Will I… (Trigger Warning)

 

I have been trying to hold back my level of suffering from the world. The various support groups for autism, Ehlers Danlos Syndrome, PTSD… every single one this is a reoccuring theme. I know why. Not only is being in this level of pain dangerous but it makes you vulnerable and often this is when people abandon you, attack you, or they cannot comprehend what you are trying to tell them. I do not as a rule cry when I feel so much pain but I silently sit and try to find the cause to fix it or I just learn that this is my new life. I must always be prepared for the permanence of my agony. There are people who are lucky enough that this is not the case.  I cannot stop hiding this, even when I try sometimes. There is the element of fear. If everyone knows that I can barely breathe for pain, then even the predators know. (Oh hello predators. Yes I will tazer you even when I hurt.)

This song is from rent, it is called Will I… thus the title of the post. I could die from the on going issues I have at any time. My heart could fall to pieces, a literal broken heart. I could have a heart attack from my stress and high cholesterol. I am bleeding internally somewhere, I could run out of blood. I could kill myself. That is why I am writing this post. You see, that is the whisper in the depths of what might be my soul. If I die it is over. I do not live out of some doubt about an afterlife. I do wonder but that is not a consideration in any of my choices. I do not stay alive for other people or the cats. I love many people deeply, so deeply there is an ache of joy. I guess a mental pressure sore from all the goodness. I stay alive because I want to.

I am afraid of dying and missing people. I am afraid of lingering in pain without dignity. I am terrified of being tormented by doctors as Ihave been lately. The nightmare is not the diseases or the pain. In fact some of that is better. I officially no longer am diagnosed with epilepsy but still have a seizure disorder of some sort. The some sort is not defined by science. Yet NOT having epilepsy is a miraculous thing.  It is a wonder to me.

I spend a lot of time advocating, and passionately burning for the world. Now I am just burning. The pain is in every nerve, even though some of them should not be communicating with the brain. My blood pressure is up, my heart is racing, and this is omnipresent. I have had to fight around government shut downs for my needs, but I did this. Yet all I want is to have someone hold me. Something no one can do at all. Maybe ever again. I just want to be held in a soft space of beautiful harmonics without actual sensory input. This dark space has no reality. I often find this song in the undercurrent of my psyche because it holds most of those things. Yet I do not have to wonder. No, my life will never get better. I will always have some agonizing wrong. Yes people care. I have never known how much people care, I think I do then it seems to grow. Maybe I grow. Maybe not.

I am terrified. I feel the race of time, not just because bleeding internally is very bad but I need this resolved for my mental health before november. My PTSD is at a peak height and I am not sure what I will be enduring medically but I know I will survive it if I can. Will I be allowed dignity is the true question. I am afraid to die and leave people I love, this is new to me. I never cared before. I always lived for things like spite, revenge. My revenge has been to build my life up into something I was told I could never have. I look around this space I live in and every corner has a marker of love. Every doll I own someone else gifted me, the Gothmas tree that needs its decorations and makes Sylvani happy, the pile of scarves I know will be useful and necessary that are clean, the myriad of tiny touches. My life has been a life of grief and loss. Now that I have things I want to hold on to I am afraid I cannot survive this. It is not a lack of will to live, it is a lack of trust in my doctors. I have no faith in even the best of them. Why should I with the ineptitude I have fought against for so long?

So I am left to wonder. Yes, I am in pain. No I do not know if I can survive this. I will try.

One more thing: The man who wrote Rent? He died from a condition similar to EDS called Marfan. That runs in my family too but I lack the features that mark it. That is LUCKY for me. I sometimes wonder if the pain he felt and held too close contributed to his dying, if that is why Rent hits the notes I sometimes NEED. Just a little tidbit for people who may not have known.  I do not reach for the anthems of survival that are broad and direct, they ring hollow. “I will survive” does not match my spirit. Even when that is indeed the attitude that I display as I emulate the bronco and buck for my life.

 

I am jagged glass

shattered now

pick me up

fear the cuts

I do not intend

Yet I broke

can you lift me up?

Will you laeve

I am broken

Never repaired

yet I was beautiful

I am beautiful

Shattered glass

so many sharp edges

yet it is true

I am beautiful

Well Practiced Survival and the Art of Happiness (Potential PTSD Trigger Warning)

I hit a speed bump tonight. My brain splatted as I hit the mental pavement and I am sitting here stuck. The speed bump? Happiness. I am happy so it makes me sad. I keep thinking about why that is and I suspect it has something to do with the tenets of survival. I have well practiced fear, anger, sorrow but I have almost no experience with happiness. Happy was the fleeting moment that escaped so quickly and I held on to for years. I can name my happiest moments and its a very limited number. 1. Comic book convention last June, 2. Sprite and the first time I had a flashback and she was there, 3. Gothmas with M, 4. My first time being published.

That last one I had to struggle to pull through the mists of time and survival. I was thinking too about the domestic violence cycle and how cut off people are. I grew up without friends. Even now my friendships are limited. Some of that is the autism factor, I just struggle there but a lot of it is because I trust very few people. How can I trust you? You might be out to get me. I am working on this alone but I do not want to. I never wanted to do it all alone. I never wanted to have to figure out how to beat domestic violence by myself. It should not be about clawing my way up ever. Yet it has been.

I have been trying to find a therapist for five years. Since I escaped my exhusband. I thought I might not make it. Maybe I should settle for one of the quacks who try to lure me in with promises of touching me while praying but I do not think so. I don’t think my wanting to mock this person for being what I perceive as a predator on the vulnerable with their unproven techniques and faith healing is going to be a valuable moment in time. I still survived him alone. It was not even over then. It is just over. Does that make me now really a survivor?

Yes and No. I was a survivor all along but in a way not being afraid has opened up all of these memories and painful things. Its over so now I can process. I am thinking on things from when I was five, that I never considered before. My brain is just now allowing itself to sort through nearly thirty years of stuff. Not all of it is bad. Not all of it is abuse. Not all of it matters. Yet it is there burbling around. If I think of my friends instead of them I end up with my first day in Kindergarten at the age of four, walking in and being called weird before I said a word.

I think on the isolation that goes with abuse and I want to try new things to see if its actually my way or if it is a side effect. I grew up surviving and being too out cast and bullied for friends. Am I so alone now because I just never learned how or is it because I am afraid of my own friends? I don’t know. I do not feel fear when Ithink of each individual. I feel happy. Yet I worry.

I talked a lotof this out with a couple of my friends. I have had friends for seven years now, but it still amazes me when I can say that. One suggested a support group. I looked some time ago, I believe last year, but figured maybe I should. She went to bed and I began to google. I found many local support groups. Tons for folks with cancer, tons for things I do not understand such as video games, and yet for all of the domestic violence groups listed with the local news papers, online in google, and even with the various agencies that help you get out if you are not disabled the only groups are for the ABUSERS. Oh there was one for single parents. Not a one for women. There is one for soldiers with PTSD but I am not a soldier. There is one for everyone but me. I still wrote some down and may call but I already feel that is an intrusion. I do not fit by not having a child, by being a woman, by not being with my abuser now.

