Euthanasia (Trigger Warning)

I am not pro Euthanasia. I think it should be illegal for humans and pets to be discarded willy nilly. Euthanasia however has a special place when it comes to the suffering of animals, and if humans ever value minorities and the disabled, humans. Yes, I am well aware that cats and dogs are put to sleep for being unwanted and unloved, and that is a part of this conversation I am having with myself. You see, today it became clear to me that if Nymph is here Monday with her dull eyes, her silent meows because she just can’t take the pain caused by making a real meow and if she no longer purrs at all, I will take her in. We will reassess Wednesday if she is still here Monday and is okay enough that this is in her best interest.

Even considering this step is not in MY best interest. I realize part of what is in the house and what is under that ice, from my discussion with myself about fragility. Under the ice is the feelings I locked away after killing my dog, to protect my sister. In as little detail as possible for my sake, it was not humane but he had taken a three year old girl by the throat and so I did what I had to do. I can go into more detail but why? Even thinking of that hurts me. Especially the reasoning and the fact that we had raised this dog from a puppy, and I still cannot fathom why he attacked my sister.

In the house are the feelings related to every lost pet, every lost self, every moment of agony that I cannot quite accept was real. All the things I talk about, and there are more things that I am not sure really happened on the surface but I know deep down these “things never happen here” happened to me. More evidence that the crimes we westerners associate with third world countries happen here, and to the supposed preferred female archetype too.

I think a bit of my issue here is the location of my vet’s office. The first time we went in I had a serious flashback, I could still talk and was aware it wasn’t real but I spent most of the time seeing two worlds, and I think I may have “stumbled across” the location of the murder my father comitted. I am not able to explore that memory fully, it’s still distorted and my brain won’t process it when I try. The only way to force it is dangerous for me, so I won’t do it. I already know EMDR and also just going to the place where I was triggered? Very bad.

Still, back to the choice at hand. Nymph is dying a horrible and painful death. I decided that when the pain is there and she has no her left, if her body won’t stop going I will stop it. This time it will not be in my backyard. This time it won’t be an animal lost to a toddler left alone in a swimming pool that thought the kitten should swim, this time it won’t be an animal spreading disease because he was dumped instead of taken to the vet, though loving people did treat his expensive illnesses and then he left and returned to me like a ghost, this time I don’t have to watch her suffer for months on end because I and my cat don’t merit medical treatment. This time, she still ends up dying. The screaming in the house is me, screaming because how can I watch someone I love die? Agian? Humans, animals, even flowers before I understood them as others do, at least enough that seeing them cut doesn’t hurt me but it still can make me sad (though I worked as a florist so flower genocide haunts me at times) This is what is in the house.

Under the ice is my self hatred. I don’t talk about that very often because I don’t actually have a lot of self hatred and it tends to be fleeting. I am not a bad person despite being forced to do things that hurt my soul. There are sounds I never will forget, there are screams of pain mine and theirs that I can’t escape, so I put them away under ice and the house. There is no one or the other and that is a bit scary but the cracks are memoriy itself. They are a different form of rememberance, perhaps more violent or more gentle than the flashes that twist me into knots, I don’t know.

For Nymph this choice came down to a single thought, do I want her to stay for me? No, I want her to just die so she stops hurting. I want her to go, even though that pains me to want, because I love her. That’s when I knew that if she needs help letting go, then yes I can choose death over more painful death. Sometimes cats who are sick hold on to a point where no medication eases their pain, we’re on the edge of that already. I lived two years without pain medication and suffered. I won’t let her go days or weeks that way. I love her.

The second thought on this was, is it wrong? I thought I would say yes to myself, but the answer, though complex and a struggle to get out of my head? No, it is not wrong to let her go. It is wrong to make her suffer because I am afraid of feeling guilty. There is no way for me to escape the guilt at this time. No matter which choice I make, I will feel guilt.

Moments of guilt, is this soon enough, did I wait too long? What if I act too quickly? What if Sprite never forgives me? What if Nymph haunts me? what if? What if? I had to stop that sort of thinking and put it into terms for myself. If I were in a world where there wasn’t any morphine, an I couldn’t take pain medications would I have continued to let myself live? No. Ny doesn’t have as many options as I do, so I will help her. There is no cure for this disease, and Sprite, her share in this is also leading to yes.

I never wanted to have to make this choice again, but at least this time it wasn’t the choice of the giant dog vs my sister. It wasn’t life or death, just death and death.

Sprite is trying to keep Nymph happy. Yet she has hidden from her a lot more today. Sprite is crying for her. She woke me from my nap because Nymph was making that silent scream face, Sprite asked me to help her and all I could do was hold them both. Nymph has yet to leave Sprite’s side for the last day except for when Sprite goes somewhere Ny no longer can follow.

The purring thing is also misleading, which is why I am worried I may miss the cue, but I speak cat far more fluently than I do human, even typing this is harder for me than glancing at my cats and having an entire conversation. My self doubt is a part of grief and any time you choose death, even when it is one death over another, there is guilt. I feel guilty for Rose, because I feel her death though inevitable as she was alive (which I had to change from is to was) was preventable at this point in time. I feel the degradation she and I faced from the carer agency we shared, as well as the doctors we saw played a part and I am angry.

Nymph does not have that. I wish her vet was my doctor infact because he has treated us all with greater kindness and he hid nothing from me. He did ask me once if that was okay because he didn’t want to make it worse and I told him the truth, upfront hurts less than me trying to guess between the lines of discussion.

So back to Cat’s purring. Sorry this is so jumpy, my brain is not letting me flow as much because this is an active thought process not my more common secondary rehashing of ideas. I think the difference shows as those tend to be a bit more orderly. Screw order! Cats purr from pain, happiness, fear, and all sorts of emotions. Most often love and comfort. Cats purr to heal. The fact is, each purr feels different and when I touch Ny and she starts to purr, it is still love and comfort purr. Her pain purr is a ragged gaspy purr, it is a sad purr that doesn’t feel soothing. Still, those big golden eyes of hers are greying over, and I can smell her scent changing. That bothers me. Being super smell sensitive I liked her scent before. It was like ice cream. Sprite smells like sugar cookies.

The effect of her purr starting to change has not happened yet, which is how I know she will still be there in the morning. I sort of hope she and Sprite share my feet again, each one wrapped around them because that was a gentle way to wake up but I also keep waking Nymph when I cannot tell if she is alive. This happens a lot more each day. I have told her if she just wants to let go she should but I don’t think she can yet.

So Sprite is holding her. She has washed her every day, tucking her up against her side. She curls around her and Nymph wraps herself up closely and just closes her eyes and I know, if she no longer can rest that way I will do what is right, even if it is not what I want and in other situations I find this sort of thing abhorrent. This sort of pain and incurable disease, this sort of suffering is what Euthanasia was actually meant for. Is it murder? I honestly think in this case, especially since I can and WILL ask Nymph, as I have once already, no. Will it hurt and will I doubt that sense of no? Absolutely.

Some of the things Nymph has told me in the last few months we have shared:
1. You taste good, can I have milk on your hand again?
2. I want up! Can I get up too? I promise to not bite Sprite more?
3. Oh, it’s bouncy! (Twice, once for my stomach and once for my waterbed, she proceeded to jump up and down on both for the next hour)
4. Bug! Bug! I’ll get it! I can do it! Rawr! Aww… bug got… bug! (She then squished it under her paw, it was a spider.) Bug stopped moving.(She licked it, made a face) Bug is gross!
5. Soft, warm. I like this. (insert purring that out purred sprite as she stuck her head against my back and curled up next to me the firsttime) Okay I sleep here. (Sprite sleeps there, she wasn’t thrilled about that)
6. I love you.
7. Play? Here’s toy! Yeah!
8. I like hands. Yeah, put your hand on my head. See. I like this.
9. My tail is stuck again! Why doesn’t her tail get stuck?
10. I’m a big girl, just like Sprite.

Nymph has made me and Sprite very happy. That first moment when I met her, I was so surprised by her. I had begun to fear that I would never find a cat that was as cool, amazing, intelligent, or unique as Sprite. My two fae match their name sakes in ways. Nymph with her long thin legs, her adult size tail which is already longer than Sprite’s tail, and her big eyes and ears. She looks like she belongs in a fantasy novel to me, the cat companion to the heroine, her own stylized beauty perfect for such things. Of course Sprite was in the Golden Compass so her beauty with it’s delicate ethereal quality was already immortalized for all to see.

