Firing your Doctor

I followed a link in a blog and it lead me to Alas, a Blog. I found there a well written essay on undiagnosed chronic pain. The focus is on women and is intersectional because it deals with discrimination and medicine. As any disabled person knows, doctors do not always listen. It is easier to get a diagnosis when they are fresh out of Med School, but that diagnosis can be wrong via wrote of inexperience. I have written two other How To posts, and this is the third. How do you fire a doctor?

Step 1. Determine why you do not feel you are recieving adequate care. At times this comes from a doctor being frustrated that you are not magically cured of your congenital issues, and then losing their effectiveness. Other times this comes from sitting in the ER for three days wishing you could just get some help, being told “No drinking or eating, the doctor might need to operate” and being told that they can see nothing wrong with you, without tests.

Lets start with the latter first.

Step 2. Become the Bad Patient, Angry Cripple, or Annoying but Empowered Patient who knows their body better than their doctor. Most people when seeking medical treatment have a vague idea of what is going on already. They know where it hurts, and yet it is not really their job to know why before they get to the doctor. Most people in the Emergency Room are often disoriented, queasy, and focused on a fast cure. That is the tenet of the ER. When you do not get your care you must ask, as calmly and politely as you can, “I want a second opinion, can I please see another doctor?”

Expect anger. No professional wants to be second guessed. None of them like it, but some will gladly send you to see someone else.

Step 3. When they decide to ignore it and try and send you home, you might need to call an advocate. If you are disabled it is easier to find advocates, but if you are able find someone who is coherent to help push for your needs. This step is best done before you are in the ER, but, sometimes you can find a patient who knows how to handle it and is willing to help you. This advocate will help you repeat your request for a second opinion over and over until you finally see another doctor.

Step 4. If you can, remember to breathe between each step, each sentence, to try and retain a claear head. It is horribly annoying but remember losing your temper will make it worse for you, and no one else.

Step 5. IF you are in an Emergency situation and are at risk of death, DO NOT GO HOME. You need to stay there, even if they want to send you home. You might need to sign in right off, after leaving. If you are uninsured this can raise your bills. This is horrible, but, if you are in danger of death money is not an object.

Returning to our first scenario, firing your Primary Care Physician:

Step 2. Write a letter to your doctor, you are not sending this letter but you are detailing out why you do not want them to see you any longer. If you are insured you might need to write a letter to your insurance explaining these very things. You will have to explain to your new doctor why you left your previous PCP (Primary Care Physician) or Specialist if they are in the same health care system. In many cities one stands above the rest for their level of care, my personal choice is to stay with in the system I know and trust may differ from yours.

Step 3. Try and find a list of approved doctors with in your insurance, if you have insurance. If not, then, this step still applies. Find a list of doctors. Depending on how you work you might want to contact your local medical review board for a list of physicians with complaints against them. In America this is legal, if you are not in the US, you can still find this information. Some of it is available on the internet. If you still trust your previous doctor, try asking for a recommendation.

Step 4. Write a list of your known medical complaints, when and where you were diagnosed, if you have any preexisting conditions, and write a list of expectations for your doctor. Remember to stay reasonable, you cannot expect your doctor to do anything that goes against their personal morals or professional morals.

Step 5. Make the appointment. If you do not feel safe, do not stay in the appointment. You have freedom, you can leave at anytime. IF this is the case, start at step three.

There are other times you might need to fire a doctor. Very rarely have I said to a doctor, “You are fired.” I have however, said it most in the ER. Remember, firing a doctor does not black list you from treatment. It does not preclude you from proper care, and it does sometimes make a difference.

Your pain is not in your head. You can find an answer, do not give up. Remember, there is no such thing as Hypochondria. You have the right to proper medical care. If you are uninsured most hospitals have payment programs, or will even waive the cost if you are unemployed or low income. No money is not an excuse for a lack of care. In the US (sorry I just do not know the other countries laws well enough) you are guaranteed medical care in an emergency, and can often obtain it outside of one.