I am not at a point where I can just remedy this by going “Okay we meet here, come on ladies and lets survive more.” That is not what I can do right now. I did it before for another need. When I first was disabled I helped with creating a chronic disease support group. Then retreated from it because I was not ready. I will not make that mistake again. So I am left hanging between faith healers and the disabling abusers getting help and my own independence. It cannot just be a side effect of abuse or I would not have survived being alone but I am wondering why I am supposed to do this part by myself too.

I do not want to. I want the experience of people who do not get frightened by happiness. Or people who do but can tell me what the difference between estatic, joy and elation is. My brain cannot stop pressing on the happiness to see what is wrong with it. There is no room in my head for joy. I want to change that but I am lost out at sea without a compass or the north star. There are no maps. It is just silence and placid and gentle waves. I do not know how to be gentle. I do not know how to let go of the anger. I am still angry at my abusers but it is smaller every day. They are dead. I out lived them and can focus on doing more than just clawing through every day.

I am also very tired. I do not want to spend the rest of my life fighting alone to figure out if its okay to smile all the time. My face is sore. Its not the usual sore of the jaw dislocations Its my mouth. From smiling. I keep doing so for no reason. I keep laughing more and more. This is not just a side effect of the surviving either. This happiness started growing long before my exhusband died.  The sensations when I stop thinking or just feel are not the same. It is no longer a hard sandpaper or stabbing pain. It is not a pain at all. Nor is it really emptiness. It is soft and quiet there. The passions are still burning in me but they do not scream to be heard over my sorrow. It is simply quiet, and I have never had that either.

I never expected the thing that would make me cave in on asking for help with my PTSD and other struggles would be happiness. I suspected someday I might have a challenge bigger than I could face alone. This is not even true. It is just that I know I do not have to do it by myself and I do not want to.

I am a ship at sea, no port to call home. The current pulls me, so I go to roam. I am a ship at sea, the waves a song to me. Far from even the open road. The winds rise and my ship sails on, to new lands will I go? Tomorrow I may find land ahoy but tonight I am just adrift in the sea.

Archeology of Truth (Trigger Warning)

Tomorrow is Thanksgiving. THAT DAY. I have had the entire month until today with barely a tickle of my usual PTSD. I’ve had blatant fun. I am a bit fogged and distracted as I write this, drowning my sorrows in mental crap such as bad disney movies, not that there are good ones, kitty snugs, pizza, and talking to people important to me who aren’t traitorous liars. There. I said it.

Once upon a time in 1993, and well before, there was a girl who was lonely. She made a friend who was much like her. This friend was an orphan who lived with her grandmother, and despite being blatantly spoiled was one of the kindest people that the lonely girl had ever met. They played together. The rich girl even bought toys for the lonely girl, but they learned rapidly to leave them with the Rich Girl.

One day, the Rich Girl moved without getting to say goodbye. There were small things left over but as all the things that they had had together except a Best friend’s charm, a few of the prototypes of the miniature food I left behind and some clay as well as a tin of the uncured creations. This clay stays good forever unless you bake it.

Lonely girl was broken like the clay, left in pieces. Lonely girl was told that she had made up Rich Girl, and the proofs were lost.

 

Today, Lonely girl found the small tin of the creations. The proof. In it were the little charm, a small barbie toy, and a few other things. Too was the proof that Dolls belong in her life via some of the small things that she kept from Rose, another friend now lost to her. Lonely Girl is now Amazing Adult, but that does not mean she didn’t cry.

Infact, the clay that still remained anything was cured, and now there are artifacts of Lonely girl’s innocence before the abuse and rape broke her and nearly destroyed her. The cracks that remain of that pain and what was before do not make the entire person of Amazing Adult, but instead remind her of why she is glad to be an adult.

 

Yet still, she cries for the loss of her friend and the sweet things that cannot be published in a public forum for safety that were recollected.

 

Also, I have some Barbie Dream house stuff to paint black and dead all over. I am okay, I am just foggy and hurt.

mutli colored clay creations, mostly roses, from my childhood.

The Artifacts

A Year After Survival (Trigger Warning)

It was a year ago that I was sitting in that place, full of filth and disease. It was a year ago that Anthrax threatened my flesh and my mind was as damaged. It has been a year since in desperation I misdialed the number that lead me to finding my current apartment where I met my case manager who shares my name, where I escaped not just the first but the second bad carer, and where I began to heal. It has been a year.

It has been a year of utter devastation in some other ways. It has been a year of great loss. Death has haunted me my entire life from being forced to help my father kill on to the loss of every pet Grandma ever took in to shelter for us or my mother helped rehome, the death of my best friend, the death of Nymph, and the deaths that I felt uncomfortable mentioning. That would be the deaths of allies in advocacy, some of my heroes, but death has been here. In some moments I feel death is mocking me for living by taking everything that is important to me. I think that’s grief. I know it isn’t the actual facts as death is merely a part of life but my feelings do make it ache.

It has been a year of distance. I have started to step away from people that would perpetuate the year of Torture, people that do not understand this is not normal or healthy. Or family that does not respect that I damned well have a right to live in peace without being treated like a monstrosity for not doing things their way.

It has been a year of tears. I have cried more in the last year than I have in most of my life, yet this is a wonderful thing. Though it means I am wounded and grieving, when have I not been? I cannot remember any moments without pain until the last few years of my life and this year has held a majority of good.

It has been a year where I have admitted I am in love with someone. I have been for a very long time, albiet against my will. I love myself. I love Sprite. I love Rose. Still. Death doesn’t cancel out love. I adored and loved my little Nymph friend. I love M my friend. I love. I love. I love.

It has been a year of hope. I started to dream again, not the literal way but the hopes and dreams of a life beyond struggling to make ends meet, a life beyond this desolate place where I have never been able to leave. I hate New Mexico, and I always have. it has been a year of great achievements. Partly because I am still here and kicking.

My 26th Birthday is approaching and I am going to have people over to celebrate. I feel strong enough. I feel safe enough. I still want to flee this place. Yes it has been a very hard year. What year isn’t going to be hard? I have a laundry list of illnesses and disabilities, I have a mind that just won’t shut up, and I honestly cannot imagine life without a challenge. I truly think it would be boring.

This year I have learned some things about myself…

1. I have a very interesting life. More so than many people have. My life could be a great work of fiction, it would make a great movie series because each year holds enough action to make Harry Potter wish he had my level of danger, daring, and doing. I would still not wish this life on anyone but I also wouldn’t change it. My life has never been boring. I cannot say I haven’t been bored, but it’s been a very long time and that’s why I stopped enjoying school that first year.

2. Love. I has it. (Imagine a lolcat saying that if you would please.) I have always been capable of great love, like all my emotions when I love someone animal or human it is with all of me. There is only a set of extremes inside of me, so my love is extreme and comes with a side package of loyalty and trust. You can of course get rid of parts of this but I will always love you once I did before. I love my father. The evil bastard. I am still glad he is dead. I love my mother. The pathetic damsel in self imposed constant distress. I am still not going to invite her in, as that’s the rule with vampires of all varities. I don’t love my grandmother. I never have. She has always been a caricature of torment to me, even when torment was normal and acceptable in my world of Hitler fanatic parents and abuse. She’s always been worse than my father. I will sadly always love my exhusband. The thing is, I will love who he appeared t be not who he is. I will love the love of my life who knows who they are. There are no caveats there. I will love them and there is nothing anyone can do to stop that, even myself. I did try… I will love Sprite forever. I find the idea that she is my furry wife or soulmate, the wife thing starting as a joke about the supposed women’s duties which she does. She feeds me, clothes me, holds me and satisfies most of my needs but not the carnal ones is accurate. I glanced at her just now sitting in my new wingback chair and she looks so sad right now, and we both are because… I will always love Nymph. Even though she is gone and even though I had to let her die, I will always love her. I will probably always love the next companion Sprite gets. That happens sometime this month.