I still find myself imagining what Nymph would be like all grown up, and I regret knowing she wouldn’t ever be much larger than Sprite. Sprite is actually just a tiny bit bigger than Nymph, lengthwise. Ny was taller, and when they sat eating it was Ny’s tail that reached the second shelf down, that’s about a foot. Her tail stretches past her front paws and she has enough tail for two. Right now she has it wrapped all the way around her like a portable hug.

She doesn’t play today, because it hurts. Last night she hunted her last bug, and went for the string toy for a few moments, before the pain stopped her. She tried so hard to hide it but you cannot hide such things.

The part of this that is harder is when I cannot keep my tears on the inside, she still tries to make me happy. I know she knows she is dying. Sprite even told me so. When I asked her why she wasn’t sitting with Nymph, “I don’t want to see her die.” That was what she said. “It makes me sad. Make her better.”

I have come to a realization from this however, about heart break. Hearts do not break, they shatter. They are glass flowers that grow on the vines of our souls, and when we feel healed it is because it is a new spring time with in our minds and hearts. It is because we have regrown a part of us. That is why we are never the same, that is why at times we miss things and feel those shards of glass, they are there beneath the Heart Tree, evidence of the lives we have lived and the chapters that we have written. These shards can cut us but they also hold things of beauty. So though my heart has burst with sorrow, it held more joy than any heart I had before.

I am going to start looking for a new feline on my birthday. I don’t think I will want to. I however must take care of Sprite, and Sprite can handle a month of being alone before she starts to get depressed. I want to find a new companion by her birthday. I also know from experience with her that a month is how long she tends to openly mourn. Therefore, though I will never actually stop mourning, I will do what is best for Sprite.

I know I don’t stop mourning, I just don’t cry as much and remember the happy little moments like when Nymph decided the best place to sleep was in my miniature roses, and I woke up to find her coated in petals. Or when she then brought me a rose the next morning, having decided Roses are really great to pounce AND tasty. She took most of the actual roses, leaving the buds and laid them all around me. Sprite being allergic to roses had no reactions so she did not take part. When I can remember those moments and smile without tears, then I am once more living.

I haven’t managed to do that for Snowball, the kitten my brother drowned. Though as an adult I realize, A could’ve drowned as easily as he was without adult supervision. I am grateful he did not, and I know he has never forgiven his error. I think I have, I just don’t forgive my anger at him, he was three. My mother? Not forgiven for that. She should have been watching him.

I haven’t managed to do that for Sweet Thomas Feline, diagnosed with FIV, feline aids, he turned out to be misdiagnosed and was going to be euthanised. My step father dumped him on the mountain. Tom was found by a classmate, though with no color and this predating microchipping, she had no idea he was my best friend. In fact this classmate was kind to me about my horrible sadness. She was the first person to tell me it was okay to cry and to see that tears tend to mean bleeding for me. She wasn’t a friend but she wasn’t cruel. When Tom returned and I called the tag to find out who had had him, she and her parents allowed me to keep him. They didn’t ask for money but were glad that their cat who disappeared was my dead cat and that he loved someone so much he would walk for six months to return to them. Tom didn’t die with me, instead he chose to not move with me one last time, he was old and hurting and there was a lady, I thought she was ancient but likely not, she gave him a home indoors with REAL TUNA. I have yet to remember his face in the window the last time I saw him as he watched me walk away, the window was open, but he stayed inside and yet he was sad to see me go. He may still be alive, though I doubt that. With her his medical needs were taken care of and he was safe from cars, dogs, storms, and so on. In fact Tom became the father of several generations of cat in a town and is essentially their patriarch. Tom is why I believe in steralization. Someday I will tell you how I obtained this cat, who was a champion apple head blue point siamese. It was an adventure.

There are Philip and Lily, Minerva, Backlash, Fox Meowder (yes after the XFiles character Fox Mulder) and so many more. There were each of the kittens that didn’t make it, and there was Colores’ last litter, who died because their mother did too. She may have turned up in my biology class actually, on my dissection table. I did not dissect the cat that looked like my missing cat, I could not. I failed the class over it. I have no regrets. My biology teacher showed us pornography, home made, because that’s of course human reproduction. The school never ordered cats. My cat wasn;t the only one that looked like a missing pet.

Still, as an adult I have been able to protect my cats, I have been able to fulfill their needs. With Nymph I had to ask for help, and with Sprite once before too but I can do that. In fact if I had not learned to ask for help for them, I would not be here today because I learned to ask for me too. In a life of regrets about how my animals were treated because I could not care for them, there are no regrets about the treatment of my cats as an adult.

I also have seen another cat suffering with medications to keep him alive, feeding tubes, and I have had the horror of this cat asking me to kill him. “Just let me die”. I have seen the light lost in his eyes for almost two years now. This cat, is six pounds. His body was meant to be twenty pounds. I think of him when I see that same look of agony in Ny’s eyes. I regret being unable to save him from years of agony. Is it wrong to save Nymph weeks or months? Days? My heart answers, no, because that is love.

Another lesson in love that I am learning.

Lesson the First: Love is not pain, as I learned before.
Lesson the Second: Love means doing what is best for someone you love, even when you aren’t sure you can live with it later, because if this is truly an act of love then it is selfish to not meet the need no matter how sad it makes you. This is why people can break up and still love one another. This is why a mother can go hungry for her children. This is why sometimes you have to say no. It may make you unhappy to do so, but if it is what is right then do it out of love.

Of course that lesson isn’t learned yet and it is one which others claim in defense of horrific acts. In those cases that isn’t love. In this one, deciding that she should not have to writhe in agony and scream for weeks? That is an act of love. It is another piece of the happiness I have given her.

This picture was taken just as I finished this piece. Essay/Decision making process. Now you know how I decide even what to eat. Intensive mental exploration.

This picture is a symbol of love.

a small white kitten curled up with a larger silver and grey cat on brown carpeting. the kitten is a calico with orange and grey spots with a white under coat. Both cats are about the same size and make a spiral.

Hush my sweet, sleep so sweet, true is love and true are you.

Suicide: Recovering or Relapse? (Trigger Warning)

I wrote about what it means to actually be suicidal before, and I haven’t really touched on this topic since. Part of that was dealing with the depression. I want to talk about the recovery process and I also want you reader, to be aware that this can be triggering for people to read, or even think of. I also am not claiming to be recovered fully but I am recovered enough that I am no longer constantly looking at the things I own as weapons that could kill me.

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News: Not Bad!

I decided it is time to update on the status of my recovery. Physically I am not doing well. The Vertigo is really a challenge. I am fighting on so many fronts at all times that I feel worn out. I still cannot sleep. I am still me. I haven’t managed to find a therapist, nor have I been able to convince the insurance that I need a therapist. Sometimes I think that the government wants all disabled people (hidden, visible, mental health related, etc, I do mean ALL) to just die. They hamstring our ability to get care so often, costing them more money, that it seems reasonable to think that they would be happy if we died. All of us. At once.

I am still depressed. I am still fighting for emotional stability but my news is this. It has been one week since I wanted to kill myself last. I am still struggling with the desire to self harm, but, the ideas aren’t to kill myself now. Some of it is the old voices of my parent’s messages. My lack of value for anyone but myself takes a toll. If I hurt myself, I can punish myself and make the bad go away right? Still. I want to live and I am able to not self harm.

With all that has occured in life and the general lack of support I am doing amazingly well. For my own standards I am reaching good enough. I am on the rise. I have goals again. I can feel the words moving under my flesh again wanting out. I am still afraid, going out still terrifies me but more of this is now related to my physical body than “He could get me”. I even considered dating. I decided I am not ready to date but, I may sometime give it a whirl. I want a working wheelchair first and I have to find good spots in my riding distance because I am not going in a car for a date.

I do find it odd I have more dating options as an openly disabled person than when I was passing for abled. So over all things are not good but not bad. Just shy of good enough.

Being Suicidal (Trigger Warning)

Before I share my writing today I am giving a bit of a prologue. This is serious, and this post is a long time coming. My scooter is repared thanks to your support, and that is one of the better things. I have a full time caregiver who is fantastic, and I am working on getting better.I will write about the good stuff soon.

Please read more, I am covering this due to the serious trigger warning. I don’t do that often.

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The Chronic Life Style

When you live with one or two or even more chronic illnesses your life changes. You lose something. Life becomes medicalized. You are removed from society, even if society doesn’t see it. Some conditions are blatantly obvious, but others may be hidden by clothing, misinformation, or even great efforts by the patient. You become a patient. Likely you also lose patience with the practice of medicine. Depending on the rarity of your disease or diseases you rapidly eschew laymen’s terms, having to research so that you can teach your doctor about the latest treatments.

