Archeology of Truth (Trigger Warning)

Tomorrow is Thanksgiving. THAT DAY. I have had the entire month until today with barely a tickle of my usual PTSD. I’ve had blatant fun. I am a bit fogged and distracted as I write this, drowning my sorrows in mental crap such as bad disney movies, not that there are good ones, kitty snugs, pizza, and talking to people important to me who aren’t traitorous liars. There. I said it.

Once upon a time in 1993, and well before, there was a girl who was lonely. She made a friend who was much like her. This friend was an orphan who lived with her grandmother, and despite being blatantly spoiled was one of the kindest people that the lonely girl had ever met. They played together. The rich girl even bought toys for the lonely girl, but they learned rapidly to leave them with the Rich Girl.

One day, the Rich Girl moved without getting to say goodbye. There were small things left over but as all the things that they had had together except a Best friend’s charm, a few of the prototypes of the miniature food I left behind and some clay as well as a tin of the uncured creations. This clay stays good forever unless you bake it.

Lonely girl was broken like the clay, left in pieces. Lonely girl was told that she had made up Rich Girl, and the proofs were lost.

 

Today, Lonely girl found the small tin of the creations. The proof. In it were the little charm, a small barbie toy, and a few other things. Too was the proof that Dolls belong in her life via some of the small things that she kept from Rose, another friend now lost to her. Lonely Girl is now Amazing Adult, but that does not mean she didn’t cry.

Infact, the clay that still remained anything was cured, and now there are artifacts of Lonely girl’s innocence before the abuse and rape broke her and nearly destroyed her. The cracks that remain of that pain and what was before do not make the entire person of Amazing Adult, but instead remind her of why she is glad to be an adult.

 

Yet still, she cries for the loss of her friend and the sweet things that cannot be published in a public forum for safety that were recollected.

 

Also, I have some Barbie Dream house stuff to paint black and dead all over. I am okay, I am just foggy and hurt.

mutli colored clay creations, mostly roses, from my childhood.

The Artifacts

Really? (Trigger Warning)

I am not sure I should be writing this. I may not hit publish but I am at least going to put these words down on my screen. It’s two in the morning, I am sitting on my shiny wheels and looking at ways to modify them (no structural mods, just accessories I can make like a little table and ways to add reflectors that would look really cool and would be all mine). I am trying to stop my brain enough so I can sleep.

I am upset. Not the upset of screaming or crying but upset and feeling a bit betrayed. Having a caregiver breech trust always makes me feel this way. I am tired of having caregivers do really stupid things that endanger me and get fired. Caregiver 1 had the most hours, almost all of them. Caregiver 2 had just enough hours to buy some food maybe and was in need of more personally so that she didn’t have to quiet this job and find another.

Caregiver 1 is no longer employed at all. Not with me, not with her other client. I did not choose that act but I knew my actions would have that end result. It was her choices that brought this upon her. Caregiver 2 now has all my hours. I think that her hard work in the small amount of time, picking up any hours I needed except once when she just couldn’t and not pressuring me to change my schedule for her needs is proof enough that she can handle a full week of working. I think I would be more upset without having had the back up plan anyway.

So what did Caregiver 1 do that was so bad? Lets start with reliability. If I have a caregiver I need them to show up around 12 so I can eat. By then I am really hungry but it’s safe to eat due to the queasy factor. Arriving between 12 and 1 is not really acceptable, arrive on time. She wasn’t late, because we moved the schedule for driving time between clients. Leaving early, such as after a half an hour of work, or not calling in to let ME decide if I should be exposed to whatever virus your kids have is also pretty bad. Still, those are things that I think happen due to humanity and it wasn’t a consistent issue with the sick kids. The office talked to her about the lateness and after we figured out the issue I just dealt with the challenge on my end.

There was more, but I didn’t know about it. You see she’s had people dying left and right in her family. Except… that she lied. There were two deaths. One she sent her family to the funeral to pick up the memorial sheet for proof and took the day off to play with her kids. I had no caregiver that day, as Caregiver number 2 hadn’t been hired on yet, and this was after a weekend alone. I thought that I had hallucenated this confession as it happened during my darkest day of no pain meds. I barely remember anything from then so I wrote it off. It is understandable for me to doubt myself when I am seeing people telling me the worst things all around, people I trust and know don’t actually think or do the things they said. My pain makes me vulnerable to a form of self doubt that is fairly insidious.