Yes, a year of love. I will always love myself. I didn’t used to. Even through the years of survival and struggle, even being “better” than the text books tell you someone with my level of PTSD, disabling, even with Autism, even with taught body hatred (fat, not blond, not able enough, just not good enough for anyone (Thanks Mom!)). Yes, Even then I never quite got the hang of looking at myself and seeing a person of value. I came close, a few years ago I started to get there most days. For the majority of this year I have loved myself. When puking from pain and or illness? Check. When unable to shower for two weeks because it hurt too much so I ended up wanting to claw my skin off to make myself clean? Check, that’s why I didn’t let myself lose my flesh to my fingers. Even when I felt it was my fault irrationally and that somehow I deserved being penned in a room and starved and raped? Yep. I still felt beautiful and at peace. That one really threw me for a loop. I haven’t felt that the abuse is my fault for most of the time since this started. The nifty side effect is, I don’t see ugly people anymore. The majority of people outside my door or online or people who aren’t movie stars are all stunning to me. Movie stars hate themselves usually, they abuse themselves and that does uglify them to me. Self hate isn’t pretty.

I love.

This has been a year of food. On my birthday I am going to make (with my carer) a food I haven’t let myself have for three years. The last time I ate it was when my ex was a fiancee. Penne Rosa. This decadent dish is my favorite. It pwns lasagne. I didn’t even notice I had deprived myself of it. I did so out of anger with myself, so I must forgive and eat the deliciousness. It’s expensive to make and very rich food. It’s something I learned about when I was a chef. Yet despite depriving myself of Penne Rosa without acknowledging it subconsciously I have eaten very well this year. This last year has the advent of Meat Cake into my life, the flavor is very rich, it’s not salty but it isn’t plain. It’s meat cakey. It is the most delicious savory food I have had in a while. I consider pasta’s sweet. I have reclaimed the Quesadilla. Despite living on them for a year, two months ago I found they no longer make me want to puke. So snake food is a go. I have had the advent of the Dilly Bar into my life. Butterscotch or cherry please? Some of the changes are based on the local area discovering Gluten Free, so I now can have bread or pizza at my whim (and ten dollars total ingredient cost, not twenty for cardboard). I also started only eating food that tastes good. THis happened in January.

This has been a year of the evolution of appearance. I stopped hiding under horrible black hair. Black hair is great on other people, and I can pull of the sickly goth look with it but despite being Goth, looking like I am dying isn’t something that feels right. I like being on fire, not literally since we’ve been there before, but with my red hair, my fierceness showing in my eyes and rich red lipstick. I figured out that anything I wear is goth. I am a goth. I am wearing it. Still not a fan of blue though. My war against only wearing black was lost. I feel comfortable there, I feel sexy. I still do wear other colors, mostly reds and greens. Still. Despite trying to listen to what other people said my fashion identity won out. Some of the evolution is the loss of ballgown length skirts. Wheelchairs don’t like them. They like to eat them. So I must streamline my tastes. Alas. Alack. It’s a bit fun actually. I also started wearing black eyeshadow more often. I am still waiting on that corset, it apparently was lost in the mail and the company I am working with is not getting repeat business. That’s been going on for over a year now. When I get it, I still want to take those sexy photos. Unshaven lets are sexy.

This has been a year of creative goals. I haven’t been alive enough in recent years to write music, act, create, share. In the last year I have written several audio dramas, some are still in need of work. One is being produced and I have a voice acting role in it. I’ll share when that comes out and it will be free. I am composing a soundtrack for something that should air on most radio stations nationally, potentially internationally. I am writing a book on PTSD. I have had requests for a book on Autism, as I explain both in a way the Nuerotypicals understand, without them thinking (at least supposedly and this is my goal) that everyone with this label is the same. I am writing period. I am considering writing three books at once but for that my head may explode.

This has been a year of discovery. I am discovering it’s okay to not like TV. Sure, I had roommates with TV addictions and that contributed, but TV doesn’t work well with the way my brain works and that’s JUST FINE. I don’t have to be a big TV watcher. I also no longer want to write for TV, because TV and I just aren’t a match. Frankly, that’s a stress relief to admit. There is a reason that after becoming a TV/Movie critic I broke down for a while and had to quit. TV is TORTURE. I get physical pain, and I can’t see for crap so why bother? Audio dramas are more suited to me though some still fall prey to those isms that annoy me, anger me or otherwise fill me with epic disappointment… more often I find that the writers are more independent in their creation, and therefore they get a more “open” piece. The editing work I have faced with mine has been mostly grammatical errors. If there is something that I am told to change because being a wheelchair user who can kick isn’t real, I also learned I can say “I am a wheelchair user and I can kick like a donkey. I just fall over afterwards” and explain the whys, the editor accepts this and lets me know. It’s an open dialogue. Much better than the editors I had when I wrote as a kid. Then again I am an adult now, so there is a lot more respect for me instead of incredulity at my age etc etc etc.

I discovered a wheelchair that fits your needs means if you can walk a bit, you do. I am more physically active with my wheelchair than I was without it. It’s exhilarating. I am also mentally freed of unnecessary pain. I am not sure unnecessary is the right word, perhaps it is treatable pain that isn’t treated? That felt too long and needed qualifications. I have discovered that living alone is best, so even though I am in love and would marry said loved one if it was merely a matter of mind and heart that marraige won’t work unless we get a house with two kitchens and two bedrooms (well… three, Sprite needs one too). I have discovered that people get my jokes, even the bad ones. If I list all my discoveries my word count will be in the millions.

I have discovered that I like my dreams being nightmares for others. Today I dreamed I lived in a sitcom world, in fact I moved in with the family from “Family Matters” though some of them were from “The Fresh Prince of Belaire”… it was great but I was scared. I was scared that they would figure out I wasn’t belonging. I was scared that being not a TV type would get me ousted. I am not sure why my mind selected those shows, perhaps because Will Smith was a childhood crush? Perhaps because Urkle’s awkwardness made it safer? I was still scared and in my dream even wondered if my consideration of what a nightmare is, is different than others. A nightmare means you are terrified. I am not afraid of hoardes of demons but I am afraid of Uncle Phil telling me I am just not good enough. Also stairs but then, I can’t get up them.

I have discovered I dislike most comedy films, as their humor relies on othering people and as an outsider it hurts instead of humors. This of course is well known to many. I have discovered Twilight worries me for the safety of Stephanie Meyer. I suspect she is in an abusive relationship or will be, as her inner soul shows a romanticism of very dangerous things. I have discovered that when Sprite is sad she cries loudly, and I cannot. I don’t “boo hoo”. Just as when I fight physically I am quiet. It’s not ninja as some have accused me of but it is the knowledge that being loud means you get hurt more. I am trying to cry with sound now.

I have discovered that mathmatically based on the sale ads my friends in California have sent me food may be cheaper there than here. Also, the foods I can eat are more plentiful. I secretly dream of fresh strawberries that won’t rot before the week is out. I have also discovered that housing is so expensive there it is beyond my ability to actually comprehend it. There is a literal disconnect in my mind.

