Afterburn (Trigger Warning)

I have had my pain meds for almost a week. I still can feel the after image of the pain, it’s tracking me like some sort of monster. In my mind there is a shadow, and if I look behind there feels a chance to see the negative image of my being drawn out by the pain. The monster is created by the black hole of pain, that inescapable pain that takes lives. In every motion I make there is the risk that I will hurt like that again. The fear is enough to make me hesitate. This is the after burn. This is the concequence.

It comes up when I want to do something such as spending money for a keyboard that isn’t broken, or saving for a computer that isn’t dying a slow and icky death. My keyboard has had a short in the usb wire for a good while. I found out about it during my time with the Paintrocity. I don’t use wireless keyboards for two reasons, batteries and also I tend to break those a lot faster. This keyboard has actually lasted for years and through several computers, it is a veteran in my typo wars. It’s been packed away for moves from the first time I lived on my own through this permanent time.

This keyboard has been dropped, run over by the scooter, and I wonder if objects feel each time I “hurt” it. Never on purpose because it is a life line. Perhaps it is this attachment that makes me hesitate but I think not. I think it is just having the pain again. The last time I felt this way was not the last time that my meds were removed from my life. With that I was already feeling pain and things were different due to abuse. That was another type of pain, even though it included bodily anguish and mental anguish. There is no comparison. This is NOT the worst pain of my life. It is merely the current pain.

Afterburn pain doesn’t go away with a pill. I know a large part of it is mental, some of it is a symptom of lost ability from having to stay still so that I didn’t give in to the urge to just scream. Some of it is rebuilding the barrier between my pain and my brain. I don’t know if this is a bad thing or not. I think with the new wheels it is giving me a bit of perspective on what my body benefits most from about the chair. That would definately be the adjustability of my body without my having to twist and shift. So far I have had a dramatic relief in all pain except my lower back where the actual spinal injury is. That pain won’t go away ever, I learned this a long time ago.

Still, with the Paintrocity I am afraid to explore. I am almost using my too narrow gate as an excuse. Almost. I fear more not having my shiny new wheels and if I force through the gate I may damage the controller wire or something else, therefore I have to be patient and wait for the manager to take the gate off it’s hinges, remove two blocks of wood and reattach it on the other side so that it swings fully open and doesn’t murder my rose bush. I have beautiful yellow roses in bloom.

The Paintrocity has me afraid to do anything. Eating? No. Why? It will make me digest and digestion hurt so badly without the medication. Breathing? I still catch myself starting to hold my breath because the injury in my back effects my diaphragm. Singing? I won’t let myself stop but that puts my lower back into a form of torture. The singing brings up more mental challenges with this. Even laying in bed is unpleasant now. It now reminds me of being trapped in my home.

I am going to call the manager today and let him know I need the gate fixed by Friday. Rather short notice occured but I have a graduation to attend, and I want to be there. Parts of me are afraid. This would be my first time in a huge crowd with these wheels but, these wheels have immaculate control, they turn in tight spaces, and oh yeah, I am taller. The seat of this chair is about four inches higher, then if I tilt it back I feel like some sort of six foot tall seated person.

The after burn has a very visceral image in my mind. It belongs in a horror movie. I become a negative image. It is my own reverse flash come to destroy my life, to devalue everything I love. The paintrocity even tried to remove my ability to hold Sprite. Yesterday was the first time since the pain meds return when we could truly lay together for naptime and both be comfortable. She had her head on my shoulder, so whenever I would shift a bit or wake up and opened my eyes I could see her curled up against me, using me as a pillow fast asleep. The adorableness helped dispell some of my fear of sleeping.

I think that was the worst part of the latest experience with no shelter from my pain. I did not go through what I thought of as withdrawals but instead into spirals of deeper pain. Sleep became a place of more nightmare than not. For a long time the only nightmares I had were related to the murder that I witnessed. Even in the pain those went away because I spoke up. The dreams consisted mostly of my parents relaying how much they cared for me. That is a very bad thing with parents like mine. The paintrocity also made me more vulnerable to talking with anyone who is a “leech”. I have a few in my life. I only answered the phone for one once.

