Updates and a Contest

I updated the Catnips page. I finally found some people who merit the Accessibility Awareness Award! This award has been gathering dust for over a year. I hadn’t given up on it but I had stopped actively hunting. I found both places in one day, and there is a third that is pending processing. (This just means I am making certain the company approves of their being posted online with a write up, to respect their image.)

Each business gets a subpage in the Catnips section, linking on both the side page or you can find them via the Catnips Page.

This brings us to the second order of business, the contest.

First, what I offer you. A page about you on the side bar, permanently. Linking to your website if you have one, or when you get one, and finally spreading access and awareness of you. If you win, I will also post an interview on this blog about you.

Here is what I ask in turn, I am asking for artists to draw, paint, photomanip, and create one of two images, you can enter with both. Either draw Super Cripple, defending justice and advocating for equal rights or the Cork Screw of Justice! If you want specifics from me, ask, and I will post them here for all to see to keep the contest fair.

If you aren’t an artist feel free to pass this around to someone who is. If you are, I am not worried about skill level, just do your best and have some fun!

Now, the first person to draw Super Cripple did so on request, so, I present access to the art page of a friend of mine. Rich also known as Realmis also known as Soulstarisborn draws some really unique work. I hope someday to buy his comic books. In honor of the Watchmen Movie he offered free Super Hero drawings so I dropped him a line and he drew Super Cripple for me. He renamed her Libra, partly because he understands the concept of isms, and how some words can only be used by people they were once used to Oppress.

Super Cripple as drawn by Rich

Super Cripple as drawn by Rich

Edit: I forgot to put the deadline in. You have until May 1st at Midnight to enter, and, to submit either post a link to a DeviantArt Page or email the images and your personal details to Textual Fury and include the words Art Contest in the Subject!

Post Traumatic Stress Disorder and Advocacy (Trigger Warning)

In conversation with one of my young friends I had a revelation. This was about thirty seconds ago. Sometimes advocating triggers flashbacks while I am trying to function. My mind lept then to other people who have to self advocate through PTSD symptoms. It isn’t always a flash back. If you do not have PTSD it might be harder for you to understand being jerked around by past trauma. Therefore I am going to explain, and this is why there is a trigger warning on this post. Sometimes reading about PTSD or other issue related things can trigger people.

This is not from the DSM (Diagnostic Manual thingy) but is from my experience. I may leave things out that apply to you or tell you things that don’t. The problem with labels is they are often not enough to truly explain what something means. Lets say someone shoots a gun. My first impulse is to be very still, not breathing, and praying that my father won’t make the shot. Even typing that sentence my head went into the land of fuzz and my chest is tight. I am taking slow breaths to focus and clear my mind. The trigger is not always a gun but just a loud pop. My brain is stuck on certain points of the abuse I suffered, it has a programmed loop that it likes to play. I have warning symptoms for my flashbacks now, and can often circumvent them.

My reality is in jeopardy from these loops. the weakest symptom is a tingle, intense fear, sometimes I start randomly bleeding. Why do I bleed? One theory a psychologist offered is somatic symptomalogy. Basically my body remembers, and it reacts so strongly to what my brain signals, that it thinks it is injured. This adds to the pain I feel. The pain from invisible injuries is far from phantom. I feel it. The next step after that is the sensation that I am floating, I disassociate and can see the entire world, but I am not connected to it. Usually I then go back in time. I see and feel at the same time, from multiple vantage points my father with his brand new gun, me and my siblings on the couch. I feel the cold metal of the gun pressing against my forehead. My nose stings with the tears I cannot shed.

The loud bang comes, I feel the heat of the bullet, my skin is burned by muzzle flash and I feel a horrible pain as the bullet grazes my temple. I don’t move. I don’t scream. I just stare up into that black hole, smoke pouring out of it and avoid looking into my father’s eyes, knowing he is going to be angry that he missed. I hear every word he screams again, how worthless I am, how I should be dead and must have moved. My sister starts to scream, my brother too but I can’t move. I look into his eyes and I see the blackness.