In this last year, I have embraced my dreams. I have begun to not fight them, but to let them flow. I learned at a young age to control my dreams, and I wish I had not despite it being fascinating to be aware I am dreaming. I wish I had known I sleep better if I let myself dream about stabbing someone to death. The person is always evil, and I am always saving the defenseless. It is not murder but romanticised heroism. It still scares me, and I wonder what others dream about that they feel is wrong. I have had more sex dreams too. I no longer interrupt those but ride the passions out to see where they go. Usually? Orgasms. It has been a year of sleep. I still face insomnia but I am less tired, less angry, less cranky, and more able to face the world when I sleep and dream.

It has been a year of thought. I have not stopped thinking in my dreams or awakeness for over a year. I can usually sleep through it but as I wrote about before, sometimes it is so bad I can’t sleep. I have always been this way but I no longer tell myself it means I am crazy. Well, I am but I think it’s a good thing. Non crazy people tend to be very dangerous and terrifying.

It has been a year…

So what will this next year hold for me? Will I die before my next birthday (27)? Every year a doctor tells me I will… so far they’ve been very wrong. Will I go a whole year without someone trying to hurt me? I really hope so. Will I write seventeen novels and leave poverty behind and build a castle outside of LA with two kitchens and a cat kitchen? Probably not. The novels? Okay maybe one or two… The Castle? Give me a few years.

Will I start my band? Yes! We’re up to two other musicians now, which is real progress. Will I make my CD? Yes! Will I keep blogging? Yes! Will I get another cat and love it even though I really don’t want to and didn’t even want to get Ny because I was afraid she would die and am doubly afraid now for Sprite and future cat? Yep. Will the cat die? Probably not. Will I ever have that damned yard sale I have been trying to have for a year? Nope!

Will I survive another year? Yes. In fact, I believe in this next year I will thrive. I know for a fact I will begin making jewelry again. I already have. It’s super slow based on my limits but I will make it. I am learning to make chainmaille, and I will have a chainmaille shirt (not made by me, I want it before I am 70), I will go out after dark sometime too. I will have sex. I will buy a glass dildo. Possibly to use during sex but I may be selfish and not share that toy. I will keep going on and on.

I admit sometimes I wonder if I will even know when I am dead because I haven’t stopped. I am a clockwork humanoid in some ways, ticking on and on. Yet the rest of me is in fragments of my imagination. Sometimes I am a barbarian warrior woman, somewhere between Red Sonja and Xena. Sometimes I am just a princess, with the means to protect the people who don’t have enough and cannot fend for themselves. Sometimes I am a demonic seductress. Sometimes, I am a butterfly. Sometimes I am just myself and I am somewhere else.

When I seek out peace, I find it in my mind again. It has been a recent return to that quiet garden in my mind. Now there are new roses growing and new butterfly bushes too. It is still quiet there, this is the only place a lack of music is not a worry mentally. I have missed my secret garden, and I find though I did not tend it, I never really have. It has always tended me. It is here that my glass hearts grow and often break. It is here that my mind is a mix of vines and flowers, towering trees and hollow logs with new lychen and moss growing over them. It is here that the outside world and inside meet. This is my subconscious and it is where I often look at myself, and I wonder. This is a place where Sprite cannot follow. This is a place where I once mistook Heaven. This is a place I have not had for more than a year, and perhaps it was a memory from never.

In the last year I have unrepressed a hoarde of memories. Perhaps they are the demons I slay each night? I am aware of multiple murders by my father, both very similar. I am aware. I have acted. It is a pain, but this is the necessary pain. If I leave these memories buried they will poison me. The little girl that screamed so long is not screaming anymore. She still cries but she is now sheltered in that garden and at times she laughs and plays with the other people there. All of them are me. The orphan girl. The innocent one. I never really knew her before. I know talking of my past identities this way is also what caused people to try and force me to think I had fractured my mind and was dealing with multiple personalities. I finally understand that doctor’s diagnosis. Even my mother knew it was wrong and argued with her, which speaks volumes. Yet, I am aware that each trauma that locked a part of me away killed the previous identity.

In this last year I have been reborn. You have witnessed this birth through my writings and I am aware now that if any flower represents me it is the lotus with it’s many layers and blossoms. I am on a journey through each of the lotus layers of my life. My sensei told me that once and he said that he could not explain it to me but i would understand it one day, perhaps when I was very old but he hoped that I would do so before I was “ancient as the stones”. Remembering him, I remember why I am who I am. He did not act alone in the previous years to shape me but he set this foundation of fine stone. Without him, there would be no Kateryna Fury. There would be no person here. There would be no memories left. I would be dust and ashes long forgotten or remembered only with my mother’s hatred. There would be tear stains and bloodstains at most, no one would notice I was gone.

a hispanic woman stands naked in a black brace a severing wound goes down her throat and torso revealing an ionic column that is fractured in multiple=

It has been a year of Survival. Yes, I survived. Yes I fought harder and harder than I thought possible. I did not fight alone for the first time in my life. I did not starve. I did not hate myself. For the first time that I can remember I do not feel like Frida Kahlo’s broken column. My pillar is whole. It has been rebuilt, not replaced and not forgotten. It still has cracks, yet it is stronger than it has ever been before. I may live alone, but I am not alone.

I also know this is visible to others, though I didn’t think on it or expect that this would be so. I look alive. I no longer am carrying the burdens of forgotten crimes or crimes that i didn’t need to carry. That alone has set me free. Though I am sad at this moment, I am not shattered. My heart is reborn. I am the Lotus. I am the Warrior. I am the Writer. The pen is not mightier than my sword, but it is as double edged and I carry both.

Empathy

I feel helpless. I just got in from my date, which was fine but he revealed his misogyny over my pocket watch so there will not be another date. I then found out my friend’s son is in the hospital having emergency surgery. All I can think on right now is the fear she must feel, the sorrow, and my own emotions well up. This will likely be a very short post as I am going to try and find a way to offer my support. There is not much I can do, but I will do all I can.

Parts of me whirl with that ever present omnithought that never eases, even when I sleep. I think on how lucky he is to have a mother that doesn’t ignore his pain. I think on how odd it was that I dreamed about something similar. I think, I think, I think. I struggle to not feel. The empathy for her, for him, and for the pain has me on the edge of tears. I do not want to feel this.

I do not want to care, but at the moment this worry has dominated my thoughts and my heart. Over the last two years that I have known this family, I have been brought only joy. When it looked like I may have to flee this state to survive, they would have not just taken me in but hauled me across the country to do it. I don’t have many friends that I feel this close to. I do not want her to pain. I do not want him to suffer.

So I must let the feelings go. No one harmed him, it was an accident and that also feels out of depth. Just an accident in my reality is so rare, I think it has never happened before. Not where I could believe it. What do you do when there is no one to defend against? Who do you you shelter when there is nothing you can shelter them from?

When my family aches, I ache. When they break, my soul shatters. When they cry, I shed tears that few ever merit. When there isnothing but a prayer that can save someone, I sorrow on. I prayed. I prayed to the something. I wish I could feel that thing that religious people feel in this moment, and I hope that my friend and her son do. I understand a part of religion in this moment. It is a shield when there is nothing to grab ahold of.

