I am Angry

I became aware of my anger today. I wasn’t aware how angry I was until trying to explain my back injury. I often tell myself I am not angry and try to behave with altruism in mind. I am pissed. Right now I could cuss! I have felt tension in my neck lately but, there are so many reasons to be tense I couldn’t figure out the why.

I am angry that people take disability as a sign of dramatics. I am not overly dramatic when I do not want to go grocery shopping. I do not want to face people. I do not want to treat something else that is medically wrong with me the doctors way, and choose to abide myself. This doesn’t make me overly dramatic. I have reasons for each thing, and none of them are dramatic.

None of my disabilities are in my head. As a young disabled woman, I am often told to get up and walk. My wheelchair is used as an excuse to shame me. It fails, but, I am angry. I am tired of explaining why I am in a wheelchair. Why is it not acceptable to ask someone, “Why aren’t you in a wheelchair?” Why is it that being seen as abnormal means people perceive weakness?

I am not weak. There is no weakness left with in me today. I might be weak tomorrow but right now I am feeling the roots of the earth. I am feeling ancient and mighty. There is a cost at this anger, but being aware of it means I can try and let it go.

I am specifically angry at the word Vanity today. Why is it vain to want to prepare for the risk of my hair not coming back with scar tissue? Any other person I know of seeking out ideas, pricing wigs, and other ways to hide scars would be assisted. When I ask the question the shop keepers look at me, look at the chair and ask why I bother. This is not right.

I want every bit of perceivable normalcy that I can obtain. I do not want people to see a big scar on my head, then my face. I want them to see my face. It is hard enough knowing that they first see my wheelchair, then my service animal, then my breasts, then my face. It takes so much more for a person with a disability to be seen as a person at all.

Why does it take extra brilliance to be an equal? Why does it take harder work to make ends meet? I am angry about this. My rage burns slow and deep. I am trying to change things but my fear is that I will fail. I am starting a professional public speaking business, and I am hearing the voice in my head whispering, “You will fail.”

I might. I don’t think I will. I know I will face discrimination, I will have to enforce the ADA wherever I go. I fear though, that I will be paid less because of the chair. I fear that people will not want to hear me speak because what good can a chubby chick in a wheelchair do for them? I have to push these aside and feel my anger, so that I can push on.

I am angry too as I realize that bullying doesn’t end with childhood. I am disappointed as that delusion fades upon the minor scruitiny. I will write about that soon. Adult bullies are just as bad as the children they raise. They are the ones who teach children cruelty. I run into them often.

I am proud to say that my lack of weakness shows more often than anything else. I am a very strong and talented woman but, what about those who have not had the chance to flourish? Yes, I fought tooth and nail for every bit of normal I can project, for every success. Not everyone is strong enough and most children with disabilities need more care than I recieved. How much stronger would I be if I had been cared for? I think I would be a million times stronger.

I am a butterfly with broken wings that has flown again. I just want to fly without it hurting. I want a moment of peace. I want to have one day where I do not have to prepare myself for the onslaught of the world’s prejudice. One day of peace. There is no such day. It might happen for some but as a person who cannot hide their disability, as a person who has a disability at all, as a woman, as a bisexual person, as an autistic, as a person of any minority knows… that day of peace is one that you fight for and taking it can cost you everything.

I am so angry, but I will not let my anger interrupt my path. I will not let it mask my fear. I will instead use it as passion to continue fighting discrimination. I will continue fighting for my freedom. I will continue fighting for your freedom. Everyday more people become disabled. Everyday more people find their rights are a myth. Everyday people die as a result of discrimination. Everyday in the United States, where I live, people die of starvation, people become homeless.

I am so angry. The anger comes from an emotional pain that leaves my heart throbbing and me in tears. This pain is for those who suffer. Part of it is physical pain too. My back aches, my muscles spasm, my ears ring so loudly I can barely hear anything over the din, my fingers hurt and dislocate, and I grow angrier because I don’t know why I feel like this. I shouldn’t lose a day to snow. I shouldn’t fear going outside, because each time I do my saftey is threatened by ignorant fools.

The cost of living with a disability is so high. I am tired of paying it. I am tired of feeling the terror of actually working. It makes me angry to feel fear like this. What if I do not earn enough to pay for my medication? What if I lose my SSI and become homeless? Will my Person and Caregiver both lose their incomes if I work? It effects them too.

I am tired of being angry. I am tired of worrying about appearance, yearning for enough money, proper clothing, and the ability to do what I want when I want not when someone else’s whim allows. I am far from alone in this anger too. Most people feel a form of it.