It may feel like you should give up on doctors, but you may need medicine in order to have any sort of quality of life. Painful procedures including biopsies may become a regular requirement for treatment. You will have a team of doctors, none of whom communicate with one another. The coordination of this team depends on you. Most doctors will try treatments that do not corelate, and many will eventually give up on you. They want to treat you with a cookie cutter treatment, though for most rare conditions these do not exist because the pharmacutical company cannot make enough money and doesn’t really care if you are in pain.

You spend most of your life in a waiting room, and once you have a doctor in a room with you there is often a fight to get them to listen to you. Eventually, you learn how to make them listen, though this comes with practice. You are known by your first name by a pharmacist if they care. You learn to count your painmeds at the counter if they don’t. Sometimes they pretend to care just to steal your medicine.

Your doctors all want you to take dozens of pills, and often put you at risk for an overdose if you do not know why you are taking other things or their side effects. This burden can be very heavy if the pain is effecting your cognitive function. Some doctors will ignore what you want, they will ignore your chart and may prescribe drugs that you are allergic to. They then get offended when you point out that the medication will harm you. You don’t matter to these doctors and they are often specialists. You learn soon too, that you want a doctor freshly out of med school, because they are open minded and are often the ones who remember the names of rare diseases, but you want the experience of a doctor who has been at this for years.

There is no option for both, you can either have inexperience and passion or the doctor who has been dulled by years in the system. If you go to a hospital with even one medical student you will be shown off like a side show freak, because you are rare and fascinating. They will prod you, even if your condition has nothing to do with your visit. If you have an ear ache, they will still want you to flex your joints or to poke your skin to see it’s odd reactions. They all want to interview you or treat you so that they can write a paper on your condition. None of them keep in mind the humiliation that some of their questions can cause. Some doctors do not ask permission before telling these students about you, violating your HIPPA rights.

At other hospitals the internists may be in the same position as medical students, though they are much rarer. Often the internists will arrive and will ask permission. The curiosity still gleams in their eyes but they are not going to ask the questions with as much bluntness, a sign of mental maturation. Still, even if you are a small child, you forget to have a childhood. Doctor’s don’t really seem to understand that you lose your personal life.

The condition may have treatments, but many of them might be surgical. You could have a few conditions that cancel out the treatment options of others. The horrible sensation of turning into a grotesque monster may hit you. At this point, or even before, many with Chronic conditions turn to thoughts of suicide. Some even commit suicide, abandoning their families and lives. Some choose this route because they were abandoned instead. All Chronic Illnesses come with a side risk of severe and Chronic depression.

You might start laughing at every new diagnosis. You might hear the words “rare” or “genetic” and burst into giggles. They aren’t sounds of joy but it is really a mask for your horror. Each diagnosis has the same grief process. Sometimes you may be able to skip denial but you can never skip over the tears that you cry when you are alone. Even when you have a support system, they can’t always help you to feel better.

As your condition progresses you forget to do things such as buying groceries, or you have to choose between the medication that is vital to you and your pain medication. Many people with chronic conditions are looked down on if they need a handicapped space to make it through their shopping. Some careen through the store in a rush trying to get everything done before the pain overwhelms them, or the fatigue. Others use a motor cart provided by the store, praying that some little old lady doesn’t see them. They might feel guilt the first few times, but the ability to buy groceries with diminished pain is such a huge relief that they continue to use the carts.

At this point some continue to work, though others may lose their jobs. Not only are most people with Chronic conditions, even those which are supposedly pain free, fighting depression but the treatments may cost them their ability to work. If, as with Hidradenitis Supprativa, there is no treatment beyond surgery the patient will likely wait until the condition has debilitated them completely depriving them of their livelihoods. Some of these conditions are listed in the government’s database of conditions which need expeditious approval for a Disability claim.

Due to the listing in the Disability Database, the patient may run across a person who desires their disease or at least the diagnosis. This can be in the waiting room of the doctor, in line at the Social Security Administration Office, and even online, when seeking information and hope. This can often prevent a patient from seeing this doctor again. The patient might notify their doctor or the receptionist about the conversation. Instead they likely are too ashamed by what they have heard. Usually the person who has stated they desire this horrible condition believes it is truly painless, and considers it the easy way out. They are unaware of the detrimnetal effect that their words might have.

The patient with disability still faces the cyclic visitations to a doctor that the patient who has retained work or has made the choice to try and deny the need for Disability Benefits does. No chronic patient is exempt, though there may be enough relief from their condition to give them the sense of remission. Sadly due to the Chronic nature of any Chronic condition, there is no truth to this and they face the risk of a deepening depression or the onset of depression depending on their personality.

It is recommended by most physicians that patients seek therapy, although the psychiatric community eschews supporting most pain patients, preferring to tell them that their condition is in their head. The patient likely has spent years fighting for a diagnosis and will often have trouble with the notion of seeing a therapist again due to the traumatic treatment recieved before. This is not universal, though it is more common than a happy history with a therapist. This does not mean that therapy is not a good choice, as the state of mind can effect the reception of treatment by a medical physician.

Many patients will seek a support group before seeking out a therapist. With the advent of the Internet there has been an upsurge in email groups. Some patients may struggle with finding a group where they “mesh”. This struggle can be due to race, religion, or even prejudice faced against certain conditions. The rampant discrimination with in the chronic illness community can at times push people back into the mental distress mentioned previously. Many support groups try to modify the twelve step system or insist on a certain religious belief. Some members of support groups may be religious centric, focusing on prayer. Not every chronic patient wants to pray constantly. Many have had crisis of religion and are also seeking out their beliefs. This means that the religious patients who have turned to god may agitate their mental stress further.

This does not mean that any of these groups should disband, it merely means that a further support structure must be created and maintained by the patient. The patient has at this point forgotten that they can be more than a last name in a waiting room, or a first name if their last name is moderately difficult to pronounce. The patient may have had multiple personal crisis, and many years may have passed. Each patient progresses through various points in this article, and perhaps all of them. Some may be exceedingly lucky and find the perfect doctor, therapist, and have the perfect family who supports them unconditionally. These patients are rare. They also live with Unicorns.

Depending on the condition and the level of gore that the patient faces romantic interludes might be impinged. It may become difficult to hold their children, or to touch their pets. Fear may also be an issue with the patient’s spouse. Sadly, many chronic pain patients face marital crisis though a significant number of these crisis actually strengthen the relationships. Chronic Illness does not preclude the patient from desiring romance, love, or affection despite the potential for an increased level of anger as a side effect for the pain. The patient might begin to display outbursts of rage, instead of depression. They may also seem to mirror the bipolar patient (if this is not their chronic condition) with Mood Swings.

Some of these emotional reactions are the natural response to the brain altering it’s function to try and work around chronic pain. Others may be a response or side effect to treatment. Some medications excaserbate depression, others may mask the symptoms but only for short periods of time. The end of the masking period will be followed by a worsening of the condition.

With patients who have only surgery as an option there is the risk of being scammed by snake oil salesmen, untrained herbalists, and finks. A patient must research every medication, doctor, and treatment. It has become the patient who knows more than the doctor.

In order to return to being a person instead of the patient, a patient may tell their doctor to sod off. This is otherwise known as firing the incompetent buffoon. This is not always effective, as the medicalization of their humanity may have progressed rapidly and with great depth. The patient has found that resistance is futile. It appears that the Chronic Life Style is much like that of the Borg, as the patient has lost personal identity with in their medical file, beyond DNA evidence. The patient has discovered the medical hive mind, and thus their own knowledge has given them the ability to connect to it.

Published By Dr. Sarc A. Sim in the American Muddicle Association Joynal.

Author’s Note:

This was my attempt to try and vent. I spent last night trying to find out if I needed surgery for a very painful abscess that stayed hidden in my flesh for a good while. The cavernous hole was larger than a baseball, and showed up only as a small spot. The current treatment prescribed was oral antibiotics, which I stopped this morning. They made my stomach hurt and effected my reactions to the sun too much to continue.

The incompetent dermatologist I wrote about before prescribed this and a topical antibiotic that I used last night. I am now being forced to choose between improvement in the skin itself with the sensation of being burned alive or a faster progression of this illness that has no real treatment besides surgery and skin grafts. I haven’t decided yet. I am not sure I can handle that much pain.

I also am trying to get over the feeling of being alone. I wrote before about my rejection of mainstream religion, and all of the HS groups I could find last night seemed to talk about how prayer is the only treatment. This left me feeling as if I should just go to sleep and never wake up. This is a step away from suicidal thoughts for me, but is very close. The urge to give up is universal, with any challenge.

