flip side I can also work through strategies on how to land, shift position, and protect myself. I also can go through panic by the time I hit the floor. I just hate feeling like I am in a Zack Snyder Film. My least favorite director, his trademark is Super Slow Motion Story Time.

I was lucky, I did not hit my head on the chair. I should have but when I just let myself go, my body relaxing until impact, this changed how I flowed through the air. I was impaled on a wooden stake, and immediately made a Buffy Joke, unaware that the joke was too close to reality. I barely bled. My instinct too is to slow my heart rate, to stop all unnecessary functions. this is fine enough but, also is dangerous. I am not sure where I learned it either, but it might be my Mother. She does it too.

My service cat kicked into action, running first to try and fetch any human left in the house, then, checking to see if I was still breathing, before she called for help via telephone. My Person and my PCA (Personal Care Attendant) were both called. Then I went via ambulance with the nicest and most well informed paramedics. I do not know what these emergency personnel are called in other countries but they are our first responders, along side Firemen, and the police.

They were worried, and told me so, because I was far too calm. I reminded them that panic doesn’t do anything for you and hinders care, and that my friends had panicked enough. I had spent half an hour on the floor, trying to not move. I started shaking violently, having small seizures as my body protested. Finally, my seizing was documented. It is related to my level of pain. They gave me some morphine at the hospital, just before sending me home.

First they did Xrays, nothing appeared to be wrong. It’s been a month, maybe two. I am never really sure how much time passes, a side effect of my childhood mental health care and severe traumas. I am not sure which one caused this, PTSD or too many pills. The Xray tech was a student. He was cute too, though I barely registered that. He and his supervisor had a patient who could not move into their positions for the most part, my body refused and it was unsafe until after xrays due to the existing injury.

I found something new, they accommodated my body and still got the needed film. This is rare. Usually they twist you, ignoring your screams, telling you it will just be a second. Xray time is a form of abject torture. Why? Well, there is not usually much they can do to accommodate, or they forgot how. I had a smart tech and a brilliant student. I told him too, he should stick with it and that if he wanted I would write a personal recommendation. I gave him my email address and telephone number.

I have a trained reflex to try and fix people, and this evolved into making bad jokes and never crying in the ER. I cried that night, and there was blood. I still made bad jokes but, I finally had an ER doctor that knew it was the pain talking. I had to make jokes in order to seem okay. I couldn’t stop. That was when I started trying to make myself accept that I need a therapist. Self defeat is not an option when your body is already falling apart.

You know those toys with strings in them, that when you squish them they collapse? I feel like I am one of those and someone keeps hitting that button. I often look like that when I fall too. The analogy is too close for my Person. He doesn’t mind my jokes usually but sometimes when they are cruel and anti my existence he has to remind me to be gentle with myself.

The hospital I chose was full. It rarely is, and that meant anywhere else I would’ve been worse off. I live right next door too, the Women’s Hospital. A hospital dedicated soley to the health of women! They were the first place to accommodate a need, long ago. They woke me up to being treated like a human by doctors.

As we left my doctor shared a funny story, perhaps to illustrate how unfunny any trauma was, but, it was amusing in it’s tragedy. Here it is paraphrased, beyond this point, if you are squeamish, I would skip the blue text.

You like jokes? Well, I have a sort of funny story for you. Lately we’ve been seeing a new type of meth.” So far not funny.”People are mixing laundry detergent and amonia and injecting this into their bodies. Supposedly the best high yet. We have seen a few who miss the vein.” I am busy imagining what the ammonia is doing to their brains, when my Person shudders and the doctor continues, “Each one had gangrene before coming in. I know this isn’t the funny part. Seeing their flesh cook from the inside out, but, they usually start seeing things. That’s where it gets funny. Blue bunnies, almost all of them see blue bunnies.

I took this attempt at illustrating just how funny it wasn’t to heart. When I was in the ER for my Anaphalactic Shock I did not tell a single joke. Not being able to breathe helped, but, that story echoed in my head. Most of them left before they were fully treated. It too raised the awareness of the scents behind this new Meth. I did not list all of the ingredients here either, but he did. Now, I know, if I smell really clean laundry and it smells like ammonia too, watch out!

Life is full of change. NoneĀ  of it is easy, but, I follow some practices of Dharma with in Buddhism, this doesn’t make me a complete Buddhist, there are more components to my religion. It has helped me however, find some acceptance in being born into this body, in my family, and in the things I believe. Some protest Buddhims as a load of bull because there are aspects that could lead to self blame. I see it merely as another tool for coping with change. Buddhism is a life style, not, a religion.

I go back to the grindstone, trying to find resources to take to my doctor to explain my new needs. Likely I will see another wheelchair doctor, walk my few shaky steps, explain why they are fewer. I get tired of the explanations. Do they ever stop?

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