I still do not remember what happens next, though I have been told he decided to shoot at my sister, but I pushed her aside. I just know he tried to shoot his children, sitting on a couch that smelled like pee, and nearly killed his neighbor because the bullet went off. The cops were called but I took the blame. I said I was playing with his gun when it went off. I lied, to survive.

When I come back to myself I always want to vomit. Instead I focus on breathing. If the nausea is really bad I will take some Rolaids. Sometimes now, after years of effort, I let myself cry. Usually I manage a tear but my brain has yet to grasp the concept of tears. If I am not at home, it is worse to recover. At home I control my environment, I have a bed to curl up in, two soft fluffy cats, and my Person can go elsewhere more easily giving me the time I need to recover.

When I am advocating and flash back, I never know what to do. I try different things, and usually they work but the vulnerability can be debilitating. I flashed back my first time having to seriously advocate to that scene. That is why I chose to relate it to try and explain what PTSD is like. I wish I had simpler words but none can encapsulate just how much there is to it. Sometimes the flashes are different, sometimes I am still an adult but I am trapped, it is worse in some ways because I still feel the pain but I am completely aware that my world has vanished. I am never certain if I am going to hurt someone. I have before, but it has been a long time.

That first taste of advocacy was so bitter. The cops came, and one fondled his gun and my brain shut down. I was afraid, in pain and exhausted. I was being yelled at and deprived of my prescription because I needed my service animal. The cops even saw Sprite follow her training. When I flash she has three tasks, beyond her instinct to comfort me. First, she signals to my Person for help. Sometimes a conversation can end it. So she chirruped at the person of the day, and I had to form the words, “I need you to deal with them for me. I can’t.” Then, she helps me to sit. I had to wait fifteen minutes for a chair, I wanted to scream at them but I tried to stay calm. I was hyperventilating, they took this as my being dramatic. Then, she moves to my shoulder. Her instinct is to sit on my chest, but she might get flung there, I do not handle pressure on my chest well even when not panicking or flashing. Her instincts tell her to purr, to rub with just her face against mine. This grounds me.

The police threatened to arrest me if I did not leave the facility. I knew enough to know they couldn’t but they refused to acknowledge that I had rights. I couldn’t fight, but I had to. I chose then to repeat the law over and over. I couldn’t think, I couldn’t see their real faces for half the time. All I saw was my father and his eyes that reflected no light.

What can you do if you have PTSD and are an advocate? Here is the how to portion.

Step 1. Before you get to the point of advocating, have a support structure. This is a difficult process, because not every person can truly understand what it is to lose your reality. You need to have someone you trust availible, at least to call.

Step 2. If you have medications used to treat the symptoms of your PTSD in an emergency make sure to carry them with you, to keep a back up dose with your support person, and to keep your doctors number handy.

Step 3. Create a kit of items that help forestall your flashbacks. Nothing works for me beyond my cat. I can give her the signal she is trained for when i feel the warnings coming and ground. This is all I have right now, beyond my Person. No meds, just those two.

Step 4. Remember to breathe. Sometimes if you focus on just breathing you can help yourself.

Step 5. If you flash back during advocacy, try and focus on the responses that do not match the memory. This has worked for others, pulling them out.

Step 6. Advocate anyway. I did get the illegal policy over turned at the Pharmacy where I was threatened with arrest. I had to fight for a long time to do it, but, they relented. It is worth it even though it you might feel endangered or might BE endangered by your flashbacks.

Step 7. If you have to, stop. This opposes Step 6. Not every incident can be worked through. You might need to call your therapist, you might need to let your support person advocate for you. This is not a failing, this is merely the team network that advocacy should be.

I am glad to write this how to. I never considered how important it could be, but, in my mind my broken back, my asthma, and my failing eyes are not my most dangerous disability. The worst disability I have is PTSD. At times during flashbacks I have hurt myself, my friends, and reliving the painful memories can also cost me emotional, physical, or mental progress.