I thirst for the waters of freedom. I gasp for the air of life. I reach for it, but it is just out of reach. I feel the wind beneath my grasp and know it brings another storm I must weather. This is living. This is a life I did not dream of or foresee. I was unprepared yesterday. I was unprepared today. Tomorrow I will be prepared.

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Over Reacting?

Am I over reacting to the news about the new Rogan movie? I made the choice to make my friends, male and female aware of the rape scene. Most of them either didn’t care or thought I was over reacting.

“Don’t get mad.” “I don’t care.” “It doesn’t effect me.” My choice to become angry earned me dozens of people telling me my upset is invalid. The movie looks funny to them. I have yet to find any Rogan film actually funny, but trying to warn them to protect my friends has only gained me treatment that I would never offer them. In trying to explain why a date rape scene as comedy is not funny, I am told instead to stop over reacting.

How is wanting to protect someone an over reaction? Yes I asked for a boycott but I didn’t ask for proof or an answer. I didn’t explain well, when being told there is no sexism in movies like Knocked Up. There isn’t? I am not going to list the instances, unless someone really requests it because that will take me hours. I do not have the time right this second.

I am tired of spoon feeding people answers. I am tired of being cussed at, told to not have an opinion, and treated like garbage. I am tired of the temptation to cuss back. Why should I be cussed at when I tell someone we need to change the subject four times, and get angry? Why are my emotions invalid?

I am not over reacting. The idea of paying to see a film and having a very real trauma treated as a joke disgusts me. The idea that any actor or actress would choose to portray these roles disturbs me. “Don’t Blame Rogan.” Why? Actors and Actresses are allowed to speak up, especially established actors. Rogan qualifies. He and Ferris both could have said no. Neither did.

Why shouldn’t I react? Why should I passively sit back and let it go? Why do I have to manually link, explain, and define everything? What happened to the freedom of thought? I know those of you reading this actually do think. I am sorry for the blanket questions, yet there is a huge gap out there.

Does age really invalidate the need for critical thinking? I am not sure that my brain qualifies me to try and guess what others think. I don’t really know what the development of a normal person is. Trauma alone changed my needs and the skills that come with survival. Is it wrong for me to expect a person who is well aware of their enviroment and the abuses that are surrounding them to free themselves? Why wait it out? What good does that do you? What if you do not survive the waiting period?

Is it wrong for me to find someone saying that my choice to not curse, even when extremely angry, is a superiority complex silly? I don’t think so but what about the typical person? I use the word typical here to mean someone who is not Autustic, someone who is not a sufferer of abuse. Someone else.

Why is it wrong to react with passion to something that should be criminal? Why is it wrong to expect someone to at least take slight notice of the patriarchy? I always have. I have always been aware of the sexism and pecking order in the world. Aside from choice how can you be blind to it? How can you not see what is slapping you in the face daily? What makes you choose that?
Yes, there are a lot of questions here but, I think they are valid. Most are hypothetical, but if you can answer them please do.

Also, I am requesting that you boycott the new Seth Rogan movie Observe and Report. Imagine paying to have flashbacks? That’s what has me prickling like a hedgehog. I can’t really imagine paying to watch any woman act like an under educated nitwit either, but, some people find sexism and degredation funny apparently.

One last question. Is it wrong for me, to regardless of age, expect the same respect I offer people by not cursing? Why should I allow someone to call be names just to satisfy their immaturity? Does being a teenager mean I should have higher standards or should I lower them and let people degrade themselves? Should I let the people in my life treat me like crap because they expect me to allow this? I choose to say something when someone curses at me, but, each time there is always just another name. Do I cut them out as I have other people who hurt me? Is that an over reaction or is it just temptation for self preservation?

Damaged Lives (Trigger Warning)

After the end of this paragraph is an unedited account of my Death. This post contains a Trigger Warning even for those without PTSD. There are graphic descriptions of rape, violent abuse, and I am sharing the day that has yet to be topped (and hopefully never will be) as my worst day. Comments for this post are closed, due to the difficulty in even writing this out. I also am going to take a small break before posting again. This will likely just mean a single day, so check back on Tuesday.   One final note. This is the set of memories that when remembered caused my first experience with being devalued and victim blamed.

This last addendum belongs before the break in my opinion so, here it goes! The DA when the report was filed admitted to me and my guardians that due to the legal wording the Statute of limitations was in effect, and he could arrest and prosecute my father but because I had a history of PTSD he didn’t believe it was worth his time to try and that I was worthy of justice. The Worthy of Justice bit is his. It was my fault for being traumatized. I took this to mean I deserved the abuse. His choice to devalue me as a person and a victim nearly killed me. What was the point of living in this world if there was no justice? It had been hard enough to say something about this to a man, to admit that I was a dirty slut as I saw myself, then to be told my attempt to do what everyone says is the right thing, all the TV adds, all of the adults around me, and even  he himself pushing into my head that I had to tell when someone hurt me… to do their right thing and be told I was not worthy of the actual right thing damaged me just as much.