The final nail in my emotional coffin was seeing pictures of the treatment for HS. My skin is unable to hold a stitch, which means that where someone else could have the skin literally cut out completely and grafted over I could not. I did determine, as my doctor never knows and I have yet to find a Dermatologist willing to treat me more than once that I likely do not need surgery as long as I drain the abscess hourly. I am doing this and the wound is already shrunk down to the size of a golf ball.

I know I have support here, and someone else who is reading this probably found out they aren’t alone. I am considering doing something that feels drastic. I am considering building a website to host an email support group, a forum to discuss medical things, and a place to discuss non medical things. This would be a place to congregate. There would be a selection for those with the need to talk about their religious choices, but it would be seperate from the main support group as those persons are more likely to find a support group that fits them. I hope that it is clear that I am not judging anyone based on their religious choices with this, yet I want to make a place where you do not have to be religious, of the same religion, or can be an athiest without being judged.

I dislike reading about how once someone started praying, eating parsley, and did penance they realized they are marked as a sinner and that is the end cause. Yes, this is an extreme form of self belief, yet with the more untreatable conditions, of which I have many, that this form of extremism is more prevalent. I believe that some persons who happen to believe in the more widely accepted religions just as the less widely accepted religions may go to extremes but the main groups do not.

I feel that this all needed explanation as some people may be offended by my words, and that is the last thing I want. However, I needed to vent my emotions in order to subvert the depression that is trying to take over my mind.

If you would be willing to help create a system as described, please either use the contact form and drop me a line or post in the comments section. I cannot do it alone, and I do not have enough time to make this a reality at this time. This of course is logical as any group needs more than one person. I am looking at the Yahoo Groups System, as well as some of the free services for a website.

One persons Courage…

You hear about it in the news, inspirational articles, and in the whispers of people discussing someone’s life. Sometimes you hear it to your face. “You are so courageous.” I have been facing my fears lately and there has been some courage yet, most of what people tell me is courage is merely a will to live. Is the Will to Live what makes us couragous? Does this invalidate courage?

When I hear about someone being courageous, brave, or something along that line the picture in my mind is a bit gender normative and sexist. It’s a brave soldier in a black and white movie with bombs exploding behind him rescuing the little woman and running away from gunfire without breaking a sweat. I am well aware this is a very skewed image that remains in my mind. I use this image to invalidate my own experience often.

How can I be courageous? I just didn’t give up. I didn’t notice it until tonight. Giving the speech about my Thirty Seconds, I was reminded it is courageous to save a life. I found myself afraid of those words. Why fear courage? I think it is the responsibility to be something more than human that the media shows us courage is. Batman is couragous. He’s a super hero. I am just a small and broken woman at the end of her endurance trying to make it through every day.

I am trying to teach myself what courage can be, beyond the black and white John Wayne dreams. I am trying to teach myself that courage is simply living. Transgendered people who have the courage to go through the change, to live in the sex that fits their minds and not their bodies are courageous because it is their will to live. They can die for being who they are.

How terrifying it must be to have to pee in public. How terrifying it must be to go clothes shopping, to go out and feel that fear… what if someone figures out who they are and in their ridiculous hatred they attack? That is courage. It is also horribly sad that we live in a world where it is not a hate crime to attack a trans individual. I didn’t know that until recently, I thought that it was a hate crime. It should be. Living without a legal saftey net, living without basic human respect, and living without the ability to be accepted by any other minority (except for some of us who actually do care) takes courage. There are trans persons who are unable to live as they wish, because it is too dangerous.

It takes courage to live at all. It takes courage for the college student to go to her late night class, because she hears all the warnings about rape. It takes courage for the woman who was date raped to speak up, risking victim blaming and slut shaming. It takes courage for the teen mother to take pride in being a mother, bucking against the stereotypes about teen mothers. It takes courage for the disabled man to go up a flight of stairs on his hands and knees to see if his able bodied friends and family are alright after hearing a gunshot. He couldn’t escape if there was a killer. That is courage.

To revile the word courage is to revile the act of living. It takes courage for our students to go to school. We live in a world where the terror of school shootings is very real, where the hate that a disabled student feels can destroy their minds and their souls. We live in a world where there is no safe haven. It takes courage to raise a child with disabilities and to love them. It takes courage to admit that you are disabled.

It takes courage to say that you do not want to see a movie because it is full of sexism. It takes courage to be a Womanist. It takes courage to be a Feminist. It takes courage to be an advocate. It takes courage to write. It takes courage to cry. It takes courage to go out, knowing discrimination is waiting for you. It takes courage to date a person who is of another color. It takes courage to love someone who is of the same sex.

In a world as full of toxic messages, it is cowardly to defame courage. To hold the power to inspire one person is enough to change the world. To inspire countless thousands? That is a gift unparalleled. Forgive me for feeling that I was unworthy of the word courage.

I have been courageous. I am courageous to write about my time as a Victim. I am courageous to have ideas and to share them. I am courageous to start a business during a Depression.

You are courageous too. I am sure you can list ways you are courageous. I would like the comments on this post to be dedicated to your courage. What have you done that is courageous today?

Today my act of courage is to start planning the wedding ceremony for two young women in love. My acts of courage in life will include officiating their wedding ceremony. I do this with pride, and to honor their love and the courage it takes to stand up and proudly say, “I am Gay, I am Pagan, and I am in Love!”

Thank you for your life. Thank you for your courage.

Burned at the Stake (Trigger Warning)

I was eight. My family had just moved from one small town in New Mexico, up to another. I want to name it, but, if I do it reveals too much about who I am. I keep my veil of safety. Being pale, with red hair and my own inhibitions in communication I was an outsider anywhere I went in this state. In small towns however, there is a generational acceptance and a strong xenophobia. That which is different isn’t just feared it is hated.

The children in this town were taught that red hair meant you were a witch. This lesson came along before I did. The further stigma of not being able to tan implied this further. I remember the attack, though it plays in half segments, like a badly edited movie and I feel like an outside viewer. I was on the swing, trying to kick the tree branch. Despite my fear of heights the Swing was as close to flying as I could get.

The other kids were calling me names again, chanting them at me, one threw a rock. The film skips. I must have fallen, my shoulder was out of place and my legs hurt. I was in a corner now, and I was quiet, I hadn’t learned to make them feel fear yet. They were new threats. The film skips. I hear the bible verses, half misquoted, none of them had actually read the bible they were just paraphrasing their parents.

“You’re weird.” Silence. “We should kill her.” Fear. “She’s a witch.” Confusion. “Thou Shalt’ not Supper a witch to live.” I did mock them back at that point, correcting their mistatement, “Suffer.” Fear. Suffering. I hurt. The teachers who watch and protect the students watched, they did not say a word.

I ran, I could feel the bones in my knees and ankles grinding, my hips hurt and crackled loudly. I could barely walk, a familiar feeling in daily life now. I cried too. No one wants to die. I thought if I died no one would protect my family. They laughed at my terror. I tugged on my teacher’s sleeve and begged, “They said they’ll kill me.”

“Go play.” The film skips. It’s the next recess. The sun is lower in the sky, and my body aches more. My shoulder is still out of place, but so is my elbow. The rope cuts into my skin. My lip is cut, my glasses are broken so their faces are just blurs. “Witch. Witch.” I feel the sticks under my feet, one of the boy scouts is rubbing sticks together to try and start a fire. I am being burned at the stake.

I did not cry then. I thought I was going to die. I closed my eyes, and I did nothing. I did not pray, I did not let myself feel. I just felt things. Mostly, I felt relief. I thought then I would never have to see my father again, or the older boy who had already found a new victim. I thought if I died my mother would be happy again. I thought the world would be a better place.

A sharp pain comes, and I start to cry. It’s not fire. They failed with fire and one of them threw a rock. The film skips. I cried, I knew I was bleeding and I knew too my guardians did not protect me. I had no teachers who cared, I gave up then. I gave up living in my heart. I had already been broken, I had already been beaten. This was just proof that the world was a place of pain and violence.

Proof no one could love a piece of trash like me.

Invalidation of a person. “She’s weird.” I did not scream, and I did not shout. I just waited to die. Why was it taking so long? Why couldn’t it end? Why did no one do a thing to stop them? Was I so very bad that I didn’t get to die? Was I so very bad that I was going to die?

The bell rang, and everyone else went to class. My teacher’s voice came as a snarl, “You will be counted as absent for the day.” She always looked away when the other children hit me, cornered me, and this time she had just watched. She looked away too when she caught one of the teachers raping another girl. This was the same. It all felt the same to me. No tragedy worse than the others, every breath was tragic and full of pain.