Even as I write this I am left with a quaking feeling in my gut. My mother admitted she reads my blog. Well during my time of pain when I wanted to kill myself I wrote a letter detailing all of the things that made me angry about wanting to die. I understood still and reminded myself that the pain was escapable if I trusted my service coordinator and advocate. I just had to wait a little longer. Just a little more time. Those words were torture. I just wanted to slit my wrists. I considered eating some of the non pain medications en masse to see if I would die. I considered dragging myself to the street. The plan ended there because that was NOT happening. I had to talk myself out of it, and I found myself angry at wanting to die. I found myself angrier that the voice in my head telling me to die sounded like my mother or my father always. It was never my internal voice.

Some of the things I wrote I will never write about here, some I will. I determined long ago that this is my blog, this is my space, and my parents are far from good but they are also far from the only abusive parents in the world. For my entire life I have thought of my mother as a victim. That stopped. This was a benefit of the paintrocity. Anyone that could let their children be abused and excuses it as it was better for them than being without a father, or lets them take the beating so that they don’t have to IS an abuser. She may not have dirtied her hands as often as Steve (that’s my biological cretin of a father’s name by the way) but she still did abuse. There were words, moments, and even a few times she hit me because she didn’t like what I was feeling. I don’t know that I can forgive her for what she has done. I don’t know that I will ever visit the family again. My baby sister is old enough now that she is a fully formed adult. If she needs me she can call. I don’t have to endure an abusive grandmother, an abusie mother, and her worst drug dealer ever husband

I finally understand why after calling her or her calling me I feel so horrible. She’s like her mother. I don’t know if she will read this post but I will never say those words outloud to  her. Every time she told me I was just like my father it cut to the soul. The paintrocity helped me to relive those moments.

I still have a lack of good color to my skin, I still have these dark blue circles under my eyes. I always have them when I don’t feel quite right. The darker and bigger those circles the worse the pain is. I felt for a while during the pain that my face had vanished under them. Both my caregivers were concerned more than once about how grey I had become. I looked like a zombie. I was a zombie lost to the pain. They made me eat. They made me drink. I did not want to. This was something I asked of them in preparation and both caregivers worked with me admirably. There were days when I just growled at them. They still worked, they still did all that we needed. There was nothing that either did that made pain worse either. That is a challenge.

My face has always betrayed how much I hurt. When I saw it happening in the mirror or it was commented on I felt naked, and I expected pain in the form of abuse or manipulation. Every other time someone else has added to those burdens. I trust that in the moments when everything melted into PTSD land or I was hallucenating very bad things that neither did anything wrong. If they were going to they would do it regardless of coherency. My experience with abusers has also told me they would want me to remember, so that I would know that they had power over me. Disconcerting? Absolutely.

I know eventually I will defeat my formless foe, the Paintrocity. I will get back to where I feel almost carefree. I have never quite managed carefree, but I have come close. Now that I have mobility restored I may attain actual carefree during some moments. I have goals, I have dreams, and I have begun to live already. Like a thirsting plant that just needed water. Sprite has taken to the chair as well. In less than a day she stopped hiding for most of my jaunts around the living room for food or water. She didn’t like going outside on the leash but after that she started jumping up onto my lap, she found out she can’t sit on my headrest and she’s sitting on the table waiting for me to finish typing.

My pain is lessened further because I cut my hair off. I am now short hair bearer. I like the style, and it looks good one me. (No style I have ever had has been out and out bad except the time I shaved my head.) It feels good. I am sending the grocery bag full of hair (and I do mean full, I was apparently very hairy) to the people gathering hair for the Oil Spills. Because the hair is dyed it was not appropriate for Locks of Love but now I know there is another charity that can use my hair for good.

I do not yet know what it will take to beat the Paintrocity except for living. I do know that I do not fear dying anymore. I don’t think I qualify as suicidal. Part of this is that I had reached my goal of not wanting to kill myself daily before my pain meds were denied by the insurance, and I managed to make it until the last four days before I wanted to die. Even when I wanted to I could use the truth over the pain induced self hate and lies in order to not give up or in. I had been living all along. That sensation of waiting to live that was torture is at an end.

Now I just need my corset and I have it all.

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