I have nightmares of that choice too. Even writing about it I feel the emptiness and pain of rejection. The only reason I did not give up? My roommate in the facility told me she would kill my father for me if she ever had the chance. We made a secret pact to kill our abusers.                                        Continue reading

Saturday Silence

I locked the cats out of my room. It was a moment of great opportunity. One was in the litter box, the other was chasing a lazer beam up the wall. The door was shut and with that I curled up, letting myself drift out on waves of exhausted sleep. I crashed early. Due to years of insomnia six hours is good, but, the peace of living in safety, with someone I love, and knowing I can shower whenever I want? I haven’t had any trouble getting to sleep here by four AM. It still bothers me when I have to be up at eight and I am staring down the clock but I can function for three days on four hours. It is nice to not have to.

I dreamed some really interesting stuff last night. I had a giant pink robot a bit like Voltron but, this one had Catnip Canons and Anti Allergy Grenades. In my dream I could destroy everything I was allergic to. I did, and became the greatest super villain ever! I kept giggling in my dream because it was just too fun to blow up cucumbers, though, eventually everyone else was just as hungry and bored with my diet as I am. That is how bored with my food I got. I dreamed of destroying your food, so you could share my boredom. In the end I re-engineered foods that we could all eat, though most of them tasted like tea and pomegranates. The Pomegranate is the one food I have no issues with.

I could live on pomegranates alone, if they were a year round fruit and not so expensive. Their rich flavour, followed by an improvement in pain level, a need to not take pain meds for two days if I eat a half, a week if I eat the entire thing, and the grand finale? No allergic reactions what so ever. This is the fruit of my dreams in my reality. I want to visit them in their native territory someday, gently petting the tree trunks, talking to my future dinners. Celebrating them in their nascent state.

It is quiet this morning. My neighbor is not vacuuming, though that is actually cause for alarm due to her constant need for clean. There are no screaming children. There are no car alarms. I did not wake up with random Batsignals on my forehead, and locking the two cats out only made them super snuggly. I like quiet. Apartments are rarely quiet. Upstairs neighbors walking, the floor/roof creaking as they do. It always sounds like they will fall through squashing me into oblivion.

I didn’t hear the whirl of technology either, just this pleasing idle. Despite the upheaval of yesterday, there is peace to be found. I also do not have to deal with any doctors or idiots today. Tomorrow I visit my mother, and although that will be exhausting, it is a day of peace. We’re eating at her house, I am picking up some gear for a speech, and I get to see my beautiful siblings. I ask permission before posting people’s faces on the net, but if I can get it I wish to show you my gorgeous sister and my super tall military minded brother.

B, my sister, is tall and graceful. She has the body for modeling, and not the plus size modeling that I did. She is the epitome of desire set by the media at this time. She is not trying and often is embarrassed and teased because she looks like a barbie doll or a porcelain doll, depending on her outfit. She has long platinum blonde hair, big hazel eyes, and will do greater things than modeling for her career. She chooses her brain over her body. “Kat, I am pretty now but what if I fall off Dixie,” Her horse,”and wind up in a wheelchair like you? They don’t want wheelchair models.”

She desires security over fame and fortune. I wish I could tell her that it could never happen to her but our mother almost broke her back falling off of a horse, and B knows all about Christopher Reeve. My grandmother screams it at her every time she finds out B has a horse. She might actually be forgetting, but with her it is hard to tell if it is just a desire to scream at B.

A is my dreamer. I am a bit possessive. They are my A and B, and I do not share well. He is nearly seven feet tall, and has recently begun to pursue his dreams by joining the ROTC. He looks good in uniform, but, for some reason when he wears the uniform he actually looks his age. He just turned 16 and has his license. Be afraid. He is prone to day dreaming and with undiagnosed medical issues, there are consequences. His father forbade diagnosis when he was younger, trapping him with a future that is bleaker than he realizes.

In my Saturday Silence, as the world drifts on, sleeping late today, I have a clear view of the future, of the past, and of the moment. I meditate on things, and I know that yesterday merely gave me something else to fix. I am no longer angry about losing out on my dancing, teaching, and other physical careers. I have something more powerful than what I would have had if I continued on the path of physicality.