The third recess came, I hurt from the sun. “Whore.” I did not respond, I did not look up, I just stayed silent. “Slut.” More rocks came. One of them found a lighter, maybe a teacher gave it to them. The film skips, plays backwards, the insults the same, a chant of hate. The film skips forward. They have a stick that is burning. My ankles are covered with debris, rocks and sticks, a branch pulled from a tree. Dry tinder, dry grass. The lighter is set to the flames.

I wasn’t afraid anymore, I just watched the sticks burn, listening as they cheered. They were killing me, but, they were happy. I wondered if my mother would be angry at me for dying, or if she would be happy that there was one less mouth to feed. I could hear my father’s threats, I could feel his hands on me. Everyone said I was evil, so dying was right. One less bad person to ruin the world.

My feet hurt, but, I just stood there, tied to the tether ball pole. The principle suddenly was there, the film must have skipped again, but, I didn’t care. I just wanted to make them like me, so I would have to die. Then, maybe my mother could love me. I didn’t know she already did. I thought I was bad. I thought that every lie said was truth. I never heard the good, I don’t think it was said.

I heard yelling, I thought it was more hate. “How dare you just watch?” A knife was drawn, I thought the principle was going to kill me. I had been out in the sun all day, I hurt too much to think. The film skipped, he was carrying me inside. The teachers went back to work, watching. “Who did this?”

Silence.

Eventually I told him, all I could remember. I told him, and he cried. I thought that meant he knew I was evil. He called my mother, I don’t know if she answered but she did not come for me. My teacher kept her job, no one was punished. Only my body, my mind. He drove me home, he said he’d do something. I am sure he tried.

When I went back to school the next day, we started to read about the Salem Witch Trials. Everyone laughed about setting me on fire, about burning me. No one asked if I had blisters on my feet, if it hurt me to walk, or commented on the fact that I had blisters on my face. It was funny. The film skips.

It was all my fault, my mother said, if I just tried harder to get along. If I was nicer. The film skips. Years this time. In and out of the institutes I had already been, I was tired of it. Someone called me a witch, I fought back. I did not want to burn again.

The scars are hidden by other scars. No one was punished. No one cared enough. I was just a little girl, I wasn’t like them. I never will be. Over the years, I watched them as an outsider. I watched them live, I watched some of them die. None of illness, it was always stupid and preventable. I watched them age, I listened to their cruel words.

Every year, they reminded me about it, about the time they burned the witch. I still don’t know why it is funny. I was always threatened with a repeat performance, whenever I did not give them their way. My mother asked why I never had friends. Because I was the Witch. I took their mantle, I practiced the craft of hatred. I made them fear me.

I committed acts of violence, and I learned to hate. I never forgot that my siblings watched too, I never forgot that the teachers watched. There was real danger, there was no medical treatment for it. I had to walk to school until my feet healed, with burns. I had to feel the pain. I still feel some of it.

My sister found a half acceptance by selling her body for it. She let the boys do as they would with her. She let herself be their perpetual victim. It helped that she was born to be blonde, blondes cannot be witches you see. Their culture too taught them that the blonde women are the most desirable. My brother never found acceptance, he ran off as soon as he could, starting adult life far too early. Facing different pains than I.

My siblings who were born while we lived there still never quite fit. Generational Acceptance. Their great grandchildren just might fit in. I hope if they do, the town changes from violence and hate to love and acceptance. I never forgot who watched. I can still list the names. I know too, if my principal had not been sick, his age catching up with him and his body failing him slowly, they would not have just watched. He was a good man. One voice trying to teach them to love.

I never just watch. I will open my mouth at risk to my person, if it feels right. I will lift a hand to help someone if I can, or I will find a way to act. I never just watch. A part of me is forever burning, forever marred, and forever marked. I hear often that bullying is harmless. It isn’t. That was written off as bullying. I spent the rest of my educational career in terror for my life. It’s never just bullying. it is sheer and abject cruelty.

Is it just bullying to throw rocks at a person hoping to kill them? Is it just bullying to set someone on fire? Is it just bullying to blind them? Is it just bullying or is that the excuse given to make it alright to watch? What are you watching happen? What do you let someone do, that costs another?

Every word, every fist, every rock and the fire all took from me. Every adult who just watched is more guilty than the children, because the children did not know better. They only knew what they were taught. They were taught to persecute outsiders, to shun those who were different and to fear any slight varient. They were taught that god hates difference. They were taught hatred.

Not many people in that town grow up and function well outside of it. Part of it is the high density of criminals, hiding easily from the law. Part of it comes from the number of illegal immigrants. The lack of proper education, in a state that always falls in the bottom categories, this is the town that scores the lowest every time. The deficits that these children face disable them further than anything ever has me.

They burned me at the stake. I am struggling to forgive, but, when one of them ventures out of their town or when I must enter it’s borders I still feel sick and fearful.

They burned me at the stake. No amount of explanation or justification will ever make that alright. I may forgive them but I will never forget. I will not pity them, I will also not abandon them. If I am given the choice between watching or acting, I will act. I have to, I must rise above the actions of abuse, incest, torture, and pain. I must rise above. I must heal. I give myself this edict.

They burned me at the stake. There was no justice, there was no help, there was no relief, there was no escape. I had to face them. I had no safe place. I had no one to trust. I wasn’t just lonely, I was in a desolate place, beyond the reach of the rest of the world, wrapped in torture. Reality was worse than any horror story I could read. It was all just a nightmare, except that my nightmares ended eventually. I was beyond suicidal, I was beyond help, because no one offered help. I was blamed. I was a victim. I was nothing like who and what I am today.

They burned me at the stake. There is no forgiveness yet, but, I am trying. Each word written here is one word closer to forgiveness. I have forgiven myself for not being stronger, for being afraid, and for being a child. I have not forgiven them for their cruelty. I have not forgiven them for demanding kindness when they felt pain, for denying me my right to be a person. I am trying. If I can forgive them, then perhaps someday I can forgive my biological father.

I might never forgive them.

They burned me at the stake.

Medicalization of Humanity

I have spent my life being a patient. Most people do to an extent but a lot of non disabled people do not wind up in a doctor’s office monthly. Those that do are usually seeing a psychologist. I have been talking to my biological mother again, because she needs my help. In exchange for helping her with training her dog to be a Service Dog I asked for payment in therapy. Not literally, but, figuratively.

I think she was startled but, I am wounded emotionally. I am so angry at her, and I need to forgive her. I can’t do that without working out some of the issues and I want a mother. Some of the things that have angered me include over medicalization of my emotions. Being human has never been an option for me, despite the obvious inability to escape it.

From reading my blog you know already I have a history of abuse and chronic illness. You might have also noted an undercurrent of loathing for labels, though I am working to embrace mine. Some labels cannot be avoided. After becoming an adult I went and paid for a psychoanalyst to evaluate me. I wanted to know if, without my mother’s influencing them with her fears, I was really as insane as everyone told me.

I did this because I didn’t feel crazy. I felt depressed, but, not crazy. I did not think I was becoming a sociopath like my father. I put effort into fighting that, and won. What I did, to help prevent influence in this doctor’s office by my past was withhold information. It took several calls to find a doctor willing to work with zero patient history, but, the woman who did the test with me understood my need to find the truth.

In my childhood I was diagnosed with Borderline Personality Disorder, Bipolar, Depression, and a slew of other labels that never quite fit, including Multiple Personality Disorder. Most of these get renamed with each DSM, and with number V coming out (I don’t know my roman numerals and I am not looking up the translation, it is either four or five), I am again feeling pensive.

Part of it is the sudden ability to cry. For the first 23 and a half years of my life I could not cry without bleeding. I cannot seem to suppress my tears anymore. Again, some of this is because of effort though the effort sends me receding into myself at times. With that test, I was freed from the stigma of most of the labels I had received.

Those that stuck are depression, lower case because it is something that is perfectly natural considering my family history and personal history. It also is not something I will ever treat with pills again. Another is obsessive compulsive disorder. I need the world to be in order, and this comes from my past. Anything out of place could cause a beating. My disability has helped me with this. I cannot order the world, and I am healing because of it. I had no way of cleaning my room for years, it was horrible.

The test also helped hint at something else, I am Autistic. I have Aspergers. I haven’t told many people, just my Person and my mother. Now the world knows. I feared the Stigma of Autism. My best friend (All my friends are my best friends) Maxis is autistic and helped me to realize that my Autism just lets me be me. It has made things more difficult in some ways but I have adapted, and am extremely high functioning and no one can tell. My labels are not readily visible.