Keep in mind the time you are most fragile is just after a flash back. Some people can be triggered more easily, often it is easier to react in rage. Do not minimize your pain either. It is okay to cry, scream, and sometimes to just walk away.

I have done all of the above. Not every incident with advocating will cause a flashback either. Most of my time advocating I am left with memories of victory. My first taste of advocacy is as sweet as it is bitter, because I still succeeded, despite my unabiding terror of these men. My greatest cause was also revealed to me. I am actively fighting to get the local police trained in how to deal with enforcing the ADA. I want my rights protected, I do not want to fear being put in jail, dumped out of my wheelchair and my service animal being put into Animal Control’s care.

That was the threat, and so often is. My heart goes out to any other advocates who suffer from PTSD. I know each person’s PTSD is varied, some may not flash back, some might just panic. Others might not be able to stop their flashes. You can still advocate. Just prepare yourself as best you can.

Isms, Hisms and Hersms

I read a few blogs on the internet circuit, some of them deal with feminism, some deal with racism, some deal with ableism, and others deal with Fatism. Isms of all shapes, sizes, colors, and one for each of us, sometimes two. Someone was having a sale on their isms when our culture was created, tossing them out like sprinkles on a cake. I am tired of isms today.

I have a great doctor. I will recommend her to just about anyone, for in her office there are no isms, just lists of things to get done. I now have an epipen, a referral for the dozens of undiagnosed whats its, and even a new diagnosis. I also was given the option of advocating for breast cancer awareness. The point was made that with my body being as it is, I have become acutely aware of risks and am in the perfect position to teach other disabled women about breast cancer.

I have thankfully never had breast cancer or even felt a strange lump but I do self exams weekly. I know it is recommended that you do monthly examinations, yet, this is not enough for me. I have relatives who have had cancer in all of their parts. Breast, brain, uterine, ovarian, liver, lung, you name it, and it has had cancer. I also have a lot of conditions, including one that effects my skin and therefore hypervigilance is necessary. Beyond this, what has made my doctor decide I am a great advocate? Self adaptation.

My breasts weigh a lot. Not only is the tissue very dense, making them pert and perky despite their size, but, it makes it harder to find lumps once you breach the FF quadrant. I left that a long time ago. I shared with her today my methods for a successful self examination. I have to adapt to the needs of my body and this means I may lay on my side, I may hang upside down, but, I always make certain to feel not just my breasts in a circular and consistent fashion, but my armpits and down my sides a bit.

I am lucky that I have had strong women in my life. I have an aunt who has had stage four Breast Cancer for longer than I have been alive. This woman has fought, and fought and thrives. She does at times worry her family for her life, but, she has dealt with cancer with no break for over twenty five years. In my mind she is the best teacher I can have about why cancer awareness is so important. Without knowing her, I might not have decided to live during one of the bouts with suicidal thoughts that I went through as a teenager. I might not have begun to battle with myself for proper medical care.

I have a lot of diagnosis, the list grows daily, but, my isms are mine. I am a short, fat, white girl in a wheelchair. I am also blessed with very rare breasts, the sort that women have painful surgery to mirror. I have great hair, great eyes (when they see) and a brain. I am facing daily challenges with ableism, fatism, and even some fetishism. Sexism is a consistent battle. I also face the blessings of people who are better than the isms. I face the knowledge given to me by my fellow females, and now I must learn to share.

Take stock of your isms, be you male or female. Take a look at what you are given by station in life, what you have fought for, and, if you have enough to share, reach out and help someone rise above. I will post about my chances to advocate for breast health. I am even going to start getting mammograms, a need I had hoped to put off for at least ten more years, but perhaps I can come up with a way to make them less painful.

This is hardly a new idea, I am merely following in the path of others who have taught me. This is not an area I had ever expected to be asked to advocate in, but, how can I deny the request when I know that even one person may become self aware?