Dancing makes a difference for some, I could someday dance in a movie or a music video, I could have a great career. Advocacy gives me time to breathe. Even when the pressure is on and there is fear fueling my fight more than strength, when I advocate I know exactly how much power I have. All of it. I do not feel weak when I advocate, no matter how tired I get. I have a sense of purpose that is hard to match with other goals I have had. When I advocate it is with the knowledge that I am changing the world. One tip of my hip, a slight twist of my leg, a rolling display of muscles and the freedom to shake and move, that held personal power. It felt beautiful. I felt deliciously free.

One phone call to the Governor. One conversation with a reporter. One word of support offered. One person made aware. A life of passion. This too holds power but it is the power of change, the power of equality. After sleep, after finding that I am not as alone as I felt, I am empowered in my moment of silence. I play out the moments when I nearly failed out of fear, the errors others made and that I made in this fight. These are armor.

If I recollect and prepare the times when I have been threatened, I am prepared. It is oil on my armor. When I remember what words worked, that is sharpening my sword. Saturdays of silence are not silent. They are just times to reflect and prepare for the next battle in this war. I hear the birds singing, and I know that the fight will be long and hard. I also know I will win. I may cry, I may bleed, I may wish to flea, but in these moments of solitude with my peace held in my heart I know too that nothing can stop me. I am changing the world with every word, every breath, and it is too late to go back now. The world is already different because of actions that I have taken, that you have taken, and the actions of the future will just give us more strength.

Sharpen your swords, care for your armor, feed your companions. Feast and Celebrate. Enjoy the moments of peace and silence. We are at war. We are an army, an international one at that, and nothing can stop us for we have nothing to lose and only the world to gain. Lets rule the world!

Do You Want Something From Your Father? (Trigger Warning)

The title of this blog is a question I was asked by my mother. Do I want anything from my father’s estate? I am not sure what is left, and if I take something is it really going to make me feel good? I am not certain yet. I am debating in my soul. Not just my head or heart, but this goes soul deep.

At times people ask for more information on what it is to be a Person with Disabilities, and I will give it. A request came my way for more information on abuse for women with disabilities, they wanted a personal story. I probably should have linked them to this blog, citing it as a resource chock full of detail. Instead, I posted an account of abuse, spanning my birth on through the beginning of this year.

I began to cry afterwards. I am having one of those days. I couldn’t sleep, I woke once an hour, and not always because of my own pain. I forgot that I could take pain medicine, the cost of the fight to obtain them, and had to give myself permission. So, I sat here sobbing away while sharing, for the greater good, a chunk of my soul. An injured bit.

William was destructive last night too, triggering more of my emotional response. He broke the mini blinds that the apartment complex requires via the lease, he then came over and tried to claw off a chunk of my breast. It turned out he hit my nipple but I couldn’t tell. It hurts badly, and yet this time I did not smack him. I instead hissed like an angry cat and he fled.

My person is also frustrated with me. I cannot stop snarling today. I just want to shrivel up and not exist. There is too much pain. It is too big and I refuse to subject myself to it, yet I cannot escape it without death and that means of course that I must endure. When I read novels they rarely mention the challenge of endurance when in pain.

I know too few authors are subject to disability to understand the complexities. Still, sometimes they get it right, and not always through the understanding that comes with experience. Sometimes, they may be empathic, or just those with massive amounts of commonsense.

I will likely write more later, but, I feel my father’s hands stroking my hair, fondling my body. I can hear his voice telling me how no one else gets to touch me but him or I will go to hell. I can feel the bile in my throat as he degrades me, breaks me, and I do not know how to st it.

This is a side effect of the PTSD, but I can see the reality this time. Still, the sensation is painful, my body is in agony already, why does my mind follow? Why am I haunted? Will it get worse if I do accept something from his estate? What if that something could help me with my own disability?

I am still not sure I have accepted that I had an effect on his last years of life even if neither of us knew it. I hate him, at times. Not just a minor loathing but a secret hope that he goes and burns in his own hell. Then again, it is possible that he did live in hell for a long time. A slow burning death, a bad heart.

Do I have a bad heart? No, but I work at it. I work at having a pure mind and soul, things he put into my head still mocking me when I fail. I work too to keep my body healthy. He took so much from me. Can I take from him? I really do not know.

Medicalization of Humanity

I have spent my life being a patient. Most people do to an extent but a lot of non disabled people do not wind up in a doctor’s office monthly. Those that do are usually seeing a psychologist. I have been talking to my biological mother again, because she needs my help. In exchange for helping her with training her dog to be a Service Dog I asked for payment in therapy. Not literally, but, figuratively.