I also am an adult with Attention Deficit Disorder. I adapted as a child, after taking Ritalin. The Ritalin made what turns out to be a side effect of the autism, my extreme sound sensitivity, worse. I couldn’t stop screaming, all my pain was there, and of course I turned out to be allergic to it. My mother pulled me off of the drug despite my institutionalization. I recollect hearing her voice through a closed door, I was curled up in a corner in the Time Out room, being punished for not brushing my hair. My mother had come to visit and I had cried telling her how loud everything was, and hearing her tell the staff off for drugging me was the best sound out of all of them.

I am still sound sensitive. I can hear the sounds most people tune out. When a computer is turned on, each second I hear the scraping of the needle in the hard drive. it is deafening. I have five running right now, and have adapted to the cacophony of my world by adding more stimulus. I have yet to find true silence, even with a power outage but that is the best peace ever. Still, having mental distractions helps me cope.

I find it a bit ironic that being nearly deaf in one ear has not decreased my ability to be overstimulated by sound. Overloading is so far what works best. The great part about hearing everything is hearing my cats purr, when no one else can. Sometimes that sound is the best in the world. My nerves have always been just as sensitive, my skin feels too much and that can cause even the touch of William’s paw to have me crying out.

Still, in my life more damage has been done by mental health practitioners. I have been supposed to find a therapist for almost a year. First, I used the excuse of insurance, which did not cover without a copay. Then when that was fixed, I used the excuse of truth. I do not want a Therapist. I really hate them, and do not trust them. I am aware of my need now, to find one. I need someone to work with, so that I can help myself and my mother.

I remember my first Therapist. Her name was Candy, and my father upon finding this out asked if my Mother was taking us to see a stripper. He thought it was funny, I thought it meant that the doctor tore up paper. Instead, she told my mother that she could change my father. She told me and my sister, we all shared the sessions, how women must learn to cook and my bruises and burns, were just the signs that I was going to be a great wife.

I never believed her. My sister did, and when I told her at night that I thought that Candy was insane, she told me that she is a doctor, so therefore I must be wrong. I kept it to myself but at the age of four I just told her things I thought she wanted to hear. My father was sent to a mental hospital after attacking a man, or something like that a year later, and my mother did not let him back in, despite Candy telling her we would all go to hell. I think the woman let her religious tenancies effect her job.

The next therapist I saw was the one who had me put on my first Antidepressant. I was almost eight, and Doctor Baca decided I was depressed. Likely he was right but he never let me address why. He wasn’t a listener but talked about how I needed to try harder in school, how I needed to bathe more, how I needed to do things to be popular. If I got a word in edgewise he used it to shame me. I had begun to develop breasts, and upon relating the nickname I had at school, because my bra broke in Phys Ed, he agreed. I was slut shamed. The Nickname is not related here as it reveals the name that I have shed, but it contained the word whore.

The list of bad therapists goes on and on. No person is perfect but even the best amid them just wanted to label me. Many tried dangerous tactics and all of them post Doctor Baca insisted on medications. I took so many pills, and many had adverse effects including causing me to gain 100lbs in a month, but, the pills were more important than the girl. Each doctor took any crying as a sign not of emotional release but of depression. If I was happy at all it was a manic, if I was angry it meant I was psychotic. I lost touch with emotion itself.

My response was to try and kill myself, though, I couldn’t figure out how and asked my mother to help. The first time wasn’t the cause of my institutionalization, though the threat was leveled. I just didn’t comprehend it. The suicidal ideation passed and yet my brain warred to follow the rules that were leveled at it. My needs were far from met, and my Autism being undiagnosed meant I had no help. I was adrift, and lost.

The worst weekend of my childhood came then. I was beaten to the point of nearly dying, and denied medical treatment. There is much more to that story but it will not be blogged about, my fear of being attacked over it is too strong. My entire life was changed at that moment however. That is the hinge of life for me. That too, is when my personality changed the first time. The direct result of head trauma. That is the weekend where the first breaks in my back were had, my Xrays showing as an adult that when I was about eight I had four vertebrae break in my back, two in my neck. They healed well enough thankfully but I was in agony, I was alone, and I knew that I should not trust anyone ever again.

I was also threatened with food. My father had decided I was fat. I wasn’t yet, I was perfectly healthy, but he decided I should stop eating. He also instructed me to cut myself, though I did not manage that one. I did manage the eating disorder. He had told me too, if I did eat he would know and would beat my mother to death. I had to protect her. She always has needed my protection. So I gave up food. It was not hard, due to the pain.

Pain is the best appetite suppressant I know of. It kills the urge to eat in me, and is the reason for many people becoming malnourished with access to food. I lied to my mother the first few days and told her I wasn’t hungry, but, then she told me my refusal to eat hurt her. If I didn’t eat she’d surely die. Catch 22. No matter my choice she would die. I decided to eat, then, I would just throw up after dinner. Then my “daddy” couldn’t kill her and she wouldn’t know so she wouldn’t die.

This worked for a while, and my stomach stopped hurting and my skin even healed from some of it’s symptoms of allergy. I was however, bulimic by the diagnostic standard. No one asked why I was bulimic at the tender age of eight. My family didn’t figure it out very quickly, but, eventually they did. I am sure I had a decline in health. My memory was very foggy, and I had begun to have bursts of rage. Perhaps this came from the head injury, the painful seizures that I had started to have, hiding everything, or the burden of the household falling to an eight year old girl. It could even be the bulimia, the overdosing of drugs by my doctors, or, all of the untreated genetic ailments.

My stepfather had begun molesting my older sister, he was too afraid of me to hurt me, so I shaved my head. We discovered then how misshapen my skull is. My skin had begun to split on my breasts, and I thought if I was a boy then I would always be safe. I was of course unaware of the stigmas that were to come, but, I thought being male would make it all better. So, I tried to cut my breasts off. I failed, and for that I am grateful now. I am not sure what the therapists told my mother about all of this, but, from my perspective no one took into account that something might be wrong physically or that the abuse took a toll.

I was taken to a hospital, dumped off, and my mind and body were invaded. I do not know why these doctors thought a physical examination was necessary my first night there, but, they gave me a complete physical, including a pap smear. There was no explanation, but, I lashed out. My first night there was spent in the padded room of solitary confinement.

Diagnosis were tossed at me like darts at a board, seeing if one could fit close enough. Most of the girls there were suicidal, all of them had been molested or raped. Each of them had been battered, and all of the children were in pain. The staff were not all kind. One of the male staff would hit me, but I never said a word. He told me if I did, he’d see to it that I did not get to see my mother ever again.

My hair is also complex. Only half of it is curly, and this is all in the under hair. I had to bathe twice a day there to pass their cleanliness challenge, because of the Hidradenitis Suppertiva causing excessive sweat. I was allergic to the shampoo and cried each time I bathed. They gave me more antidepressants.

I mentioned once, how much my body hurt to the doctors there. I was quickly learning though, that all they wanted was for me to suddenly become a normal child. I wasn’t sure what that meant but noted what the children who got to go home endured. They could not yell, they could not scream, they ate every meal but not seconds, and they were nice all the time, if the adults were looking. I began to master the system. This meant no crying, so I got even better at being a machine. I let my world fall into their system of order.

I did go home, but, I couldn’t keep up the act of perfection. So, the cycle hit over and over again. I still couldn’t eat but was gaining weight. I was shamed for it. I was stuck then in either my mother’s clothes or sweat pants. Time passed and I was a teenager. My first period came on the eve of another hospitalization. I thought I was dying. The inability for people to discuss this function without clinical talk or shame had cost me knowing that this was going to happen. It didn’t help that my mother had told me all about how evil my Uncle Verne is. Verne is a rapist, a pedophile, and of course he would surely be out to get my mother’s children.

She had me stay with my grandmother while she made arrangements to have her crazy and devalued daughter locked away. My uncle called. Grandma had left me alone, despite my mother’s very valid fear that I would kill myself. I was considering it staring into her medicine cabinet when the phone rang. This was before caller ID hit that small town. I thought it was my mother. I thought maybe she had realized that the kids at school were mean, my hands hurt, and so did my stomach and I just couldn’t live like that. It was a strange voice. His voice was raspy, cold, and hearing me he sounded suddenly excited. I talked with him for a while, until I realized who he was. We didn’t trade names but when he called me by mine, I asked if he was my uncle.