Whatever Happened to Baby Jane? (Trigger Warning)

Bette Davis, Joan Crawford…A movie about the horrors disabled people can face with an abuser.

This is one of the most wonderful but horrific films I have ever seen. Joan Crawford plays an actress with a jealous sister who not only tried to kill her but is now her only caregiver. Bette Davis plays all of my worst fears brought to life. She forces Joan to either starve or eat rats, her pet bird, or possibly poisoned food. Their maid, a beautiful African American woman, is the hero in this. It is she who sees the potential for something wrong and refuses to leave the day she is fired, instead insisting on seeing Joan’s character. It is she who saves her from embezzlement, being isolated, beaten, and left to die a slow and horrible death. She was cut off too, no telephone, stuck upstairs, the bell for help taken away. It is horrible to watch.Bette’s performance is that of pure evil, in the loveliest of forms.  The genius of this film is that they use clips of the actresses when they were younger. They build the story up and you feel the pain involved with Joan’s treatment.

This film also highlights the incompetence of others, enabling the abuse. The teller who illegally (possibly not at the time of the film being made) gives cash when a deposit is required. The neighbors who ignore the weak cries for help, though they may not hear. The doctors who ignore the patient’s panicked cry when she could under duress be recanting. I will not spoil the climax of the film, but needless to say, this one touched a nerve. There is murder in this story, no one wins. Hope is torn from the viewer and Joan’s character.

Gaslight with Ingrid Bergman is another film that taps on true life abuses. The abused housewife is not beaten, but is instead told over and over until she believes it that she is insane. His greed is what drives his crimes, polygamy, identity theft, and murder among them. He uses the technology of the day to prove to her she is insane. He too plays on my worst fears. He proves to me that men are evil, a blanket statement that feels utterly true while I watch this movie. It isn’t, but it feels that way. He abuses his wife, publicly and privately humiliating her, forcing her into things that were against her nature.This film was so effective it gave it’s name to an entire term in psychology. Gaslighting is the proper term for causing someone to think they are insane. There is more to this of course, but this is the best I can do to explain right now.

Why am I posting about two films made before my birth? They touched me. They burned my heart up and left me shuddering with memories. They triggered responses in me that were deeper than perhaps intended. I felt the trappedness from my previous experience. I felt the worthlessness of knowing I am wrong at all times, and that my only value to others was at their own pleasure, my own wants and needs coming last. I felt the fists of my father in me again. I felt the harsh words of burden.

I am not a burden, I am not insane, and I am free. I had to chant this at times, the wheelchair a prison during the entire time. I could see even one stair trapping me. I can only remember too well  how few people actually listened when I cried out for help. The cold stabbing feeling of being told my case was not compelling enough to prosecute, that no one wanted to protect a child from  her rapist father.

Caregiver abuse is one of the worst crimes I have ever heard of. Some call it elder abuse, but, elderly folk aren’t the only ones trapped by their bodies. Many are vital and amazingly resiliant. I am posting about these films so that you can perhaps try to feel the things I felt, in lesser measure. These films raise awareness of the plights of the hidden victims in this world. Perhaps even someone you know is enduring secret abuse. You might not be able to save them, but raising awareness even by one, can help them save themselves.

Whatever happened to Baby Jane? Be glad you are not so evil, and if you are, may you see your reflection and set your victim free.

Thank You is Sometimes All You Can Say.

This feels strange, to write. I am going to go for a crown. It took me a very long time to become aware of my own value, and through the Ms Wheelchair USA program, I can not only show my own skills and confidence but I get to hopefully inspire other women and men to be confidence. I have conversations daily with my friends, sometimes strangers, and every so often in the mirror with myself when my pain has me grasping for strength I am sure I will not find about confidence and value.

I minister aid to those in need. Today I recieved two gifts. One, is the first donation for my campaign towards the Crown, and the other was a bottle of holywater. I will not discuss my religion here, as I do not think that has bearing on who I am or what I am capable of doing, but I see this as a beautiful thing.