The second Death has apparently happened a few times, and finally for real. Finally is not the best word in this case but it is the only one that I can make sense with right now. Grandma has died three times in the last few months, for time off of work. All the office tells me is a death in the family, and since my mourning is for people and not the one who died as I think death is a good thing (a transition or rebirth) I don’t talk about it much. Few people are comforted by my beliefs and I don’t want to lie to them. I don’t want the awkward feelings there that occur when I know I screwed up and I just can’t help but make it worse. I’ve found offering true condolences is enough most of the time anyway. I don’t promise to do anything I can but I do mean sincerely I am sorry that they are feeling such loss. This time Grandma really died. Caregiver 1 started being “unable to work throught he pain” last week. Grandma was alive then but the office was told she had died. Last week I had more time with Caregiver 2. It was great, as even through the pain I felt safe, I knew my needs would be met and since Caregiver 2 is closer to my age we had some girl talk time when I needed mental distraction.

Today Caregiver 1 admitted all of this to me, and vented about family issues in regards to this death. I did try and stop her but she kept going and then repeated her confession from the time of the Paintrocity and furthered it by telling me she was going to find a new job, and quit. She then asked me to not TELL anyone. You see the flaw here?

Do I keep my mouth shut and endanger myself with someone who went from being VERY reliable when she wanted the job to disaffected and unable to meet my basic needs while waiting for her to find a job?

Nope.

I called the office after she left because she was too upset to work. I told her that next time she should just call in. Part of my challenge is that she brought me some very expensive food today, that I could eat. I felt as if she were trying to bribe me. You see she has four kids, is low income, and is then endangering her job with what I can only call abject stupidity. I also was told by her that she was under investigation for not doing her job with her other client, though she assured me she was not taking advantage of his inability to remember events or people. I don’t know if I believe her or not but that feeling of everything being in jeopardy was there again.

I felt fear, I felt anger, I felt betrayed, but most of all I feel confusion with little sparks of misplaced guilt. I did not say that I wanted her gone, but I did need to talk about what happened and I did have to decide, as there is no way that this woman can work with anyone who depends on a schedule. I am struggling with the in home care doctors because the doctor I am assigned to refuses to schedule me… with me. She keeps trying to show up arbitrarily without any set time. If I call in and ask for a time, they say she will call me. She does… two weeks later saying she’ll be here this afternoon.

Her perspective? Since I can’t get outside I have nothing to do.

I explained that not only do I have a schedule but I may have company. I also need to mentally prepare for the invasion of another person into my territory. I feel that this doctor doesn’t comprehend respect. Just because I have been trapped in my home for what feels like forever (closer to about 9 months or so) does not mean I do not deserve basic respect. She gets a date and time in advance with her doctor. Why don’t I? She’s been supposed to schedule a set monthly day with me. Instead she arbitrarily has tried to come once a WEEK, and I won’t let her in unless she does this my way.

My way takes maybe five minutes. She didn’t want to schedule the next time to see me after our first visit in person. Yes it was a good visit but I am so frustrated by this I am going to have to go to my previous doctor. At least with her I felt like I was respected as a person.

Today I did explain this again to the travelling doctor’s office. It is noted in my chart supposedly. I told the receptionist she needs to tell this person obviously. Amazingly I was able to schedule an appointment for Monday. This is two arbitrated appointments in a row that have occured. I have a graduation I am going to try and attend if the apartment manager fixes my gate in time on Friday, by arbitrating that she would be here at x time on Friday she arbitrated that I couldn’t go because SHE SAID SO.

I felt more anger over what felt like an invasion and an attempt to control me by the doctor than I did by the issues with the Caregiver. I suspect that is because the second caregiver readily took the hours, my time with the caregiver will be moved back to where I need it and no I will not ever accomodate another start time again, and I am still enjoying my wheels. When I was done being frustrated I went outside and sat staring at the sky or my rosebush and just existed for a moment.

I think I will publish this, but I really want to know why people think I am furniture to make them a buck. Yes, a caregiver gets paid but I am not furniture. I am a sentient being that will protect itself from invasion by “aliens”. I will not allow people to decree that I must let them in, I will not allow people to tell me they lied but most especially not when that lie could endanger me.

I am getting tired of the challenges. I just want one week of good things only. I know this won’t happen. That would be like expecting this wheelchair of mine to take away all my pain, or the medicine to take away my pain. Pain is a part of my existence. Nothing can fix the pain in my lower back. They can make it better though.