I think she was startled but, I am wounded emotionally. I am so angry at her, and I need to forgive her. I can’t do that without working out some of the issues and I want a mother. Some of the things that have angered me include over medicalization of my emotions. Being human has never been an option for me, despite the obvious inability to escape it.

From reading my blog you know already I have a history of abuse and chronic illness. You might have also noted an undercurrent of loathing for labels, though I am working to embrace mine. Some labels cannot be avoided. After becoming an adult I went and paid for a psychoanalyst to evaluate me. I wanted to know if, without my mother’s influencing them with her fears, I was really as insane as everyone told me.

I did this because I didn’t feel crazy. I felt depressed, but, not crazy. I did not think I was becoming a sociopath like my father. I put effort into fighting that, and won. What I did, to help prevent influence in this doctor’s office by my past was withhold information. It took several calls to find a doctor willing to work with zero patient history, but, the woman who did the test with me understood my need to find the truth.

In my childhood I was diagnosed with Borderline Personality Disorder, Bipolar, Depression, and a slew of other labels that never quite fit, including Multiple Personality Disorder. Most of these get renamed with each DSM, and with number V coming out (I don’t know my roman numerals and I am not looking up the translation, it is either four or five), I am again feeling pensive.

Part of it is the sudden ability to cry. For the first 23 and a half years of my life I could not cry without bleeding. I cannot seem to suppress my tears anymore. Again, some of this is because of effort though the effort sends me receding into myself at times. With that test, I was freed from the stigma of most of the labels I had received.

Those that stuck are depression, lower case because it is something that is perfectly natural considering my family history and personal history. It also is not something I will ever treat with pills again. Another is obsessive compulsive disorder. I need the world to be in order, and this comes from my past. Anything out of place could cause a beating. My disability has helped me with this. I cannot order the world, and I am healing because of it. I had no way of cleaning my room for years, it was horrible.

The test also helped hint at something else, I am Autistic. I have Aspergers. I haven’t told many people, just my Person and my mother. Now the world knows. I feared the Stigma of Autism. My best friend (All my friends are my best friends) Maxis is autistic and helped me to realize that my Autism just lets me be me. It has made things more difficult in some ways but I have adapted, and am extremely high functioning and no one can tell. My labels are not readily visible.

I also am an adult with Attention Deficit Disorder. I adapted as a child, after taking Ritalin. The Ritalin made what turns out to be a side effect of the autism, my extreme sound sensitivity, worse. I couldn’t stop screaming, all my pain was there, and of course I turned out to be allergic to it. My mother pulled me off of the drug despite my institutionalization. I recollect hearing her voice through a closed door, I was curled up in a corner in the Time Out room, being punished for not brushing my hair. My mother had come to visit and I had cried telling her how loud everything was, and hearing her tell the staff off for drugging me was the best sound out of all of them.

I am still sound sensitive. I can hear the sounds most people tune out. When a computer is turned on, each second I hear the scraping of the needle in the hard drive. it is deafening. I have five running right now, and have adapted to the cacophony of my world by adding more stimulus. I have yet to find true silence, even with a power outage but that is the best peace ever. Still, having mental distractions helps me cope.

I find it a bit ironic that being nearly deaf in one ear has not decreased my ability to be overstimulated by sound. Overloading is so far what works best. The great part about hearing everything is hearing my cats purr, when no one else can. Sometimes that sound is the best in the world. My nerves have always been just as sensitive, my skin feels too much and that can cause even the touch of William’s paw to have me crying out.

Still, in my life more damage has been done by mental health practitioners. I have been supposed to find a therapist for almost a year. First, I used the excuse of insurance, which did not cover without a copay. Then when that was fixed, I used the excuse of truth. I do not want a Therapist. I really hate them, and do not trust them. I am aware of my need now, to find one. I need someone to work with, so that I can help myself and my mother.

I remember my first Therapist. Her name was Candy, and my father upon finding this out asked if my Mother was taking us to see a stripper. He thought it was funny, I thought it meant that the doctor tore up paper. Instead, she told my mother that she could change my father. She told me and my sister, we all shared the sessions, how women must learn to cook and my bruises and burns, were just the signs that I was going to be a great wife.

I never believed her. My sister did, and when I told her at night that I thought that Candy was insane, she told me that she is a doctor, so therefore I must be wrong. I kept it to myself but at the age of four I just told her things I thought she wanted to hear. My father was sent to a mental hospital after attacking a man, or something like that a year later, and my mother did not let him back in, despite Candy telling her we would all go to hell. I think the woman let her religious tenancies effect her job.