The woman who sent me the holy water is one of my strangers. It was just before Christmas and I went with a friend to the bookstore. Meandering we agreed to meet at the coffee shop and I went rolling through the shop. She looked happy, except her eyes. I remember how utterly void of joy they were, and she couldn’t seem to stop staring, so, I struck up a conversation with her about the books on the table. She didn’t take long to open up to me. I remember my utter shock at her telling me she was going to commit suicide. I responded before I thought with, “Why would you want to do a thing like that?” After an h our of conversation we hugged. I rarely hug people because it pains me, but, she needed a hug more than anything else. She told me she wanted to send me a package and after meeting me she couldn’t kill  herself. Our conversation touched on the spiritual, but mostly her need to be someone. She had forgotten herself for years to be a mother to a disabled child, and now her own grand child was disabled and she couldn’t fathom happiness for anyone. Today I recieved a thank you card, and the bottle from a local blessed spring. It reminded me of my power to inspire people. I did not need a reminder to know I am good, but, the reminder that I can touch people by being who I am was a surprise.

I then talked with a male friend of mine who often forgets to love himself. For years he has battled this and tonight I shared with him how I learned to love myself. I started telling myself three times a day in the mirror I love you. That was all I saw myself, when washing my hands. Then, I wrote on my stomach, legs and anywhere that was invisible to others, I love me. I love me. Over and over. It took a long time, then I started to believe it. Mike and I met over something daring, I did something that I might be ashamed of now, online as many others do. The evidence is thankfully washed away by server errors and time. I had made myself do something out of character, to see what would happen. I never went back in my shell. I instead became a real girl. No more hiding, no more sorrow. Shortly after this I broke my back, and had to resume chanting how much I love me. I still do some days, to help myself along when the pain burns me through and I forget that I am more than a disabled chick who can barely walk. When homeless Mike fed me, he even helped pay for Sprite the Service Cat’s vet bills. He is amazing, and, I hope that he remembers that. He reminds me of who I used to be, and even admits when he is wrong. A very rare individual whom I appreciate. He is who I turn to when even my well worn tactics fail, he can always make me smile and is the Brother of My Soul. He is greatness himself, and proved to me, before any other male could, that not all men are evil. Without him, I would still be fighting daily to not feel afraid in this world. Instead I feel love and warmth even in my darkest hours.

Then, I went into my favorite IRC, dedicated to graphic programers who make animal skins for IMVU, a 3D Instant messenger and started talking with a brilliant young woman. Her name, posted with Permission, is Weesha. We talk often, though the last few months before I started this blog that contact was rare due to no internet connection. I told her of my discovery, just before the deadline and without enough time, this year, to dedicate to my new goal of Ms Wheelchair USA. We brainstormed for ways that she can help me to spread the word about MWUSA, to reach my goal, and so that people can learn about my Platform. I haven’t finished fine tuning the platform yet, but tonight she spread the word far enough that the first donation was made by Jen, a person of similar interests, taste, and a person who deserves a very special thank you. My wonderful day started off in tears and has blossomed into a garden of delights.

I just want to say thank you, these people are beyond special. May any who read these words have as dear friends and family as I have. They feed my soul, they nourish my dreams, and wish for the dreams of all to come true. They deserve as much as they give. Each one has their hopes and dreams and this, dear readers, is my hope for them.

For Information on Ms Wheelchair USA please visit their website. There you can learn about the current Crown holder Beryl Holzbach.  I saw some of her youtube videos today and was brought to tears, mourning what is, and hoping that her advocacy brings great strides to the medical field.