The Rape of Innocence (Trigger Warning)

Literal. I lost my innocence, as defined as physical virginity to my father. It was rape. It was never consensual. Incest is bad. Typing these words is extremely difficult but my day has already been one full of tears, therefore, I am going to go with it. His excuse for rape, his reasoning that made it A-Okay to violate, subjugate, and to hurt me sexually was this. “You look just like my mother.” I was four years old. Today I was triggered. This isn’t an easy thing to admit, and I feel uneasy each time I come across things that remind me of him, and at times my PTSD is triggered by a harmful thing. Today I was already in a bad way due to pain, some of it is residual effects of my abusive childhood.

Some of it comes from feeling violated at having to see another doctor, since my service animal makes me unworthy of another. Some of it comes from this post on Feministing.com. I do not care that this game came from Japan originally. That does not make it better. I do not care that their society has a history of subjugating women, so surely all of their rape fetish bull is perfectly acceptable. Not to me. I want to reach out to the women of the world, for an uprising. It is in this moment that I state I am a feminist, in the definition that states I am pro women’s rights and equality, I am pro disabled equality, and I am pro mental health equality. I want to be healthy, I do not want to feel the edges of Victim burning at me again and again when I skim the internet, go outside, or even sometimes when I try and think of a happy moment. It is always there.

I am not the cause of my own rape. How can I be at fault for it? Yet games like this propagate the victim is at fault mentality. I remember when I turned my neighbor in. He was molesting me during the same period when my father decided to rape his mother allegory. I remember being asked by the prosecutor, at the age of five, if I wore short skirts to turn boys on. I didn’t even know what that meant. I remember, however, the after effects. I rejected my body, myself, and I tried to become a boy.

This attempt at maleness included trying to cut off my breasts when I was thirteen, shaving my head repeatedly (and discovering that my head is very lumpy) as well as rejecting my identity. I could not be Rebekah. I had to change my name. I did, as an adult. I found a name that fill sme with the sensation of security, health, and the desire to be happy. I do not cringe when I hear my name anymore. I never out grew the after effects of being raped. I was repeatedly assaulted through my life, and this was also used to overshadow real medical problems.

When I was eight years old my mother and father sent me away for hypochondria and Bulimia. It took adult hood to realize I never was bulimic. I also have a great deal wrong with me, and none of it is in my head, except what neglect and trauma put there.  All of my current illhealth cannot be attributed to the childhood neglect, but, a majority can. I am an advocate for anyone who needs it because there is so much to choose from. How do I choose between mothers and their need for proper nutrition, childhood health awareness, Celiac Awareness, Rape is Bad Mkay awareness, and the awareness that as a wheelchair user I need a door that is wide enough for me to not scrape through.

I am in tears today from pain, physical and emotional.  I am a woman. I am 24 years ago and it has been 11 years since my father last raped me. I have since seen him and he cowers with fear, he actually pissed himself when he saw me using a walker and fled in terror. I am not someone who causes fear but, I am a survivor. I was a victim and when I tried to say something, when I found out I should, I was denied that right. The district attorney felt that my case was not compelling enough because I was a mere child and had been sent away by my rapist for not being exactly what he wanted. I was denied justice, and I know my assailant is out there.

Knowing he is afraid of me doesn’t take away from being afraid of him. It does not take away from the sensation of the little hope I had being crushed because I wasn’t worthy of the time to take a bad guy off the streets. It doesn’t make it alright.

I hope whoever reads this finds either peace, awareness, and the understanding that if they themselves are a survivor of rape, abuse, or anything at all, that they are worthy. I understand as an adult why so few women report rape, when it is always the Victim’s fault. Eventually I will write more on my experiences with the mental health system as a child. I will write about my diagnosises, and the secrets that I am not sure my biological mother wants shared online. Someday she will google me and will discover that I am not the all accepting child she still perceives me as. I do not take the burdens she places upon me. I leave them behind.

I was about to submit this when I came across this in the comments on Feministing.com, another link. Amazon pulled the english version of the game, though it is still availible elsewhere. I am shaking with relief and rage. How do we protect our children when things like this pervade? What is to stop this from normalizing rape in our world? It might. It might not.

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