The next therapist I saw was the one who had me put on my first Antidepressant. I was almost eight, and Doctor Baca decided I was depressed. Likely he was right but he never let me address why. He wasn’t a listener but talked about how I needed to try harder in school, how I needed to bathe more, how I needed to do things to be popular. If I got a word in edgewise he used it to shame me. I had begun to develop breasts, and upon relating the nickname I had at school, because my bra broke in Phys Ed, he agreed. I was slut shamed. The Nickname is not related here as it reveals the name that I have shed, but it contained the word whore.

The list of bad therapists goes on and on. No person is perfect but even the best amid them just wanted to label me. Many tried dangerous tactics and all of them post Doctor Baca insisted on medications. I took so many pills, and many had adverse effects including causing me to gain 100lbs in a month, but, the pills were more important than the girl. Each doctor took any crying as a sign not of emotional release but of depression. If I was happy at all it was a manic, if I was angry it meant I was psychotic. I lost touch with emotion itself.

My response was to try and kill myself, though, I couldn’t figure out how and asked my mother to help. The first time wasn’t the cause of my institutionalization, though the threat was leveled. I just didn’t comprehend it. The suicidal ideation passed and yet my brain warred to follow the rules that were leveled at it. My needs were far from met, and my Autism being undiagnosed meant I had no help. I was adrift, and lost.

The worst weekend of my childhood came then. I was beaten to the point of nearly dying, and denied medical treatment. There is much more to that story but it will not be blogged about, my fear of being attacked over it is too strong. My entire life was changed at that moment however. That is the hinge of life for me. That too, is when my personality changed the first time. The direct result of head trauma. That is the weekend where the first breaks in my back were had, my Xrays showing as an adult that when I was about eight I had four vertebrae break in my back, two in my neck. They healed well enough thankfully but I was in agony, I was alone, and I knew that I should not trust anyone ever again.

I was also threatened with food. My father had decided I was fat. I wasn’t yet, I was perfectly healthy, but he decided I should stop eating. He also instructed me to cut myself, though I did not manage that one. I did manage the eating disorder. He had told me too, if I did eat he would know and would beat my mother to death. I had to protect her. She always has needed my protection. So I gave up food. It was not hard, due to the pain.

Pain is the best appetite suppressant I know of. It kills the urge to eat in me, and is the reason for many people becoming malnourished with access to food. I lied to my mother the first few days and told her I wasn’t hungry, but, then she told me my refusal to eat hurt her. If I didn’t eat she’d surely die. Catch 22. No matter my choice she would die. I decided to eat, then, I would just throw up after dinner. Then my “daddy” couldn’t kill her and she wouldn’t know so she wouldn’t die.

This worked for a while, and my stomach stopped hurting and my skin even healed from some of it’s symptoms of allergy. I was however, bulimic by the diagnostic standard. No one asked why I was bulimic at the tender age of eight. My family didn’t figure it out very quickly, but, eventually they did. I am sure I had a decline in health. My memory was very foggy, and I had begun to have bursts of rage. Perhaps this came from the head injury, the painful seizures that I had started to have, hiding everything, or the burden of the household falling to an eight year old girl. It could even be the bulimia, the overdosing of drugs by my doctors, or, all of the untreated genetic ailments.

My stepfather had begun molesting my older sister, he was too afraid of me to hurt me, so I shaved my head. We discovered then how misshapen my skull is. My skin had begun to split on my breasts, and I thought if I was a boy then I would always be safe. I was of course unaware of the stigmas that were to come, but, I thought being male would make it all better. So, I tried to cut my breasts off. I failed, and for that I am grateful now. I am not sure what the therapists told my mother about all of this, but, from my perspective no one took into account that something might be wrong physically or that the abuse took a toll.

I was taken to a hospital, dumped off, and my mind and body were invaded. I do not know why these doctors thought a physical examination was necessary my first night there, but, they gave me a complete physical, including a pap smear. There was no explanation, but, I lashed out. My first night there was spent in the padded room of solitary confinement.

Diagnosis were tossed at me like darts at a board, seeing if one could fit close enough. Most of the girls there were suicidal, all of them had been molested or raped. Each of them had been battered, and all of the children were in pain. The staff were not all kind. One of the male staff would hit me, but I never said a word. He told me if I did, he’d see to it that I did not get to see my mother ever again.

My hair is also complex. Only half of it is curly, and this is all in the under hair. I had to bathe twice a day there to pass their cleanliness challenge, because of the Hidradenitis Suppertiva causing excessive sweat. I was allergic to the shampoo and cried each time I bathed. They gave me more antidepressants.