I know that I will do anything she asks of me if it will truly help her family right now. I know she knows this. So I will take my empathy and I will let it live in me. I will love them and I will worry and mourn with them.

A Little Thunder (Trigger warning)

I took my nap, got up, fiddled with my new watch and checked to see if it has broken yet. Gleeful that it has kept the time for six hours straight I tuck it in my pocket, and fiddle with it’s chain. I move to the living room, the crisp sound of wheels on carpet has become a herald of my journeying. The cats await and I greet them before devouring pizza and strawberries.

Then, the explosion occurs. Everything flashes though the flash is inside my mind. I cannot see my home for thirty seconds, but I am in a silent and still image except for the explosions that come after. I cannot tell if they are thunder or fireworks. I already know this is a harbinger of my next few days, but that the moment is still relieves me.

I try to call M, but he’s not availible. I want to make sure I am still real and that my happiness is not the illusion. It works well enough but I am still facing flickers. I may not sleep tonight. There are no more explosions. I check the weather, it says all is clear. I start to eat again. I can’t eat. The food looks like blood on my hands.

I close my eyes and seek answers on how to proceed inside of myself, i consider too the idea of tomorrow. I had planned to go out.I cut things too closely to my quick if I am now hallucenating fireworks. The smell of rain has been present for days, without a drop while I was awake. Just a sprinkling while I slept. The sky has been clear and even now I can see stars. I roll over to the door, and I look outside at the dry side walk, the starry night.

The stars vanish, washed away as the sky is cleansed by rain. It comes quickly, I still see no lightening but the thunder is explosive, crack. Crack. Boom. My soul is shaken again, but reality stays with me. Instead I can smell the differences, I can see them. The cool air on my flesh heralds in reality again.

I am saved by the rain. My fear has melted down to what is normal for today, my heart stopped trying to out run a horse, and I am left to see my cats staring at the rain. Nymph has never seen rain before and is afraid. Sprite shelters her, and looks to me to see if I need sheltering. I am free. I need no shelter but I welcome it. Two soft warm bundles to remind me that, I am free.

(My keywords for this post made a poem: PTSD, Flashback, recovery, pain, rain, cat, free, smell, sky, clean, free)

Rogue Agent (Trigger Warning)

RageOMatic asked me a question on my last post that I had not been able to answer. I was trying to find the answer, and for the last week or so had thought on this daily. Tonight the answer hit me.

First here is the comment that he left:

How do I step out of the cycle on this one, Kat? If I start crying for all the abuse in the world, I’ll never stop crying again. (Ultimately, I think I don’t cry for the same reason you don’t scream…no compelling reason to stop.) How am I supposed to feel? What should I do? How do you need me, an able bodied, white male, to respond to you?

I think the most profound thing you have said to me, so far, is “I am a rogue agent in the cycle of abuse”. Abuse reshapes your soul to either be sheep or wolf, the abused or the abusee. My grandparents, my parents, my older brothers and sisters, all got the same “training” I did to avoid being harmed by being the harmer, but I stepped out of the cycle.

When I read about the pain you are in, emotional and physical, the wolf wakes up. I want to find the abusers and abuse them. You are not my only friend who carries scars on her body and soul from abuse. I want to find people, and choke them. I want to see in their eyes the look they have so frequently caused in others: the moment when one realizes no fight, no strategy, no inner strength, no god, no anything, will save one…only the whim of the abuser.

I know that’s wrong…so I push those thoughts away. Now I have to fight the sheep. the first thing the sheep mindset says is what you describe is only horrible if its true. If you are lying to get attention, then you become someone lying to get attention. That’s disturbing of course, not nearly so disturbing as the truth of what happened to you. It’s so much easier to believe a woman was only abused enough to lie about the abuse, and not so abused as to be accurately describing its toll on her. Then, the second part of the sheep mindset…well even those parts that are true aren’t that bad…because abuse makes you stronger!

And with a snap, I’ve minimalized your pain, and said you are lucky to have it. All three ways, I’m agreeing with the abuser: (1.) Abuse is a good way to motivate people. (2.) It’s the victims moral flaw and not the abuser’s. (3.) It’s good for victim anyway.

First I want to respond to this comment because this comment is so multilayered. Then I will explain how I was given the answer by M, my dear dear friend who often lights the way on my path when I am confused.

First, Abuse does not make you a sheep or a wolf but instead a victim or a predator. Often both. The Sheep and Wolf metaphor is a part of the mind playing into the lies we are told and sometimes tell ourselves to cope with abuse. It’s okay to just be a person, even if it means you are a person that has been hurt.

Stepping out of the cycle of violence is the most dangerous act a victim can make, and frankly I don’t believe that a person who has taken on the role of abuser can stop, because then they are letting go of a mispercieved “power”. This is an opinion I hope is wrong but it is based on my experiences and some of the challenges I faced when I tried to be the abuser. I did make that choice and those memories and choices are the few things in this life I actually and actively regret.

I understand wanting revenge. In fact, I will be upfront with you on this, if I ever meet my exhusband again I will kill him. If my father rises from the dead as a Zombie I am sure as hell going to take him out. If my Grandmother ever speaks to me again she will meet the wall of silence that I have decided is all she deserves from me. For her that is a fate worse than death. Revenge can be a great motivator for changing patterns. It can be the carrot, if I am alive, living well, this torments them.

Revenge can be a reason to not die. It has it’s purpose but revenge cannot be the only reason you live or you start to poison yourself. Eventually you have to find something past it. In fact my statements above are less about revenge and more about protecting myself. I am not going to seek out my exhusband, because that would be self abuse. I will defend myself and if he dies in the process which I beleive would be a necessity, then I am in the right. My father as a zombie? Off with his head. He’d be eating brains, so since I have one, again self defense. With my grandmother, this choice is difficult because I am aware it causes her pain. I decided that minimizing my pain and regret factor is worth her suffering, because in reality nothing I can say or do will stop her fear of dying alone and the cycle of abuse that follows when she realizes that someone may just want something from her, her other fears feeding into her personal cycle.

Another element to wanting to seek and destroy the abusers is two fold. 1. Having been a victim, it protects you from being victimized by them. 2. An element of this is wanting to protect other people. Neither of these things is actually bad, but when you are raised in a world where self preservation is something “sinful” and you are taught to fear it, you will lie to yourself about the why. I still do and have to actively catch myself and correct the thoughts. Knowing someone is hurting at the hands of others hurts because of the human collective. This is why I cry when I hear about bombings, murders, and child abuse. It hurts me emotionally.

In fact I believe that the factors I listed above actually are the cause of this current war in Iraq. The emotions of the people in my country were played with so that abusers could go and hurt people in the name of protection. 9-11 was actually around the time of my self awakening, and I believe that the abuses and lies by the US government played a part in this, because they were the same sort of lies my father told us about other people (specifically people of color or other minority factors).

I don’t think you want to see their pain so much as you want to prevent it, but I may be wrong. However, that was my personal truth, and it may take some digging through the layers of feeling masks to find out what your personal truth is. When feelings are forbidden, it is natural and “healthy” to put a mask on. It’s a survival instinct. It stops being healthy when the situation goes away. Some people perpetuate the abuse because they don’t know how to function without it. Some tell themselves they like or deserve it and seek it out. Then another set of Victims and Abusers come into play.