The Rape of Innocence (Trigger Warning)

Literal. I lost my innocence, as defined as physical virginity to my father. It was rape. It was never consensual. Incest is bad. Typing these words is extremely difficult but my day has already been one full of tears, therefore, I am going to go with it. His excuse for rape, his reasoning that made it A-Okay to violate, subjugate, and to hurt me sexually was this. “You look just like my mother.” I was four years old. Today I was triggered. This isn’t an easy thing to admit, and I feel uneasy each time I come across things that remind me of him, and at times my PTSD is triggered by a harmful thing. Today I was already in a bad way due to pain, some of it is residual effects of my abusive childhood.

Some of it comes from feeling violated at having to see another doctor, since my service animal makes me unworthy of another. Some of it comes from this post on Feministing.com. I do not care that this game came from Japan originally. That does not make it better. I do not care that their society has a history of subjugating women, so surely all of their rape fetish bull is perfectly acceptable. Not to me. I want to reach out to the women of the world, for an uprising. It is in this moment that I state I am a feminist, in the definition that states I am pro women’s rights and equality, I am pro disabled equality, and I am pro mental health equality. I want to be healthy, I do not want to feel the edges of Victim burning at me again and again when I skim the internet, go outside, or even sometimes when I try and think of a happy moment. It is always there.

I am not the cause of my own rape. How can I be at fault for it? Yet games like this propagate the victim is at fault mentality. I remember when I turned my neighbor in. He was molesting me during the same period when my father decided to rape his mother allegory. I remember being asked by the prosecutor, at the age of five, if I wore short skirts to turn boys on. I didn’t even know what that meant. I remember, however, the after effects. I rejected my body, myself, and I tried to become a boy.

This attempt at maleness included trying to cut off my breasts when I was thirteen, shaving my head repeatedly (and discovering that my head is very lumpy) as well as rejecting my identity. I could not be Rebekah. I had to change my name. I did, as an adult. I found a name that fill sme with the sensation of security, health, and the desire to be happy. I do not cringe when I hear my name anymore. I never out grew the after effects of being raped. I was repeatedly assaulted through my life, and this was also used to overshadow real medical problems.

When I was eight years old my mother and father sent me away for hypochondria and Bulimia. It took adult hood to realize I never was bulimic. I also have a great deal wrong with me, and none of it is in my head, except what neglect and trauma put there.  All of my current illhealth cannot be attributed to the childhood neglect, but, a majority can. I am an advocate for anyone who needs it because there is so much to choose from. How do I choose between mothers and their need for proper nutrition, childhood health awareness, Celiac Awareness, Rape is Bad Mkay awareness, and the awareness that as a wheelchair user I need a door that is wide enough for me to not scrape through.

I am in tears today from pain, physical and emotional.  I am a woman. I am 24 years ago and it has been 11 years since my father last raped me. I have since seen him and he cowers with fear, he actually pissed himself when he saw me using a walker and fled in terror. I am not someone who causes fear but, I am a survivor. I was a victim and when I tried to say something, when I found out I should, I was denied that right. The district attorney felt that my case was not compelling enough because I was a mere child and had been sent away by my rapist for not being exactly what he wanted. I was denied justice, and I know my assailant is out there.

Knowing he is afraid of me doesn’t take away from being afraid of him. It does not take away from the sensation of the little hope I had being crushed because I wasn’t worthy of the time to take a bad guy off the streets. It doesn’t make it alright.

I hope whoever reads this finds either peace, awareness, and the understanding that if they themselves are a survivor of rape, abuse, or anything at all, that they are worthy. I understand as an adult why so few women report rape, when it is always the Victim’s fault. Eventually I will write more on my experiences with the mental health system as a child. I will write about my diagnosises, and the secrets that I am not sure my biological mother wants shared online. Someday she will google me and will discover that I am not the all accepting child she still perceives me as. I do not take the burdens she places upon me. I leave them behind.

I was about to submit this when I came across this in the comments on Feministing.com, another link. Amazon pulled the english version of the game, though it is still availible elsewhere. I am shaking with relief and rage. How do we protect our children when things like this pervade? What is to stop this from normalizing rape in our world? It might. It might not.

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