I am looking forward to something else by the by. Paratransit. I think it’s expensive and I am not sure I can afford four dollars to go and do things (two dollars each way) but I do want to sign up for our city’s paratransit service. I cannot ride the bus, nor can I sit outside waiting for a bus in the sun or snow. I can however get around this with paratransit. This means when I really want to do something like see a movie (rare but some I will pay to see in the theatre. Batman… Green Lantern… uh… uh.. yep that’s about it) or visit a friend (not likely since most live with stairs even if they use a wheelchair so phone works for me there) or…  well in general it is freedom. It also means I don’t have to worry about getting a car for my chair lift right this second. It means no gas money.. and with the cost of gas it’s probably about as expensive!

Plus Paratransit means I may be one step closer to going back to COLLEGE. I am not sure I ever will but I like the option. Oh and Paratransit means that I don’t have to worry about the bigoted and prejudiced bus drivers going past me for three hours while my skin blisters up, or stating that even with the law right infront of them I cannot bring my lovely Service Animal with me.

The biggest surprise about the wheelchair has been Sprite. I am sure she thinks I was going to run her over tonight since she is not afraid of the chair at all and didn’t move out of the middle of the floor. I stopped of course and honked my horn at her. She just stared at me and laid down. Luckily she comes when I call her. She doesn’t like going outside and I think it’s because the ramp feels really scary in this chair.

Some of that fear is my fear of heights. Some of this is how narrow the ramp is. It’s just as wide as my door way. So is the chair. I already put in a written request that the ramp is widened. I am going to add a request to this that there is a small lip placed down so that I can go into the dirt of my yard. The ridge is just too high.

I know today was stressful but there was more good than bad. I also had a friend come over with her nephew who was really adorable. She was nervous about baby sitting him. He’s about a year and a half old. She was surprised to find I actually have some baby skills. His parents wanted him to meet someone in a wheelchair because they are big on intersectionality. D as the young man shall be called is a person of color but is also mixed race.

He is REALLY smart too. At first he was a bit scared of the chair, not a lot but this chair is pretty big. He had a toy car with him and I watched as he studied the car wheels, then my wheels. He frowned, and asked questions with his body language. I could see them in the same way that I see Sprite’s words most of the time. So I talked to him, and explained my chair. He forgot his worry about the chair being something new once he watched me adjust the tilt and recline for my comfort. He didn’t once try and push the buttons on my chair but he walked around it a bit and then gave a nod.

I let him sit on the scooter and gave him some ham. His auntie was worried about his making a mess but that’s what a paper plate is for. He took the key out of the scooter and studied it, found out Velcro makes an awesome scriiiiitch sound when you pull it apart. He figured out how to revelcro the keyfob that I use for the scooter keys. It holds things, so I used to use it for my copy of the ADA service animal law. He then put the key back into the scooter, or tried. The key is a bit difficult to manage for an able bodied adult. He at least balanced it on there.

I had fun. I found I miss my niece and nephew a bit. His aunt learned about misdirection with kids, and that a bit of a mess is okay as long as you clean it up at the end. Looking at my house now you would never know about the chips and ham that ended up everywhere. My home also remained gluten free even with a young person here so I am contented.

He did manage to gross me out a bit when he brought me a cockroach and handed it to me. My fear of cockroaches meant I ended up shrieking and flinging it away. We found it, it is no longer with us, and he helped us find out sprite’s been piling them up half alive in a corner of the bathroom that rarely gets attention. (Behind the toilet.) Apparently they chase good  but taste bad. Blech.

As far as any worries about why I have roaches, it is not a filth issue but it is a city wide challenge. In my city if you have sewers you have roaches. Even the rich people with 3 million dollar homes have roaches here. I shouldn’t find this pleasing but I so do. I haven’t had so many roaches as in this house, I admit that but most of the time they are crawling out of the drain or something. Not much we can do but as long as no babies or kitties try and feed them to me I am happy. (Why do they always want me to EAT the roaches?)

So really, good and bad… happens.

Reset (Trigger Warning)

I have hit the reset button on every relationship in my life at least once.  Everyone goes through periods where they reevaluate things, forgive things, or decide that people aren’t worth their time. It’s a part of nature, and that part is supposedly what keeps our world in motion. That supposition is crap of course. I gave my mother another chance out of desperation. She came through just enough for me to get my hopes up that maybe things had changed.