This is part of stopping the internal cycle that is hard. No one can see your thoughts but you. I had to retrain my reactions to people. On top of this I had to learn to deal with PTSD, and I had to learn things that I know now are basics for small children. No hitting. No biting. Sharing. I still am fairly awful at sharing. I wasn’t just developmentally delayed or socially delayed but my parents emotionally stunted my growth without thought of what this would do for me socially. Social skills are something abusers take away and I am still mastering some of them. (The Autism plays a part in this, but not as much of a part as most people think.)

What you call the sheep mindset is a response to programming. I always called it trying to eject the tapes, because I noticed for me the voices in my head were of my abusers. The lies that I told myself were mine, belonged to my parents. As Victims we first learn to minimize our own pain, and the post you questioned me on was an excercise in not minimizing things. I still did to a level and may someday write part two of that post but I am not there yet. Instead of punishing yourself for “Agreeing with the abuser” try relabeling things. When you think a thought you know is toxic tell yourself to stop and state the truth.

This is a method I think I found in one of my mother’s many self help books. Most of them to me were worthless but I remembered either reading or hearing about this method and it seemed reasonable. I don’t know what I read but what I did was carry around a small notebook, a tiny pen, and I would make a page for every day, then I would make a line for each bad thought I had to correct. The first day I used four of those tiny notebooks at least. Every thought I had was really repetition and regurgitation of abuse. I had to give myself a goal to do this because it is hard. So I told myself that once I went a week without having to correct myself I would get a soda from the school vending machine. Admittedly I had to steal the money to do it so it wasn’t a perfect scheme but it was a goal.

I then had to make the goal realistic and aimed that I would only use one page in a month. It took years. I actually left the school I was in before then, was sent away to a mental hospital, kicked out of that mental hospital, sent to an exclusive school for broken children (my mother’s words), and was allowed to return home before I managed it. That means it took me over two years.

I didn’t realize until last year when I was writing one of the many unpublished things I putter on that I had really taught myself how to think. The cycle of abuse works because we become afraid of thought itself. Thought shows on your face, it brings up those feelings that make the pain come, and so you must only think safe things. Add in an omnipotent being that has hated you from the womb, something you and I share, and you have no reason to actually think or learn or do anything but what you are programmed to do. This is brainwashing. Admitting that makes me want to cry a little, because it’s something else that I know falls into that spot where I want to dismiss it.

Your statement of steps is active abuse, even if you don’t share it and don’t act on it. I will state you are the victim and abuser when this is all in your head, because it hurts you. If I am unaware that you had these thoughts and even with the awareness I am not actually harmed or the harm is much less than what you have as you have then entered your own self hate and punishment cycle, if I am guessing correctly. I still do at times. I am practicing not giving in there, and though I no longer carry around a notebook I still have to stop myself at times. If I am alone sometimes I will shout at myself in the mirror, arguing with those tapes. sometimes seeing that I am really a person and not a valueless fleshpile makes it easier to stop them.

I also want you to keep in mind that the tapes are a part of what makes PTSD work, and I don;’t know if they can ever go away. You may sheer the sheep but wool grows. This is a life long goal and fight.

Now the truths about the lies that you asked about

1. Abuse has never motivated anyone. If anything that omnipresent sense of dread that is in all my memories up until my adulthood and sometimes thereafter made me want to not move, not breathe and live. Abuse is the best demotivator.

2. Sometimes the victims have yet to speak, this would mean that everything is morally bankrupt, and with good people in the world such as you, even when you don’t believe it or M who keeps me from forgetting I am a person on my worst days this cannot be true. There would not be cats like Sprite, there would not be disability benefits, and there would not be medicine if everything was flawed and evil.

3. If it were good for the victim it wouldn’t break people and have people die. This does not mean those victims were weak but instead that they just broke.

Stepping out of the cycle here is possible. I think this is the hardest part of the cycle of abuse. I had to learn to love myself. I could think for myself once I knew I deserved to do so. Not just that I deserved my thoughts but that my thoughts are things of beauty even if there is a bit of tragedy with in many of the experiences I have had.

You are supposed to feel as you feel. Feelings simply are. Anger is not a bad emotion if you do not weaponize it. Anger simply is. My favorite emotion is Joy, and even as I am writing this I feel joy, because by asking these questions you are freeing yourself. You may have to do so again and again but you are trying, and trying is the only way of doing there is. I think the reason I cannot cry is why I don’t scream, but there is a reason to stop. I am just not sure I would know how to do so. The reason to stop is because of life.

And on the last question you ask, respond to me as a person above all. For that is simply who I am. That is who you are too, so remember that. People are fallible, and you will have days when you cannot stop making tick marks, days when you lie about it to yourself and make less than you should, and days when you run out of paper. Then there will be days when you don’t think the toxic thoughts about your worth, and when you can see other people around you through your own eyes.

M helped me find the answers because we were talking about a Patsy Cline Song, and Jonah Hex. Jonah Hex is like us. He is the product of severe abuse and cruelty. He is trying to make the world better in his own way but he is actively stuck in his personal cycle, and has no help getting out because of the judgement of others that take a scar on his face as a sign of his internal wickedness. A scar made by abuse.

When I read Hex I listen to Country Music. The Patsy Cline Song A Church A courtroom and then Goodbye is for me a reference now to my wifetime. My marraige was short, but before it became bitter it was sweet. I really did and DO love my exhusband. I love the parts of him that were good, the parts he chose to throw away.

He tried to devalue me and instead showed me a part of the abuse I was still in. In my life the only nice things I let myself have were investments in the future, so that I could save money in the long term. So my computers are always expensive but they last a long time. (Five years is a looong time in technology and I can jury rig things for a lot longer with this one if I just don’t save anything to my main HDD.) In fact, I so rarely bought anything new for myself and then it was an item of need.

My nice new clothes he took away? I needed them because I had nothing to wear LITERALLY. I am actually about to go buy pants because I need them and again have almost none at all. My shiny new Batgirl statue is a symbol of my being deserving of want. I deserve to want things. Instead of that being a dreadful affliction, a sin, or something bad… it’s okay. I may not buy everything in the world but as with food deprivation, depriving myself of the things I desire causes me to binge.

I can throw away the sales ads from the stores now. I no longer have to try and fit new trash in with old. I am still working on unhoarding my home but it is clean, the only things on the floor are furniture, wheels from my wheelchair, and cat toys. There is no filth, no piles that I have to climb over, and even better? I don’t hate myself for wanting and for the things I have.

Furthermore I also have something for you and everyone that reads this my dear Rageomatic. Love.

Love is a constant. It is not a weapon. It is not harmful. The idea that love can hurt you is silly. Not everything that has been called love is actually love. If something is called love and it hurts, it is something else. Pain is not beneficial but is a warning of something harmful. It is a sensory antibody. I love. I love everything and everyone. I admit even to loving those that hurt me. Love itself does not mean you have to open the door, open yourself to more pain, but instead the love of yourself is why you can step away from the cycle, and why you are not alone.

When you can love yourself and admit it to yourself, you can give yourself permission for joy. Joy doesn’t fade either but sometimes other feelings occur but that makes the return of joy all the greater.

This is my gift to you, and to myself. Thank you for asking your questions.