There it was again, that duality, I was told by my mother that upon pain being dealt my way, I must never be rude on the phone. I was also told I must never let my uncle know where we were, who we were or to hurt me. I was terrified. Then, I felt warmth running down my legs. I remember what I said, “I am sorry Mr. Uncle Verne, I have to go now. I will tell my Grandma you called.” I hung up and went and sat in the tub crying because I was bleeding.

I thought that I was going to die, which, saved me from my suicidal thoughts. It was partly there because so often I was asked if I wanted to die. The idea wasn’t original to me, though I may have wound up having it anyway. I am not blaming the doctors, as without them I still would have died, I am merely questioning their methods. For every emotion there was a label, a drug, and a punishment.

For my fear of my period I was told I was a misogynist. I hadn’t even known what that was, but, upon being told I hate women, I thought it apt. At that time I wasn’t aware that self hatred is not the same, and the over labeling and medicalization was helping me to dehumanize. I was instead a child trying to make people love me. At this time my memories of my Sensei had been suppressed, and yet the mark of them remained, I was subconsciously seeking that same love.

The rest if my timeline, up until the Ranch, mentioned in earlier posts, is a blur, a mix of self hatred, cruelty, and a few bright moments when I went off the medication without telling people. Not all of my memories were destroyed by the meds, and the medicine did help me learn to control my flashbacks. I was so lonely however, unable to make contact with myself, isolated, and then something amazing happened. My freshman year of Highschool, I became the Valentines Princess. In my school this was on par with the popularity contests of Home Coming Queen or Princess and Prom Queen. My classmates elected me, and openly made this truth known, because of the simple fact that the most popular girl in school was pregnant and did not know who the father was. The pregnancy was not the issue, many other girls were pregnant too, it was the culture of this town. If you were not sexually active you were not acceptable. It was that she had cheated. Perhaps it was a form of slut shaming, but I was only aware of the fact that I had won. I had been chosen to represent the beauty of my class, a symbol of the perfection of love.

These memories are so crisp, as is the memory of my sudden happiness ending, realizing I had to tell my mother that I had won and needed a dress. There was no way I could take the title. I went to tell the coordinator, another student in my class and she found me first. She had already talked to the other wealthy students, and they were going to pool their allowances to buy me a dress, a trip to the salon to style my hair and they were going to have my hair done. They also were going to give me a free ticket to the Dance. At this point, my mother had left my Step Father, and money was so tight we could barely afford food. When I told her however, I expected anger and was given joy. She was happy for me.

We went through the rituals of beauty, I even shaved my legs, ignoring the pain that caused. We had my hair done, and, when I walked out with my Tiara in place, taking the arm of the boy I thought was the most handsome in school, ignoring his displeasure at being my escort, I stared out at the people in my school and was given a moment of joy. No one booed. I had expected that, after all every day I was on the outside. I kept the roses the principle bought each of the Valentines Court members for years, only shedding them when I no longer needed the reminder of my value, for I am worth more than roses and a popularity contest.

When I told my therapist about the feelings I had had, he told me I was becoming a narcissist. He berated me for every single feeling, and I went back on the meds. I was so certain he was right, and that my mother was too. The messages given to me during these visits to the psychologist were all so negative. Tomorrow I am calling and making appointments again. I am an adult now, perhaps, this will free me from some of the pain I feel. Perhaps I will find one who is willing to work with me on how to emotionally survive my physical pain. If I am offered medication my first visit, I will not return to that doctor.

I am still fighting for my humanity. I grew up meeting and failing expectations, never making my own. I am an adult now, and my own expectations are met. Yet when I cry, even at the end of a sad movie, I question, evaluate, and judge myself. My crying is the hardest, it is the most difficult for me to allow. I have come to embrace Happiness, anger, jealousy, but sorrow is the biggest terror. Even in the media we face the words of stigma. Pharmaceutical companies, doctors ignoring the validity of emotion, deranged fathers, and depressed mothers (Feel free to rearrange, relabel, or adjust these two for your own needs) all collude against humanity.

This is not the only way that people are dehumanized just one example of it. There is something in the air, something in the water, or perhaps just a tradition diluted with time that has caused dehumanization to become far too common. Civil Rights are torn away from people based on their supposed inhumanity, the disabled are not granted access because we surely aren’t human. I tried so very hard to shed my humanity, yet without it I cannot sing, I cannot write, and I cannot breathe.

I am afraid of psychologists. What if they refuse to not try and force me to take drugs? What if it turns out in the future I was wrong and needed the antidepressants? The consequences of these choices are the real fear. I fear too, that my next psychologist will refuse to see my pain as real. The wheelchair is not enough for some people, or it is too much. I will be writing a how to article on shopping for psychologists, after I am done, detailing my method. I will share it here.

Why I did not turn to “God”

I am too tired to sleep. Instead I decided to read some disabled blogs. I am not a Christian. I rejected Christianity a long time ago. I do not reject Christians but I do not share your beliefs. My own religious choices come from exploration, to seek what is right for me. Part of this comes from the fact that the God of the Christians was used as a tool to facilitate the abuses I suffered. “God hates you. You must die to please him.” “God hates women who have short hair, and that child has short hair. She must have the devil beaten out of her.”

Two out of thousands of excuses that their God fearin folk used to beat a child. They used god as a reason for why I did not deserve to eat. A reason for my mother to stay with a man who wanted her dead. Before I was aware of my disabilities, I heard often how a disabled person found god. I keep a Jesus figure in my couch for occassions to “find” him and make the conversation stop, with a good laugh.

I do not want to offend anyone, but, I am offended by disabled people always being portrayed as God Fearing White Men. The man who saved me yesterday was Black. I felt comforted by his presence, as if two strong arms held me. Does this make god a black man? Some say feelings of security all come from god.

I am well aware that this conversation is a bit controversial. I respect many people of many religions. I read a blog by Wheelie Catholic with great regularity. I just ignore her posts that are just about god if I am feeling uppity. I am leaving god as a lower case because I am a polytheist. I believe in multiple dieties. Not every person comprehends the notion of one omnipotent and infallible being.

I cannot believe in one god. Instead I believe all religions come from a root need. I need something to put my faith in. I still pray, just to the gods that my brain can fathom. Religion begins with one person, be they a prophet (IE Muhammed, Jesus, Buddha) or a Seer. They see this unadulterated light, they feel guidance from it, and explain what they see. People see the light through them.

Eventually Prophet Seer dies. How do the people still reach the light? They take paint to the window that they looked through, trying to outline what they remember, and what they themselves can see. Over time, through generations, people might add things that are not there. They might try and demonize people who do not see what is there from the same perspective. They might forget some important lessons.

This perspective has let me help people who ARE Christians. I respect your religious choices, and expect the same respect. I may not always have my expectations met, and I am a known idealist, but I will not discriminate. I am reminded with this line of thought about a woman who discussed her life with me.

She was healthy, not disabled, but depressed. She was going to commit suicide and had come to a bookstore to find how to books as well as books on how to heal after someone you love commits suicide to leave with her body for her children. She had sent her disabled child to visit family, so that she would not be the one to find her. She felt drawn to me, she could see me in the shoes of her daughter, productively assisting someone else.

We talked for several hours about her life, and she wanted to commit suicide because she felt helpless. She thought if she died, her daughter could obtain the insurance money and pay for her medical treatment. I debated with her on the invalidity of this thinking, I shared access to resources, and she left with books on how to train cats. She is alive, right now. Her daughter did not lose her caregiver or her mother.

Isn’t suicide verboten to Christians? Don’t you go to hell if you commit suicide?

As if this wasn’t controversial enough, now I am going to bring up Eugenics and Hitler. I am against human euthanasia. I never thought about it, before Teri Chaivo. I was too busy struggling in my own blind existance and praying I could survive. When I heard about how she died I wanted to scream. I wasn’t positive that no one was home in her mind. I felt a sick certainty in my gut, as I had felt the snap of bone in my back, that she had felt each and every agonizing moment.

I began to debate in my mind about the value of euthanasia. It is wrong. I do not need more pressure on me to just die. My own nephew asked me why I am not dead. I explained to him that just because I hurt, doesn’t mean I do not feel joy and that I want to live. I have a lot to laugh about. I have a lot to live for.

I have considered suicide rather recently, due to the pressures of environment. I took away the abuser, and I haven’t thought about death since. I am still fighting to get my pain meds. I am facing another two month stretch without pain medication and this is frightening. I don’t want someone to decide that because I am aware of my rights and will fight tooth and nail for my civil liberties to be respected, that I should die. I do not want people to be put to death or denied treatment because they lack insurance. I was denied proper medical care and it disabled me further, doctors ignoring broken bones left me in permanent agony.

