When I break things in I really break them!

I am learning about my limitations this week. Tomorrow the repair man comes for my chair again. Before you panic I will relay what I was told on the phone by the company. This is normal! The chair comes to the company prebuilt, and this means any fiddly bits that are loose won’t get found out until I get it. They do check the chairs but heavy use vs a test drive means that this is normal.

My poor chair… it has scraped up paint from my barely fitting in my door way, the seat belt fell off, the headrest lost it’s ability stay up, and the chair keeps getting stuck randomly and spins it’s wheels without moving. All of this is the result of my going out and down the road. I would go on side walk but the side walks here don’t all have curb cuts! My next project. I am relieved though, that this is normal. I wondered if I was somehow being too hard on this chair when I am doing my best to treat her like she’s a spun glass ornament. Fragile, in need of preservation.

I mentioned my care routine for the chair to the guy on the phone (I forgot his name) and he was impressed. Apparently most people don’t check their chair for any oddities every day, they don’t try to avoid walls (I disbelieve this one) and not everyone charges their chair nightly. I do. This chair is my ticket out of here. Here being right at my computer desk praying that I don’t have to access the HDD where it will skip. I’ve found I cannot watch movies with Media player but I can with Divx for example.

When my chair refuses to go, I get scared. I start imagining horrible things, and to be honest I have yet to shake off the feeling that the front door is too much to pass. I hear Gandalf the Grey in my head. “YOU SHALL NOT PASS.” Each glance at the door, there is the whisper. I may never leave if this chair breaks. I consider this a side effect of disability and likely this is linked to my PTSD and the recent abuses.

I will pass the door, I am going outside at least once a day. Plus I need an excuse to wear a fantastic hat! If anything I am rebelling against my own fears each time I go out. This isn’t a bad thing but it can be a bigger challenge than I am prepared for. I almost went out yesterday for a walk but I was too afraid. So I sat in my yard and stared up at the sky, and I wished for a butterfly to take my wish to the stars.

No butterflies but the moon rose in the afternoon and I felt peace again. I haven’t seen the moon in a long time, and I have missed her. I know as the sun grows hotter I will spend less time outside in the day and will sit in my yard at night with a cup of tea studying the stars. The divinity of the sky has always felt peaceful to me.

I worry that tomorrow the repair man will somehow deem me unworthy of my chair. Logically, this is not how this will go but I have a lot of unfounded fear. The recent experience of no pain meds has also left me with a shaky sensation in my emotional heart. My physical heart feels fine but my emotional heart is tempted by fear.

I know a life time of fear and I have either overcome or accepted the things that scared me as a child, some I am working on still but this new fear has the potential to cripple me where other things have not. If I let the fear of pain that has seeded itself in me win I won’t move, I won’t breathe deep and I won’t sing. A part of me feels broken, but I know that part of me is merely bruised and that bruise overlays old wounds.

I am breaking in my freedom, and Freedom won’t break on me. I keep telling myself this. Yet when I prepare to go out I have to check over a list of what feels like a thousand things just in case my body breaks down. Epipen, inhaler, cellphone, sunscreen, hat, sunshade, kitty cat, cat food, water for her, drink for me… the list goes on and on and on..

So in the end I am left to see that despite parts being loose or breaking under the strain of normal use I am not broken. I must remind myself that if my chair cannot handle going to places I have to go, then something needs to be fixed and it isn’t my life. I have waited patiently for over five years for freedom. I have fought tooth and nail for freedom. I have split myself into parts to survive being penned up. Now I can fly free, and it is time to take the kid gloves off. I will still care for my chair but my chair must care for me.

I am Kateryna Fury and I have the capacity to overcome great fear. (Green Lantern reference for the non nerdy among you.) It is through my will, my hope, and my dreams that I will over come this fear. Why fear pain? I know pain intimately. The pain that destroys me can only win if I let it. I did not let it, so why let the fear of this pain grasp me? Why fear being stuck inside? I have spent years stuck inside. Is it truly being inside I fear or is it now a fear of what I have forgotten, what I have missed and being lost in the big world? Why fear the risk of the sun or my body failing? Won’t the risk come to me if I try and avoid it?

I think I’ll go for a walk now. I must see the sky and the sun. The fear has been broken.

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