Anatomy of Pain (Ouchie and Trigger Warning)

My first thought as I woke up this morning was “Ouchie…” I curled up into myself and tried to remember how to breathe. My over exposure to rapid heating yesterday left me as I knew it would, so I forced myself to move, get a drink, take the pill, and now I must sit and wait. I realize this is in a way self inflicted, though I had no way of knowing we would have a thirty degree temperature spike in two hours, and I still got a need met by the flea market that mentally balances out this pain. My fifty dollar jar opener, brand new does not quite trump this pain but I did get another hat, and hats at this time are extremely pleasing to me. I also got the honey I had saved up for passing up some other wants. Wants that are just wants. I have no space for them at this time.So I am going to dissect how pain feels in my body, maybe this will help me explain to my doctors that this is my normal before medication, and the worseness of pain comes only through unforseen things like the sun shining or a rain drop falling. If it were up to me I would live my life fully indoors, but mentally I cannot do that.

The physical aspect of the pain that I feel when I first wake up is not in a single area then blooming out but is instead a throbbing river that is flowing out of me into the world. I feel it flowing from every part of me. My hands, my feet, my chest. I always wake up with chest pains, but the Cardiologist proved this is just my normal because sometimes I have muscle spasms in my heart and always when waking. Medically this isn’t as very bad as it sounds but it still scares me. He wanted to write a study on me, because it’s just another rare thing that almost is never seen. I can live with this for years, but it worries me that I may miss actual danger signs because I am used to spasms in the muscles in and around the heart that are not actually effecting the beat and hurt like hell.

After the flow of the river come the explosions. This is when I try to move to see just how long I have to wait before I pee. This morning I could move immediately, for me this is rare and always more painful. I lay there for a bit longer anyway, trying to coordinate my breathing, because my body wants to scream. My brain learned long ago to not scream and though this was a product of torture, I do not think this is a bad thing or I would scream constantly. I would not be able to tell my doctors “I have ouch here, and here and here, oh don’t miss my skeleton, or muscles, or nerves!” I wouldn’t be able to think. I would just scream. Especially when moving makes an explosion. Explosive pain is when it spikes up and impales you, that’s stabbing some might say but the exact sensation explodes out of me, through my joints usually. I have a constant explosion of pain in my right hip because of falling and breaking it four years ago now. It will never heal, so I am used to that. The other constant explosion isn’t just that but is an all pain center, my back. We;ll address that later. Every joint when I move through the day explodes for me. The pain medicine doesn’t actually take this away, it just lets me not care.

I am on my feet now, sometimes I fall at this stage if I move too soon, it’s been years since I actually did fall. I always wobble, my joints all snap into place and for a moment the river flows more freely and sometimes I make squeaking sounds. Sprite always yowls at me to get back in bed, her fall warning. She and I both know I won’t at this point because if I do I will wet myself. I have twenty seconds to coordinate the muscles from my belly button down or I do anyway. I have thirty seconds, that overlap that to walk to the toilet. This part I would say the pain is like sandpaper on my soul. Everything at once seems to burn. Sometimes I cannot stop the crying inside with this. I don’t cry on the outside with this pain out of practice, and sometimes I wish I could just wail and cry. Instead I mentally think and visualize my legs moving, and myself breathing. I must see both. I don’t bother with my glasses unless it’s a new place and then things are more hurried. I have walked this path so many times I go. I let myself sit and try to not cry because once I sit on the toilet my muscles all spasm, the signals all confused.

It takes me ten minutes to get back up. I use my walker, which I find amusing at times. This walker was my legs for two years, my blatant attempt to flout my own needs. This walker was my fight, this walker was my pride, and it is a reminder of my ignorance about what disabled means. This walker did keep me alive for many years and it shows it. The paint has holes in it, not just to the under coat, not to the primer but you can see the base metal. The shiny red made hearts of silver. Sprite sits beneath it and yowls at me to get my meds. Once I am upright I go back for my glasses. Most of the time the pain or whatever it is that makes it where I can barely see and can’t read paper makes the world so fuzzy. Even as I write this only one eye is focusing, and this is getting worse over time. Each day I see less. It is so clear to me how little I see that sometimes I just sit with my eyes closed after making it to my wheelchair.

The anatomy of my pain changed with the wheels. Instead of choosing between bed or couch to sit on I have something to help me either dam parts of the river or at least change it’s path. I curl up in the chair after pulling on something to wear. The fabric on my skin makes me burn, always. It is worse with some fabrics, so now I only have things that feel good. I only wear things that I can tolerate except on my worst days. My nerves scream at me for daring to cover the skin on my body. I buckle into my chair and carefully steer it out of the corner it is parked in while I sleep. I move for drink, I sip it and the burning of drinking makes me have to pause for air again. It doesn’t matter what I drink, it all burns. Some things just burn less and don’t end with me vomiting up my medicine. I take the tiny white pill of freedom and drive over to a spot and sit to wait. I tilt back, I stretch out I curl up. I just wait.

Every pain, the exploding pain, the stabbing pain, the throbbing pain, it has me on standby. If the pain doesn’t clear up by the time a half an hour has passed I am in trouble. I call these pain days. This is when the stabbing pain is acknowledged. I ignore it as long as I can. It lines up with my diaphragm. It is there with each breath. I Can feel the broken bones that won’t heal in my back. I feel them grinding, I feel the pinched flesh around and between them. Each movement that makes my back muscles move ends with a sharp stab. Sometimes when my PTSD is too strong I see my father there, I feel him hugging me and stabbing at me like he used to. The reason I don’t hug is there. Hugs are the same as being stabbed in the back. The stabbing pain also hits elsewhere at times but only is it a constant and regular thing in my back and on bad days my hip. The rest is unknown, it can hit a shoulder or a knee or a non joint but those are much more rare.

So I breathe, and wait. I thas been the half an hour and today IS a pain day. I am going to curl up in my bed, and I am going to try and let the pain disappate further. I have no choice. It is bed or crying, and if I cry my face gets wet and that burns very much. The anatomy of pain follows my body, it rules my day. Pain is truly what I see as disabling me. Not water, not the sun, not broken bones but pain.

Suicide: Recovering or Relapse? (Trigger Warning)

I wrote about what it means to actually be suicidal before, and I haven’t really touched on this topic since. Part of that was dealing with the depression. I want to talk about the recovery process and I also want you reader, to be aware that this can be triggering for people to read, or even think of. I also am not claiming to be recovered fully but I am recovered enough that I am no longer constantly looking at the things I own as weapons that could kill me.

Continue reading

Afterburn (Trigger Warning)

I have had my pain meds for almost a week. I still can feel the after image of the pain, it’s tracking me like some sort of monster. In my mind there is a shadow, and if I look behind there feels a chance to see the negative image of my being drawn out by the pain. The monster is created by the black hole of pain, that inescapable pain that takes lives. In every motion I make there is the risk that I will hurt like that again. The fear is enough to make me hesitate. This is the after burn. This is the concequence.

It comes up when I want to do something such as spending money for a keyboard that isn’t broken, or saving for a computer that isn’t dying a slow and icky death. My keyboard has had a short in the usb wire for a good while. I found out about it during my time with the Paintrocity. I don’t use wireless keyboards for two reasons, batteries and also I tend to break those a lot faster. This keyboard has actually lasted for years and through several computers, it is a veteran in my typo wars. It’s been packed away for moves from the first time I lived on my own through this permanent time.