If you help someone die, add pressure to their lives, or even neglect them to the point that they must starve, you are a murderer. Our government is full of murderers in my eyes. When I think on this, I question all of these prolifers. Why is it that they can fight for an unborn baby who may or may not live, but they fight FOR the right to kill me? Most people who contemplate suicide have a reason they feel despondent. Usually there are ways to remedy this.

There is a woman out there whose name I do not remember, I heard about her hunger strike, to fight against improper care. First and foremost, the media victim blamed her, soft peddling the facts. Secondly, problematic patients are often given substandard care. No extra care is given for those with cognitive challenges. Often, when someone reacts with violence they are triggered.

This all forgiving God I hear so much about, the one who disables people for their own good, the one who lets children get beaten in his name. I cannot fathom his reality. The faith of millions of people, lead by a bigot (that would be the Pope), has been open to question. I am not so blind as to presume all Catholics agree with the Pope or even respect him. I am aware that the world is shifting, truths are coming out about the history of the Catholic church. Truths are coming out everywhere about reality. We are on the cusp of great change.

I do not feel hope when someone tells me how they felt god. I have felt my gods just as equally. I do not want to be told I have to be religious or even faithful now that I am disabled, but I do want people to question the Euthanasia debate from a standpoint of their personal religion, as well as a social one. History shows the danger of Eugenics.

Hitler was a gay disabled dark haired Jewish man. He hated himself so much that he tried to eradicate all disabled, gay, non blonde persons, many of whom were Jews. Eugenics were his tool. Washington and Oregon both allow for human euthanasia, and I can tell you now, other states may follow. Are we really going to allow for weak laws that do not require psychiatric involvement (as far as I know, I could be wrong) and for people who are “terminal” to die earlier? It may not sound bad to you, but, what does terminal mean?

I have heard it means a condition that will kill you. I have heard it is an uncurable condition. Does this make spinal cord injuries TERMINAL? Who defines terminal? I often disagree with medical professionals assessments of the condition the disabled live in. I lived in a very dangerous environment, and many people remain blissfully unaware that a respected person is actually an abuser. Many people ignore what to me is obvious. What if a person who hates the disabled comes along and determines that terminal means you are not white, have any physical ailment including Athsma, and must be redheaded? The end of the world comes.

One arguement for Euthanasia is that people are suffering. If someone is terminal, (definition meaning six months to live) they will die. Not true. My aunt has lived with cancer for over 25 years. Before I was born she was told she would not make it to the end of the week. She is still here, she is healthier than many people I know and she IS terminal. She will die from cancer eventually.

Arguements for Euthanasia also imply that the able bodied should have the right to tell me how I feel. You may look at me and see a woman shaking from pain, in a wheelchair who must surely hate life. I feel utter peace. Often, I find my internal balance can over ride the burning pain in my body. When I gave my speech today, I felt energized, I felt alive, and I did not feel like a disabled person. I felt like ME.

Euthanasia is bad. Some people may want to die, but, should they? Euthanasia devalues life itself. Do you think you should be put to death for your challenges? Do you think that if you break your back you will want to die? You might, but, you will over come the stupidity of people who ignore your rights. Euthanasia is prevalent with animals too. We kill thousands of animals, and people protest this. It still happens but there are some against it. Let’s not risk shelters full of rejected humans being lead to the slaughter. Can anyone say Soylent Green?

Just Die Already

Tonight while shopping for clothing at the Thrift Store I had two experiences, one uplifting the other utterly depressing. Lets start with the depressing one, that way we can end our time together on a happy note. I was told to just die.

I was struggling to check the size of this really sexy green dress, alas it was too small or I would own said sexy green dress. I asked for help from the employee nearest me and while she was great, the hispanic man sitting on a couch chewing his cud looked up and said, “You can’t do it yourself? Just give up and die.” He said this without blinking and just resumed staring off into space. The poor employee fled, she wasn’t sure how to handle this and likely could tell I was about to go KABOOM. Few things make me want to yell, but being devalued as a person who should just die? I had to ask why.

“Why would you say that?”
“Life ain’t worth living if you can’t walk. You have to be sad, so just give in and die.”
I ranted, in the store, and half expected my significant other to come and ask why I was so pissed. I did not yell, or he would have. I haven’t told him yet either. I want to make sure the man is gone so he doesn’t get beaten down by my man.

How do you respond when someone devalues you to the point of declaring that you should be dead? I get angry. I told him this. My legs may fail, but, I have the energy to shop, sing, and actually contribute to society because of my wheelchair. I am happy, I have great sex, and every reason to live that he does, maybe more. I managed to not cuss, trying to remind myself I have to set an example.

I also asked this man if he had forgotten about Hitler or just wanted to sound like his best friend. I am not stupid, I am not weak. I am full of fire and the spice of life. I am a person. I have every right to live, just as the young man who followed me around that store with Downs Syndrome does. I asked the man too, why he was sitting on the couch wasting aisle space, since I might need to roll past him eventually. “My feet are tired.” That was when I smiled coldly, and snapped out, “Mine aren’t. I think I am going to go and look at shoes, since mine won’t get worn out. Sorry your feet are tired and you want to die, but I can go eight miles per hour on this thing, I can go back to the future.” I went then and found my caregiver.

Could I have handled that better? Probably. I have issues with being told to just die. My father spent my entire childhood making sure I thought death was the easy way out. I am also feeling a bit depressed due to the acceptance stages of new disability and a side effect of wanting to confront my mother, but not being able to do so. I am aware eventually she will read my blog, but I plan to talk to her before I give her the URL.

Some of you may comment that the disabled having nothing to do with Hitler. Sorry, but it wasn’t just the Jews who were killed. Disabled people, persons who were not just white but of mixed race. Disabled people, persons with even manic depression, and sometimes someone who pissed the Reich off were all labelled. One of the many labels I would’ve worn in the concentration camp was Blod or German for stupid. A black square with white letters. I never will forget, neither should you. Yes, genocide is horrible, but, trying to eradicate disability or assuming that all disabled people are second class citizens? This is just as horrid. I am afraid of the future, I am afraid that assisted suicide will become legal, and that more pressure will be put on the disabled.

This happened after my uplifting moment, but I am excited about that. I was in another store, hanging on tightly to this high fashion top that was going to run me four dollars. It’s in style right now, my size, four dollars, and not puce! I had to have it. My rental scooter started bucking like a Bronco. I lost total control over it and almost ran through a window. A man in a wheelchair blocked my exit point with his body, thankfully neither of us was hurt. I looked up and I recognized him from the Veteran’s Shelter I used to volunteer at. This shelter is just for the disabled veteran. He has grown in health and was looking so happy. He did not recognize me. I thanked him for his service to our country and for saving me.

He expressed gratitude at my understanding the sacrifice. He became a para when he took a bullet in his spine for this country. He expressed his frustration at seeing any other person, especially a young person in a chair. We talked, and I told him I sacrificed my spine for children. We communed in the honor of life itself. He told me it was good to see someone who wasn’t down about their chair. He’s in a nursing home because he cannot care for himself and although home health care would likely be enough, Medicare denied him this. We exchanged information, and I hope to help him go home again. He fought so hard before for his home. I think he recognized my name, but, that does not matter. What matters is that he exuded strength, saftey, and honor.

He honored me by risking pain to protect me. I am grateful for that, how can I begrudge someone a sacrifice? I focused on this man when I wanted to lose my temper with the second fellow. I know better than to yell, but, it would have felt good. There are so many times when I am told I am a second class citizen. I am first class. My significant other tells me he loves me because I am a Lady, not just a woman, but a Lady of the highest degree. He reminds me why I must maintain my dignity, and he does not see it as shameful for me to cry.

I am going to live a long time. I must, because I have so much to offer this world. Bicycles are much like wheelchairs too. They have two wheels, they ambulate for you, leading you towards a destination. The only difference is wheelchairs come inside and are differently shaped. You say our tires are dirty, I say so are your shoes. You say we make the aisles wide, an inconvenience for you who wants to over stuff your shop. I say, aesthetics. You say I am a burden to society because I am currently not working. I say society and it’s bigotry is a burden to me. I should not be assaulted when I go out because of my wheelchair.

Today is also the first time in a long time I looked at clothing that will show off my magnificent bosom. I have more than ample cleavage, and, I am done hiding every bit of it just to comfort people who expect every woman to be shaped like a hanger.

I am done with self slut shaming, and I am done with conforming to stereotypical fatty clothing. I am fat, but, I am also gorgeous. How can a person who is happy be anything else?

Do you deserve to live? I agree, you definitely do. Lets live on together in our high fashion and accessible world.

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