I mentioned once, how much my body hurt to the doctors there. I was quickly learning though, that all they wanted was for me to suddenly become a normal child. I wasn’t sure what that meant but noted what the children who got to go home endured. They could not yell, they could not scream, they ate every meal but not seconds, and they were nice all the time, if the adults were looking. I began to master the system. This meant no crying, so I got even better at being a machine. I let my world fall into their system of order.

I did go home, but, I couldn’t keep up the act of perfection. So, the cycle hit over and over again. I still couldn’t eat but was gaining weight. I was shamed for it. I was stuck then in either my mother’s clothes or sweat pants. Time passed and I was a teenager. My first period came on the eve of another hospitalization. I thought I was dying. The inability for people to discuss this function without clinical talk or shame had cost me knowing that this was going to happen. It didn’t help that my mother had told me all about how evil my Uncle Verne is. Verne is a rapist, a pedophile, and of course he would surely be out to get my mother’s children.

She had me stay with my grandmother while she made arrangements to have her crazy and devalued daughter locked away. My uncle called. Grandma had left me alone, despite my mother’s very valid fear that I would kill myself. I was considering it staring into her medicine cabinet when the phone rang. This was before caller ID hit that small town. I thought it was my mother. I thought maybe she had realized that the kids at school were mean, my hands hurt, and so did my stomach and I just couldn’t live like that. It was a strange voice. His voice was raspy, cold, and hearing me he sounded suddenly excited. I talked with him for a while, until I realized who he was. We didn’t trade names but when he called me by mine, I asked if he was my uncle.

There it was again, that duality, I was told by my mother that upon pain being dealt my way, I must never be rude on the phone. I was also told I must never let my uncle know where we were, who we were or to hurt me. I was terrified. Then, I felt warmth running down my legs. I remember what I said, “I am sorry Mr. Uncle Verne, I have to go now. I will tell my Grandma you called.” I hung up and went and sat in the tub crying because I was bleeding.

I thought that I was going to die, which, saved me from my suicidal thoughts. It was partly there because so often I was asked if I wanted to die. The idea wasn’t original to me, though I may have wound up having it anyway. I am not blaming the doctors, as without them I still would have died, I am merely questioning their methods. For every emotion there was a label, a drug, and a punishment.

For my fear of my period I was told I was a misogynist. I hadn’t even known what that was, but, upon being told I hate women, I thought it apt. At that time I wasn’t aware that self hatred is not the same, and the over labeling and medicalization was helping me to dehumanize. I was instead a child trying to make people love me. At this time my memories of my Sensei had been suppressed, and yet the mark of them remained, I was subconsciously seeking that same love.

The rest if my timeline, up until the Ranch, mentioned in earlier posts, is a blur, a mix of self hatred, cruelty, and a few bright moments when I went off the medication without telling people. Not all of my memories were destroyed by the meds, and the medicine did help me learn to control my flashbacks. I was so lonely however, unable to make contact with myself, isolated, and then something amazing happened. My freshman year of Highschool, I became the Valentines Princess. In my school this was on par with the popularity contests of Home Coming Queen or Princess and Prom Queen. My classmates elected me, and openly made this truth known, because of the simple fact that the most popular girl in school was pregnant and did not know who the father was. The pregnancy was not the issue, many other girls were pregnant too, it was the culture of this town. If you were not sexually active you were not acceptable. It was that she had cheated. Perhaps it was a form of slut shaming, but I was only aware of the fact that I had won. I had been chosen to represent the beauty of my class, a symbol of the perfection of love.

These memories are so crisp, as is the memory of my sudden happiness ending, realizing I had to tell my mother that I had won and needed a dress. There was no way I could take the title. I went to tell the coordinator, another student in my class and she found me first. She had already talked to the other wealthy students, and they were going to pool their allowances to buy me a dress, a trip to the salon to style my hair and they were going to have my hair done. They also were going to give me a free ticket to the Dance. At this point, my mother had left my Step Father, and money was so tight we could barely afford food. When I told her however, I expected anger and was given joy. She was happy for me.

We went through the rituals of beauty, I even shaved my legs, ignoring the pain that caused. We had my hair done, and, when I walked out with my Tiara in place, taking the arm of the boy I thought was the most handsome in school, ignoring his displeasure at being my escort, I stared out at the people in my school and was given a moment of joy. No one booed. I had expected that, after all every day I was on the outside. I kept the roses the principle bought each of the Valentines Court members for years, only shedding them when I no longer needed the reminder of my value, for I am worth more than roses and a popularity contest.