This keyboard has been dropped, run over by the scooter, and I wonder if objects feel each time I “hurt” it. Never on purpose because it is a life line. Perhaps it is this attachment that makes me hesitate but I think not. I think it is just having the pain again. The last time I felt this way was not the last time that my meds were removed from my life. With that I was already feeling pain and things were different due to abuse. That was another type of pain, even though it included bodily anguish and mental anguish. There is no comparison. This is NOT the worst pain of my life. It is merely the current pain.

Afterburn pain doesn’t go away with a pill. I know a large part of it is mental, some of it is a symptom of lost ability from having to stay still so that I didn’t give in to the urge to just scream. Some of it is rebuilding the barrier between my pain and my brain. I don’t know if this is a bad thing or not. I think with the new wheels it is giving me a bit of perspective on what my body benefits most from about the chair. That would definately be the adjustability of my body without my having to twist and shift. So far I have had a dramatic relief in all pain except my lower back where the actual spinal injury is. That pain won’t go away ever, I learned this a long time ago.

Still, with the Paintrocity I am afraid to explore. I am almost using my too narrow gate as an excuse. Almost. I fear more not having my shiny new wheels and if I force through the gate I may damage the controller wire or something else, therefore I have to be patient and wait for the manager to take the gate off it’s hinges, remove two blocks of wood and reattach it on the other side so that it swings fully open and doesn’t murder my rose bush. I have beautiful yellow roses in bloom.

The Paintrocity has me afraid to do anything. Eating? No. Why? It will make me digest and digestion hurt so badly without the medication. Breathing? I still catch myself starting to hold my breath because the injury in my back effects my diaphragm. Singing? I won’t let myself stop but that puts my lower back into a form of torture. The singing brings up more mental challenges with this. Even laying in bed is unpleasant now. It now reminds me of being trapped in my home.

I am going to call the manager today and let him know I need the gate fixed by Friday. Rather short notice occured but I have a graduation to attend, and I want to be there. Parts of me are afraid. This would be my first time in a huge crowd with these wheels but, these wheels have immaculate control, they turn in tight spaces, and oh yeah, I am taller. The seat of this chair is about four inches higher, then if I tilt it back I feel like some sort of six foot tall seated person.

The after burn has a very visceral image in my mind. It belongs in a horror movie. I become a negative image. It is my own reverse flash come to destroy my life, to devalue everything I love. The paintrocity even tried to remove my ability to hold Sprite. Yesterday was the first time since the pain meds return when we could truly lay together for naptime and both be comfortable. She had her head on my shoulder, so whenever I would shift a bit or wake up and opened my eyes I could see her curled up against me, using me as a pillow fast asleep. The adorableness helped dispell some of my fear of sleeping.

I think that was the worst part of the latest experience with no shelter from my pain. I did not go through what I thought of as withdrawals but instead into spirals of deeper pain. Sleep became a place of more nightmare than not. For a long time the only nightmares I had were related to the murder that I witnessed. Even in the pain those went away because I spoke up. The dreams consisted mostly of my parents relaying how much they cared for me. That is a very bad thing with parents like mine. The paintrocity also made me more vulnerable to talking with anyone who is a “leech”. I have a few in my life. I only answered the phone for one once.

Even as I write this I am left with a quaking feeling in my gut. My mother admitted she reads my blog. Well during my time of pain when I wanted to kill myself I wrote a letter detailing all of the things that made me angry about wanting to die. I understood still and reminded myself that the pain was escapable if I trusted my service coordinator and advocate. I just had to wait a little longer. Just a little more time. Those words were torture. I just wanted to slit my wrists. I considered eating some of the non pain medications en masse to see if I would die. I considered dragging myself to the street. The plan ended there because that was NOT happening. I had to talk myself out of it, and I found myself angry at wanting to die. I found myself angrier that the voice in my head telling me to die sounded like my mother or my father always. It was never my internal voice.

Some of the things I wrote I will never write about here, some I will. I determined long ago that this is my blog, this is my space, and my parents are far from good but they are also far from the only abusive parents in the world. For my entire life I have thought of my mother as a victim. That stopped. This was a benefit of the paintrocity. Anyone that could let their children be abused and excuses it as it was better for them than being without a father, or lets them take the beating so that they don’t have to IS an abuser. She may not have dirtied her hands as often as Steve (that’s my biological cretin of a father’s name by the way) but she still did abuse. There were words, moments, and even a few times she hit me because she didn’t like what I was feeling. I don’t know that I can forgive her for what she has done. I don’t know that I will ever visit the family again. My baby sister is old enough now that she is a fully formed adult. If she needs me she can call. I don’t have to endure an abusive grandmother, an abusie mother, and her worst drug dealer ever husband

I finally understand why after calling her or her calling me I feel so horrible. She’s like her mother. I don’t know if she will read this post but I will never say those words outloud to  her. Every time she told me I was just like my father it cut to the soul. The paintrocity helped me to relive those moments.

I still have a lack of good color to my skin, I still have these dark blue circles under my eyes. I always have them when I don’t feel quite right. The darker and bigger those circles the worse the pain is. I felt for a while during the pain that my face had vanished under them. Both my caregivers were concerned more than once about how grey I had become. I looked like a zombie. I was a zombie lost to the pain. They made me eat. They made me drink. I did not want to. This was something I asked of them in preparation and both caregivers worked with me admirably. There were days when I just growled at them. They still worked, they still did all that we needed. There was nothing that either did that made pain worse either. That is a challenge.

My face has always betrayed how much I hurt. When I saw it happening in the mirror or it was commented on I felt naked, and I expected pain in the form of abuse or manipulation. Every other time someone else has added to those burdens. I trust that in the moments when everything melted into PTSD land or I was hallucenating very bad things that neither did anything wrong. If they were going to they would do it regardless of coherency. My experience with abusers has also told me they would want me to remember, so that I would know that they had power over me. Disconcerting? Absolutely.

I know eventually I will defeat my formless foe, the Paintrocity. I will get back to where I feel almost carefree. I have never quite managed carefree, but I have come close. Now that I have mobility restored I may attain actual carefree during some moments. I have goals, I have dreams, and I have begun to live already. Like a thirsting plant that just needed water. Sprite has taken to the chair as well. In less than a day she stopped hiding for most of my jaunts around the living room for food or water. She didn’t like going outside on the leash but after that she started jumping up onto my lap, she found out she can’t sit on my headrest and she’s sitting on the table waiting for me to finish typing.

My pain is lessened further because I cut my hair off. I am now short hair bearer. I like the style, and it looks good one me. (No style I have ever had has been out and out bad except the time I shaved my head.) It feels good. I am sending the grocery bag full of hair (and I do mean full, I was apparently very hairy) to the people gathering hair for the Oil Spills. Because the hair is dyed it was not appropriate for Locks of Love but now I know there is another charity that can use my hair for good.

I do not yet know what it will take to beat the Paintrocity except for living. I do know that I do not fear dying anymore. I don’t think I qualify as suicidal. Part of this is that I had reached my goal of not wanting to kill myself daily before my pain meds were denied by the insurance, and I managed to make it until the last four days before I wanted to die. Even when I wanted to I could use the truth over the pain induced self hate and lies in order to not give up or in. I had been living all along. That sensation of waiting to live that was torture is at an end.

Now I just need my corset and I have it all.

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