My bad. No, really it is her bad. I know she could find this and read it. Hell she has given clues she has read my blog. Maybe this was a form of punishment for it? I am tired, I am in so much pain, I am barely sleeping again, and I am still without my bed. My bed isn’t a luxury, it is a necessity. I know that sleeping on the waterbed increases my health because I actually sleep. Right now I am sleeping on a broken couch.

I have been moved for almost two weeks, and still no bed. Why? Because she argued with my older sister, so I receive the punishment from them both. Why? Because I come in second or third or tenth place to a lamb. I understand that other people’s wants and needs are important, I have spent my life dedicated to fulfilling their wants and needs at the expense of mine. I have sacrificed and bled for these same people. I try so hard to expect nothing because when I do get something there is a price.

First they damaged the waterbed wood. Flat pieces of wood shouldn’t have big holes in them when moved unless they are mishandled. That is not fixed yet. Then they cut my HOSE. If I want my bed filled I have to buy another. So I’ll have two hoses, one in two parts. It’s just MY Hose so why bother respecting that? Sure it could be repaired, but only if I can do it myself and I cannot.

The awkardness I feel when speaking to my mother is returned too. The knowing that neither of us is able to say what we want. I feel like I lie when I say I love her. I do love her, but it feels like I am saying it just so she may do what I need and not what she wants for me. I wonder if she wants me to just suffer? What did I do that was so bad? Compared to her I’ve had more successful relationships. Is that what I did wrong? I only married one abuser? Even my latest Step Father turned out to be a rotted fruit on the tree of life.

I want her safe, I told her if she needs to flee him to come to my home, I could make it work. How? Well I expected I would have a bed, so that my couch could sleep two, then there’s the air mattress that can be duct taped, and a third air mattress that also needs some repair. It’s still something. I cannot use the air mattresses, as I cannot get up off of the floor. I know now my ability to sleep at all thus far has been the exhaustion of months of struggle. I am worn out emotionally, physically and mentally but it is never enough.

My pain is being used as a punishment against me for the actions of others. I regret even needing help. If I could have moved without my mother? I would have. If I could tell her to go to hell and know that someone innocent wouldn’t suffer, I would. I instead must risk poisoning my spirit and heart by contact to protect those that still retain their innocence. Innocence I haven’t had for so long that it ages me.

Taking a picture of the cats sitting on me revealed my pain to a friend, I was hiding it but he can see it in my eyes. I can hide so much from the world, but my pain is overflowing. I try to give it less space, yet gas under pressure explodes and I have been under pressure for a long time. The solution to my bed problem is not simple. The screws were lost. Of course they were. The broken wood must be repaired. That costs money. I don’t have it. Again I come up against a world of need. I have tried to keep everything I own and NEED in one piece. I am falling apart at the seams myself, can’t I just have a single night of rest?

I am complaining again. If I don’t let this out then I won’t be able to stop crying. To breathe is pain. To think is pain. To open my eyes is pain. To move is pain. I am alone today as well. My caregiver thinks she has the swine flu, so until she sees a doctor I am alone. Again the urge to fire her so I can have someone reliable rears it’s head but I know this is an over reaction. One day alone won’t kill me right? Well it may but I have longed for solitude for a long time. There is a difference between alone and lonely.

I am trying to reset my pain, my thoughts and yet with my mother the reset brings out the poison. Have fun in Roswell. I said it. What I felt was instead have fun in Roswell with the lamb, while you betray me again. This is the smallest betrayal of my life and it seems the most painful. My body cannot take anything else but I have to push. I already broke again and again. I don’t think I can push anymore.

All the joy I had at being home and safe, at being able to go outside is gone. How can I go outside if breathing leaves me in tears because the couch dislocates EVERYTHING. How can I sleep if the couch stabs me because it broke and I had to put wood under it, which adds pressure. I am not sure what to do. I think I have to do this myself and it is not possible. I am not strong enough. I just want to reset this move. I want to go back to the start and change the way the bed went. I would lose the trust of my sister but my pain makes me selfish.

That’s what is being said to me when I ask. I am selfish for wanting my bed. I am selfish for asking. I am selfish for needing. I am selfish. I know it’s true. it is selfish for me to expect people to give up their time and spend an hour here to give me what I need. Selfish isn’t bad in this case. It cannot be, when my health is degrading. I am not sure I can ever recover emotionally from this betrayal, I was already weak and vulnerable and past my limit. My mother said it herself. There is no reset.

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