When I told my therapist about the feelings I had had, he told me I was becoming a narcissist. He berated me for every single feeling, and I went back on the meds. I was so certain he was right, and that my mother was too. The messages given to me during these visits to the psychologist were all so negative. Tomorrow I am calling and making appointments again. I am an adult now, perhaps, this will free me from some of the pain I feel. Perhaps I will find one who is willing to work with me on how to emotionally survive my physical pain. If I am offered medication my first visit, I will not return to that doctor.

I am still fighting for my humanity. I grew up meeting and failing expectations, never making my own. I am an adult now, and my own expectations are met. Yet when I cry, even at the end of a sad movie, I question, evaluate, and judge myself. My crying is the hardest, it is the most difficult for me to allow. I have come to embrace Happiness, anger, jealousy, but sorrow is the biggest terror. Even in the media we face the words of stigma. Pharmaceutical companies, doctors ignoring the validity of emotion, deranged fathers, and depressed mothers (Feel free to rearrange, relabel, or adjust these two for your own needs) all collude against humanity.

This is not the only way that people are dehumanized just one example of it. There is something in the air, something in the water, or perhaps just a tradition diluted with time that has caused dehumanization to become far too common. Civil Rights are torn away from people based on their supposed inhumanity, the disabled are not granted access because we surely aren’t human. I tried so very hard to shed my humanity, yet without it I cannot sing, I cannot write, and I cannot breathe.

I am afraid of psychologists. What if they refuse to not try and force me to take drugs? What if it turns out in the future I was wrong and needed the antidepressants? The consequences of these choices are the real fear. I fear too, that my next psychologist will refuse to see my pain as real. The wheelchair is not enough for some people, or it is too much. I will be writing a how to article on shopping for psychologists, after I am done, detailing my method. I will share it here.

The Doom Ship

Not everyone gets to ride the Doomship. I ride, others ride, and yet I often take it for granted. What is the Doomship you ask? The Doomship is the Ship of Life, riding towards the birthday of Death. It sounds horribly dramatic and is.

Children born with serious illness are often told, “You won’t live to be 21,” Or something similar. I have a list of birthdays that have passed, my next is another Doom Birthday. When I broke my back, and it was first diagnosed I had a series of doctors tell me that my organs would fail by 25. My birthday isn’t for a few months, I was reading blogs off of the Disabled Blog Carnival and started reading Temporarily Disabled. Not only is this a great read, though with each post I tend to cry just a little for the child who was aching and the pain she has been through. She turned 26 and posted about the Doomship, sailing past into the great unknown.

With Doomship Birthdays past, it is like looking at a precipice of great unknown. I know I am going to live past 25. I am confident only due to surviving so long. These waters are familiar. I am pensive too, due to my Annual Cancer Scare. I get one a year. This time it is my reproductive system. I had my annual blood work done and my white count is high. My pap came back with abnormal cells. We’re redoing them both to verify before any panicking is done.

I waited three years before getting a pap, because no doctor would accommodate my need to not be in their perfect position, or to even help me balance on the table. I can’t do it myself. I need someone else to help heft my carcass around. I know if I do have cancer I won’t die. I will just get over it. My doctor is more worried than I am.

Right now I am surrounded by everything I have ever wanted. Not the things like the toys I never had, but the love I most desired. On my right I have Sprite, the service cat, curled up and purring against my back. She is helping me to not spasm so I can type the words out. My body is rebelling. I have on my left William drooling into my shirt, and every so often poking the keyboard with a paw to see what is so fascinating. He sleeps, then paws then sleeps a bit more.

In the other room my Person is puttering around, doing the dishes after making a meal of my choice. I had spaghetti with sausage meatballs. I haven’t had meatballs in a long time, but he made them for me, tolerating my lewd jokes. My home is clean, my bed is comfortable. My friends and family are far enough away and close enough at the same time. I even have high speed internet to keep me amused on those days when movement is unacceptable.

The Doomship sails on, the waves splash, the thunder crashes, and my life flashes before my eyes, but, it is the life I am living that I am proud of. Not the memories, not the past. It is my future that holds me in it’s sway. I reach for it, sitting in the prow, praying to my gods, listening to the world, and taking part in changing it.

I write something every day, and each time it is self discovery. I discovered I can write non fiction. I never knew I could. I know the mechanics of writing are sound, as I sell fiction periodically, and write it almost daily. It is merely the fear of my life that has held me back. I feared upsetting those with the power over my life and death. I am now the Captain of my Doomship. I mutinied.

So, as I rest, my ship swaying, I look out and see that everyone else is in a Doomship too, they just do not know it. They do not prepare, they do not adapt. They aren’t aware that they have to. Red sky in morning sailor take warning, the storm is coming and the night is humming… wait not for the red sky at night, for on the Doomship there is no Sailor’s Delight.

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